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RP 17th December

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User
Posted 05 Nov 2019 at 14:41

OK,  confirmed T2bN0Mx Gleason 7 (4+3), 5/6 cores left side 1/6 right side. CT Scan shows clear.  We elected for RP which is being estimated 16th Dec at the moment (pre-op) next week. 

Just for good measures, they also have to mess around with my chemo (I have chronic eosinophilic leukaemia (CEL)), which I was not expecting (having been in managed remission for about 4 years), as the chemo can affect my 'healing' - that worries me a bit.    Flippin' hate cancer!

Edited by member 19 Dec 2019 at 07:15  | Reason: change of status

User
Posted 22 Dec 2019 at 21:37

Great to hear you are making excellent progress. Check this the nursing staff who will be doing the TWOC. I took some tens level 3 and they gave me an adult nappy and pads anyway but additional were for reassurance. Better to be over equipped. I also took a couple of gel travel Johns with me but didn’t need them on long train journey back...although not sure how I would have used as at min need a quiet area :-/

hope you have a fabulous festive week.

TG

User
Posted 05 Nov 2019 at 14:41

OK,  confirmed T2bN0Mx Gleason 7 (4+3), 5/6 cores left side 1/6 right side. CT Scan shows clear.  We elected for RP which is being estimated 16th Dec at the moment (pre-op) next week. 

Just for good measures, they also have to mess around with my chemo (I have chronic eosinophilic leukaemia (CEL)), which I was not expecting (having been in managed remission for about 4 years), as the chemo can affect my 'healing' - that worries me a bit.    Flippin' hate cancer!

Edited by member 19 Dec 2019 at 07:15  | Reason: change of status

User
Posted 05 Nov 2019 at 21:26

Good luck BH.   I had my op on 16th Dec 2016 and was Gleason 4+3.  Yours is a Monday op and you should be home on Wednesday.   Could they fit staples out and catheter out before Christmas or will it be in the Christmas break?   

Mine was 28th Dec staples out,  30th Dec catheter out.  The district nurse came round as well but I didn't need her. Make sure you have some good pads.   I found Boots pads are warm and well sized.

Regards
Peter

User
Posted 06 Nov 2019 at 09:23

Hope the surgery goes well and the post op healing too.

Ido4

User
Posted 07 Nov 2019 at 11:48

Good luck with the surgery and that you get good support afterwards.

Best

User
Posted 09 Dec 2019 at 13:50
So pre-op all good.

My BP was 127/80 which was spot on!! BMI too big for my size (whats new!) Surgery is on the 17th Dec at Spire Southampton - 0730 start! Looks like a gentle prostate free Christmas!!!

User
Posted 09 Dec 2019 at 16:49

Good luck with the surgery and have a smooth recovery. 

Kev.

User
Posted 16 Dec 2019 at 19:12

Best wishes for tomorrow.

Thanks Chris

User
Posted 17 Dec 2019 at 11:26

Thinking of you and hope the operation has gone smoothly today.

Best wishes for a speedy recovery.

User
Posted 18 Dec 2019 at 06:29

Hope all is fine and you are now looking forward to getting home. Every one is saying taking it easy so trying to offload seems like a good idea. I am a day before you so keep us posted when you feel up to it.

User
Posted 18 Dec 2019 at 14:05

So far so good, and as you say.. "now for the recovery!"

Take it easy, there's no rush.

Kev.

User
Posted 18 Dec 2019 at 16:37

Take it nice and steady. Hope your recovery goes well.

 

Ido4

User
Posted 19 Dec 2019 at 08:31

Hey BHP!

Great to heat you see making good progress. At least plenty on TV this time of year to burn time plus friends and family around.

Take it easy and 30th will be here in a blink.

TG

User
Posted 19 Dec 2019 at 10:15

Originally Posted by: Online Community Member

First night in my bed since being back at home. Seems odd that the RP was only on Tuesday, and here I am on Thursday morning sitting in front of the computer. A reasonable night sleep all things considered.  

So managed to get my head around injections, painkillers and the managment of the night bag catheter (although I did wake a few times and check to see if it was working OK).   Managed to get the nurses to give me some instiligell to lubricate the tip of the catheter  - which stops the occasional pinching.

Shower this morning and a change of TED socks, and feel much better. Tummy hurts a bit and the wind is making itself known! (Although touch wood no shoulder pain).  Got a flipping cold, which doesn't help with sneezing and coughing, although my the physio gave me some tips which seem to be working.

All things being considered, not in too bad a place for day 2!

Free Willy day is planned for 30th December, so Christmas with a bag! 

 

Good to hear you are doing so well without any pain. Still listen to what everyone is saying and take it easy ,even if you feel you can do more. Be extra careful with cleanliness as I picked up a water infection last time I had the bag on (after biopsies) and not very nice when peeing. Good luck with the future and keep us posted.

User
Posted 22 Dec 2019 at 13:15

BH

TWOC is quite straightforward, keep yourself well hydrated the day before and on the day. Drink little and often on the day and then follow the instructions of the nurse at the clinic. Stay relaxed and it will be a breeze. Take a towel and seat cover to put on the car seat for the return journey just in case. 

