First results in

I personally think it's a long time.

I had to wait about hat long from when I was diagnosed but that was because it was over Christmas in 2014.

In that period my psa went up from 199 to 235.

As soon as I started HT it dropped to 35 and continued dropping.

It's been .05/.06 for near4 years.

It's always a pain waiting for the first (or any) results

Paul

Don’t waste your time and money thinking about any private biopsy, and as has been mentioned here many times before, most prostate cancers are slow-growing over many years, weeks here or there are most likely of no consequence in the end, which is why your man has not been fast-tracked in an ambulance to the pointy end of a ray gun!

Wait for the biopsy results please. Best of luck once again.

Cheers, John.

Hi Gemma,

As I said before, “calm down dear”. If you want to really worry check out the mortality rates for lung, pancreatic and liver cancers, and PCa is not one of them.

PCa is not a walk in the park by any means, and can be fatal, as can crossing the road, but I really hope you can relax to some extent until all his test results come through.

Then you can plan the way forward with some kind of road map, whereas now you are just going round in circles.

Easy for me to say, of course, as once I was diagnosed I researched the disease intensively and realised the health implications of PCa. If I had one of the above cancers I would be s******g myself! (Possibly also a side effect of surgery and radiotherapy for PCa).

Remember these watchwords: ‘slow growing’ and ‘with curative intent’. Let’s hope that’s what you hear sometime before Christmas.

Cheers, John.

Edited by member 03 Nov 2018 at 13:34  | Reason: Not specified

On biopsy, two out of fourteen lymph nodes I had removed were cancerous. I have undetectable PSA currently and no biochemical recurrence, and one oncologist told me I am cured, and another one told me it won’t kill me if even if it recurs.

So I am just carrying on as normal, and have never felt so well.

I do hope you get his results soon Gemma, and a treatment programme in train, and then hopefully you won’t need to worry so much.

Best wishes, John.

Thanks Steve.

And to you too 

Hello,

I have some appreciation of how distressed you feel.

Husband is now 7 weeks post op and he had complications so catheter only removed two days ago! His prostate and 28 lymph nodes were removed with 1 being found as cancerous. He was T3 with a Gleason score of 3+4 changing to 4+3 after op. 

My husband is my rock too and it’s devastating to see him suffer. Some days it feels unreal and I’m not sure this is actually happening to us!

My understanding is that we have to find our new “normal”; over the next 5 years we will always be waiting for the next blood result to see if the PSA is rising and the cancer is spreading hence we will always be waiting on something and have this uncertainty.

For us it is a very slow process to find this new “normal” and it very much seems that every week we take two steps forward and one step back.

I have only posted here a couple of times and don’t visit much either but I am having a terrible day today and reading the questions on the forum helps me get some perspective.

I just wanted you to know that although it has shattered the very foundations of our life that the days do pass and over time we are slowly finding ways to get through this. For us the adjustment is taking time and it’s, as I said above, a slow process.

Best wishes to you and your husband. 

Rooting for you, hang on in there