Sadly joining this group

User

Posted 21 Nov 2018 at 12:47

One more point avoid having your recovery period over a holiday if you can. RP can have life threatening complications and you do t want to be sitting in a&e on Xmas Eve with any of those!!

User

Posted 21 Nov 2018 at 17:11

Thank you all for your encouraging replies and understanding the anguish we're both feeling. So this is what happened..... I called the secretary this morning, explained we'd been given an appointment etc, told her how worried I was, and asked if we could have the operation anywhere else so she said she would speak with the surgeon and then get back to me. She called back after lunch and said the surgeon had looked at the histology again and said it would be fine to wait until the 6/1. I thanked her and hung up, only then to think yes the histology said G6 grade 1, but it was the MRI that was the fly in the ointment, indicating a T3a. So didn't feel much better. Fast forward a few hours and I receive a call from the appointment clerk, saying they'd had a cancellation and did we want to accept the 10/12. This is almost 1 month earlier. I snapped her hand off. I am now thinking we will have the operation out of the way and hopefully Pete will be starting his recovery in time for Christmas. Pete is very anxious, as it's a month earlier, but this thing has got to come out, so sooner rather than later for us is best.

Good point francij1, I'm hoping there will be no complications, but if they are that it happens before Christmas

Thanks again to everyone for your advice and sharing your experiences.

Michaela

User

Posted 21 Nov 2018 at 18:14

Happy days Michaela! So now you can start thinking about doing something nice when he has fully recovered around March next year.

Good point on Franc’s part, the NHS dies a death over Christmas, so he should have had his catheter removed before then, and then he can ‘put his trotters up’ and recuperate over the holiday with you as his hand-maiden catering to his every whim!

In fact I was completely OK the moment I walked out of hospital on day 3, straight to the hospital Social Club for a quick pint. If you check my profile, you can see my daily contemporaneous notes regarding my recovery. Now, I would just sum it up as feeling a bit fatigued in the afternoon, probably down to the after-effects of the G.A. It all seems a long time ago, even though it’s only five months-ish.

Everyone here has been so helpful, and have given me the inside track on the whole thing, as we have tried to do for you.

I think you will now enjoy a happier Christmas than what you expected to.

We will be having a large dose of Vitamin C - on the Red Sea Riviera in Egypt.

Hope everything goes to plan.

Cheers, John

User

Posted 21 Nov 2018 at 18:38

That's very good news for you both!
Even if the histology does confirm hubby as T3a .....with a G6 (or G7 ) he still has a very good chance of a succesful outcome...
You won't know the complete picture until the prostate and surrounding tissue has been examined fully in the lab ...so more waiting I'm afraid...
But that's the bonus with surgery....at least you'll know pretty quickly if the op has been succesful and have a full breakdown of the Lab results ( make sure you ask for a copy of the histolgy report when hubby has his follow up appt ) ..Future monitoring of PSA levels will put your minds at rest if all is stable .. and if anything changes in the future at least hubby will have the chance of early intervention ..

Best Wishes
Luther

User

Posted 21 Nov 2018 at 20:48

I'm sure like me,you'll both feel pounds better once its out,yes its sore,I didn't go down until the afternoon,for my op can't remember,much of that evening,but 8am next morning I was trotting down the corridor for my Sunday paper,could have murdered a full English,felt brilliant,like a big weight had been lifted off me,the catheter is not that bad,now the catheter is out,and the staples,so now I'm going to look forward to xmas,won't get results till after then,so going to chill now for a few weeks

User

Posted 21 Nov 2018 at 21:41

It was good to read your news. Once again I know what you feel. I think I wrote in my log I was 'over the moon' to get a December appointment after being told January. January can be a rather dicey month in the NHS as well.

On Sunday 18th December I was sent home. On 21st December I received my extra catheter bags. On 22nd December the District Nurse arrived. 28th December I had staples removed. 30th December Trial Without Catheter. The NHS works all year. Fear not.

They do cut back on ops though.

Edited by member 21 Nov 2018 at 21:43 | Reason: Not specified

User

Posted 21 Nov 2018 at 22:16

Great news. As you say the prostate is coming out so the earlier the better. Hope all goes well.

Ido4

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