Have a great Christmas.

Thanks Chris

User
Posted 22 Dec 2019 at 13:24

Good to hear things are moving along nicely. It would appear your catheter will be in for longer than me. I have just received confirmation of my TWOC, which is on the 27th. Hope you continue to recover and try and enjoy your Xmas as much as possible. I have been fortunate in having a 5 year grandson who lives very close by. Fortunately we will be spending some of the time with him and family on Christmas day. Which will fortunately give my wife a break as I haven't been able to help much. Hope you manage to sort out some of your other issue out and agree this forum has been a great help

 

User
Posted 22 Dec 2019 at 13:27

Originally Posted by: Online Community Member

BH

TWOC is quite straightforward, keep yourself well hydrated the day before and on the day. Drink little and often on the day and then follow the instructions of the nurse at the clinic. Stay relaxed and it will be a breeze. Take a towel and seat cover to put on the car seat for the return journey just in case. 

Have a great Christmas.

Thanks Chris

Good idea to take a towel and cover for the car seat.

User
Posted 22 Dec 2019 at 14:38

Take tena or boots pants with you better than pads. My husband only just had enough. Wish you well.on the day. 

Edited by member 22 Dec 2019 at 14:40  | Reason: Not specified

User
Posted 30 Dec 2019 at 15:27

That’s good. I found I leaked when walking fast or coughing after the catheter was removed. Watch out if you exert yourself!

Sounds like you’re doing well.

Did you get scanned to see if you were emptying your bladder?

Best wishes,

 

Ido4

User
Posted 30 Dec 2019 at 16:41

Wow sounds like you are doing amazingly. Here it's like Niagra falls. Only joking. Keep us posted and we'll done.

User
Posted 30 Dec 2019 at 16:50

BH

That's a great start, don't go to the loo "just in case" but don't wait too long either. Tense the pelvic muscles when standing up. 

Thanks Chris

User
Posted 30 Dec 2019 at 18:38

Thanks for that Chris, I'll keep that in mind. Must admit things feel a bit sore internally down there at the moment, but is suspect that is to be expected only 10 hours since catheter removed, and them urethral muscles haven't been used for 2 weeks!

Managing to retain about 150mls before bladder starts to feel a little full. Onky on water and tea for now until things progress further. Standing up is definitely better than sitting! 

User
Posted 31 Dec 2019 at 10:53
Brill
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 02 Jan 2020 at 16:18
Good to hear you are doing really well .
User
Posted 02 Jan 2020 at 18:14

Happy New Year and I hope your recovery continues smoothly.

 

Ido4

User
Posted 06 Jan 2020 at 09:36

You are doing great. Hope your recovery continues. Yes I am waiting for my results about the same time but as yet have not received an appointment date .

Edited by member 06 Jan 2020 at 09:54  | Reason: Not specified

User
Posted 06 Jan 2020 at 19:33

 Looking at your numbers you seem to be in a better position having T2b compared to mine T3a /N0/M0 Gleasom 3+4 psa 8.74 I am not sure how much of a difference is between T2b and T3a other than mine was at the edge of the prostrate but might not be contained, whereas yours is within the prostrate. That's my understanding but could be wrong. Good luck with the results.

 

Biopsies 5 out of 11 cores on the right, left hand side biopsies benign. Fingers crossed we don't get any upgrades.

User
Posted 14 Jan 2020 at 20:14

Gents

Just wanted to wish you the best for your PSA readings.  Saw my urologist today for PSA reading of 0.02 six weeks post op and confirmation that negative margin (which is good as I understand it) in tissue margin removed.

Next PSA in 4 months when I hope reading will be undetected.

Best wishes

Grant60 

User
Posted 15 Jan 2020 at 09:58

Good to hear you are still on the up.

User
Posted 15 Jan 2020 at 13:22

BHP

Great news on the progress :-)

TG

User
Posted 16 Jan 2020 at 08:24

Good to hear your progress.

User
Posted 16 Jan 2020 at 11:03

Great progress, here’s hoping your February review is reassuring too.

Ido4

User
Posted 05 Feb 2020 at 18:56

fantastic news and great to hear you are doing so well and almost ready to go back to work. How are you doing fitness wise?

User
Posted 05 Feb 2020 at 20:45

Sounds like you are doing really well. Long may that continue.

Ido4

User
Posted 05 Feb 2020 at 22:11

Sorry to hear about the Ed. I am the same but wasn't that great before the op if I am honest. Good to hear you have lost some weight too and getting back to fitness. Good luck and hope you continue with your recovery.

User
Posted 16 Feb 2020 at 20:08

Everything crossed mate. Those days are stressful 😬

Edited by member 17 Feb 2020 at 14:45  | Reason: Not specified

User
Posted 17 Feb 2020 at 06:35
Fantastic. Hope your recovery continues.
User
Posted 17 Feb 2020 at 20:05

Everything crossed for a positive PSA result. 

User
Posted 19 Feb 2020 at 20:23

Great news on PSA. ED is more problematic....

Ido4

User
Posted 19 Feb 2020 at 21:03

Great news.  Now to get that Dodo back to life.

