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PSA surprisingly high at 1.89 post radical prostatectomy

User
Posted 30 Jun 2020 at 16:09
👍

Hope it continues

Good luck

Cheers

Bill

User
Posted 30 Jun 2020 at 16:50
That's a great response Guy!
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 02 Sep 2020 at 20:22
I wondered about starting a new thread for this, but decided not to cause it is interesting to link to my history.

My Dad (88 next week) has just been diagnosed with advanced PC this week, with a PSA of 1500 and spreads into at least liver and bones. I saw him 7 weeks ago, he had lost weight (which he needed to) but wasn't complaining of any pain. My sister saw him 2 weeks ago and similarly, he wasn't complaining of pain then either. But as of today, his pain is a problem, and from tomorrow will be on morphine.

He has dementia which has been gradually deteriorating for the last about 10 years, and maybe this has contributed to his tolerance of symptoms or perhaps inability to express what's going on with him.

But I guess PSA of 1500, with it in at least liver and bones - probably elsewhere too, with him not eating much and being on morphine means we're in a very short last lap - a few weeks at best?

Interesting perspective for me to experience this with my Dad, with my 3rd 3-monthly PSA test post treatment due next week, after the first 2 'undetectables'. Brings a new perspective to have got this nasty disease removed from me at an early age!

User
Posted 02 Sep 2020 at 23:35
I do hope that you are wrong and have more than a few weeks - I assume they are going to start him on HT? As he is hormone-naive, the response may be very good and a) reduce his pain and b) keep him around until something else gets him.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 03 Sep 2020 at 08:14
Thanks LynEyre as ever for your suggestions and support. No sign that they'll do any form of treatment - but it is quite new info, so they might just be working through what to do. I hadn't thought that HT might help with the pain - thanks for that suggestion - I'll push it into the system of care now looking after him.

As an aside, we've been amazed about the difference in care between dementia (nothing available, no one seemingly interested) and cancer (lots of resources, interest and care). Doesn't seem just to me. Without his dementia, we might well have picked this up earlier.

 
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