Don't worry I rang many hospital depts and the specialist nurses.
Last week we saw the surgeon, first time since the op. He told us the op wasn't done a day too soon, larger than thought and Gleeson 9 by the time of surgery. PSA down to 0.01 so things are definitely improving. Because of the highly aggressive nature of this particular cancer there is the likelihood of spread. He will be reviewed again in 12 weeks and a decision will be made as to whether radio therapy will be needed, in the meantime the surgeon wants him to continue getting well and getting his strength back.
He is doing amazingly well and virtually no incontinence. We were in a local shopping centre this morning when I spotted a prostate UK badge on one of the low key security men, I recognised it immediately and we had a lovely chat and when my husband re appeared I left the two of them chatting. There was one year between there ops and diagnoses. I am a great believer in things happening for a reason and this chance meeting confirmed that. He also told me that Burtons (the tailors) sold the badges and my husband and myself now have a badge each.