Toilet after RP

User

Posted 02 Dec 2019 at 13:20

We have been guilty of being over confident of the recovery time in our haste to get the prostate removed. 5 weeks from diagnosis to operation.

Patience is needed.

Also he will find trapped wind is an issue post surgery.

Any questions DM me.

User

Posted 07 Dec 2019 at 00:14

Sorry for late reply he has another nasty UTI so not feeling brilliant.

His op is Friday the 13th!

I want to have a good cry but I am holding it all together.

User

Posted 07 Dec 2019 at 09:20

Stay strong if you can.

User

Posted 07 Dec 2019 at 11:01

I am staying strong for him, I think when he is in hospital I may fall apart. I'm the person people turn too in a crisis so I have always had to be outwardly strong.

Going for a bit of r & r now with my daughter & granddaughter, Christmas Fair at my old grammar school. :-)

User

Posted 07 Dec 2019 at 11:11

I did the same felt it post OP.

Enjoy the weekend.

User

Posted 24 Dec 2019 at 15:51

How are things Denrog?

All well post op I hope.

User

Posted 24 Dec 2019 at 21:37

Hi, thanks for asking. I seem to be in a daze since all this happened.

The op went ahead as planned on the 13th, an open radical prostectomy(?), the surgeon kindly offered to ring me when surgery was finished. I was at a funeral and for two hours at the wake I held my phone in my hand - no call. Said goodbye to everyone and got in to my daughter's car to discover a missed call from him when he said he had removed the prostate and hoped to have a catch up call with me later. Unfortunately I haven't had another call so until we meet with the consultant in a few weeks time we are none the wiser.

My husband is doing extremely well although I know the catheter is getting on his nerves and he hasn't actually left the house since he came home a week ago. He was in robust good health before the op, cancer not withstanding, and he has a positive outlook. I feel less positive about the future and I have to hide it. The tears are still locked in but I do want to sleep an awful lot, I suppose when I'm asleep I am not thinking about the big C.

Hope you have a lovely Christmas.

Best wishes

User

Posted 24 Dec 2019 at 22:26

Denrog, you don’t seem to have given any information about what your husband’s cancer staging was, but the fact he’s had an RP indicates that the cancer was presumably localised, and that treatment’s been given with curative intent. Of course a cancer diagnosis is concerning, but there really no reason not to feel positive about the future. Localised prostate cancer is almost always a “little c”, not a big one. The overwhelming majority of men diagnosed with it don’t die from it.

Stop worrying about it and enjoy Christmas!

Best wishes,

Chris

User

Posted 25 Dec 2019 at 07:30

The OP is done. You will be feeling that way. My hubby was the same hated the catheter and did not leave the house needing to stay close to home. Take care and rest up. I slept alot and cried in secret. Support each other.

I echo what Chris says. Try to enjoy Christmas.

User

Posted 25 Dec 2019 at 10:40

He was stage 4 and at least one highly suspicious lymph node was also removed. Before the op the Prof. had said he expected him to need further treatment at Weston Park Hospital, which I assume meant radio therapy.

Right, not showered or dressed yet and I am cooking dinner for my daughter, partner and glorious grandaughter. Time to get a move on .

The joy of a two year old really lifts our spirits!

Enjoy your day!

User

Posted 25 Dec 2019 at 12:39

If T4, presumably either locally or regionally advanced, but no spread to the bones or elsewhere in the body, or they wouldn't have done the RP?

T4 means incurable, as you know, but incurable does not mean terminal. There's every reason to suppose that your husband will be around for many years to come!

Best wishes,

Chris

User

Posted 25 Dec 2019 at 22:49

I do Hope that you had a good day. We had my sons dog with us who really made my 88 year old father happy.

User

Posted 26 Dec 2019 at 01:36

Originally Posted by: Online Community Member

Denrog has previously posted that her husband is T3 so I assume the stage 4 comment is related to his PI-RADS score - I don't think they would have offered open RP with adjuvant RT if he was incurable.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 26 Dec 2019 at 08:06

Thanks for clarifying that, Lyn. I was surprised to hear that RP had been given for T4! If he was T3 then treatment would have been curative in intent.

Cheers,

Chris

User

Posted 08 Jan 2020 at 14:33

Christmas & New Year celebrations were quiet this year. We were so tired that we were in bed before the midnight chimes.

The catheter has been making him thoroughly sore & miserable, we were told to expect it to be removed by 14 days post op. I made numerous calls to the hospital trying to chase up the missing appointment, finally yesterday, 25 days post op he had a cystogram & the catheter was removed albeit after a total of 8 hours at hospital.

Today for the first time since surgery he walked up to the village for his newspaper. He remains positive and continence is far better than expected.

User

Posted 08 Jan 2020 at 16:01

Good to hear. Bet he is enjoying being catheter free!

Edited by member 08 Jan 2020 at 20:28 | Reason: Not specified

User

Posted 08 Jan 2020 at 19:10

That’s a long time to wait for catheter removal but glad to hear it has gone well and his continence is good.

Ido4

User

Posted 08 Jan 2020 at 23:10

Very long time I think he got 'lost' in the system, community nurses forgot about their planned visit as well. Moral: avoid surgery just before Christmas & New Year Holidays

User

Posted 17 Jan 2020 at 12:16

Well his good progress continues. Virtually no incontinence and he had a night at the pub with his 'mates' yesterday.

He does tire quickly and tends to be in bed by 10 at the latest. The surgeon has requested a specific CT scan before his review appointment so we have that coming up and a PSA blood test next Monday.

I remain positive in his company and have only shared my fears with a couple of close friends.

User

Posted 18 Jan 2020 at 17:24

Progress. Glad you have friends to support you.

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