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User
Posted 05 Nov 2019 at 21:26

Good luck BH.   I had my op on 16th Dec 2016 and was Gleason 4+3.  Yours is a Monday op and you should be home on Wednesday.   Could they fit staples out and catheter out before Christmas or will it be in the Christmas break?   

Mine was 28th Dec staples out,  30th Dec catheter out.  The district nurse came round as well but I didn't need her. Make sure you have some good pads.   I found Boots pads are warm and well sized.

Regards
Peter

User
Posted 05 Nov 2019 at 21:34

I think they are going to be a little cautious post surgery - my skin is fragile due to my chemo and all sorts of discussions have gone on between the urology team and my haematologist. Still, I won't be doing much over Christmas now!

User
Posted 06 Nov 2019 at 09:23

Hope the surgery goes well and the post op healing too.

Ido4

User
Posted 07 Nov 2019 at 11:48

Good luck with the surgery and that you get good support afterwards.

Best

User
Posted 09 Dec 2019 at 13:50
So pre-op all good.

My BP was 127/80 which was spot on!! BMI too big for my size (whats new!) Surgery is on the 17th Dec at Spire Southampton - 0730 start! Looks like a gentle prostate free Christmas!!!

User
Posted 09 Dec 2019 at 16:49

Good luck with the surgery and have a smooth recovery. 

Kev.

User
Posted 16 Dec 2019 at 17:22

Feeling nervous now about tommorow, but looking forward to getting the cancer out for Christmas! 

User
Posted 16 Dec 2019 at 19:12

Best wishes for tomorrow.

Thanks Chris

User
Posted 16 Dec 2019 at 23:30

Good luck for tomorrow. Should be great timing as plenty to do over Xmas and relax etc

Onwards and Upwards 🍻

User
Posted 17 Dec 2019 at 08:31
Very best wishes for your op!

Chris

User
Posted 17 Dec 2019 at 08:37

Good luck with the surgery and the recovery.

User
Posted 17 Dec 2019 at 11:26

Thinking of you and hope the operation has gone smoothly today.

Best wishes for a speedy recovery.

User
Posted 18 Dec 2019 at 06:29

Hope all is fine and you are now looking forward to getting home. Every one is saying taking it easy so trying to offload seems like a good idea. I am a day before you so keep us posted when you feel up to it.

User
Posted 18 Dec 2019 at 10:46

So, it's out, and according to the surgeon, he has managed some left side nerve sparing.

Lost a litre of blood in surgery, but other than that (and a crap night sleep last night), drains are out, I'm walking around, and going home in about 4 hours time.  It has been relatively painless this far.....  now for the recovery!

User
Posted 18 Dec 2019 at 14:05

So far so good, and as you say.. "now for the recovery!"

Take it easy, there's no rush.

Kev.

User
Posted 18 Dec 2019 at 16:37

Take it nice and steady. Hope your recovery goes well.

 

Ido4

User
Posted 19 Dec 2019 at 07:24

First night in my bed since being back at home. Seems odd that the RP was only on Tuesday, and here I am on Thursday morning sitting in front of the computer. A reasonable night sleep all things considered.  

So managed to get my head around injections, painkillers and the managment of the night bag catheter (although I did wake a few times and check to see if it was working OK).   Managed to get the nurses to give me some instiligell to lubricate the tip of the catheter  - which stops the occasional pinching.

Shower this morning and a change of TED socks, and feel much better. Tummy hurts a bit and the wind is making itself known! (Although touch wood no shoulder pain).  Got a flipping cold, which doesn't help with sneezing and coughing, although my the physio gave me some tips which seem to be working.

All things being considered, not in too bad a place for day 2!

Free Willy day is planned for 30th December, so Christmas with a bag! 

 

User
Posted 19 Dec 2019 at 08:31

Hey BHP!

Great to heat you see making good progress. At least plenty on TV this time of year to burn time plus friends and family around.

Take it easy and 30th will be here in a blink.

TG

User
Posted 19 Dec 2019 at 10:15

Originally Posted by: Online Community Member

First night in my bed since being back at home. Seems odd that the RP was only on Tuesday, and here I am on Thursday morning sitting in front of the computer. A reasonable night sleep all things considered.  

So managed to get my head around injections, painkillers and the managment of the night bag catheter (although I did wake a few times and check to see if it was working OK).   Managed to get the nurses to give me some instiligell to lubricate the tip of the catheter  - which stops the occasional pinching.

Shower this morning and a change of TED socks, and feel much better. Tummy hurts a bit and the wind is making itself known! (Although touch wood no shoulder pain).  Got a flipping cold, which doesn't help with sneezing and coughing, although my the physio gave me some tips which seem to be working.

All things being considered, not in too bad a place for day 2!

Free Willy day is planned for 30th December, so Christmas with a bag! 

 

Good to hear you are doing so well without any pain. Still listen to what everyone is saying and take it easy ,even if you feel you can do more. Be extra careful with cleanliness as I picked up a water infection last time I had the bag on (after biopsies) and not very nice when peeing. Good luck with the future and keep us posted.

 
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