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New to this and scared

User
Posted 18 Sep 2018 at 08:17

Hi Sharon what Lyn has told you is what my Onco told me nearly two years ago .The chemo wasn't to bad and definitely shrunk tumours. With the hormone brought PSA down which unfortunately is now starting to rise  but will be starting a new treatment on next Onco app.Just to say about chemo if OH is fit he should be ok.When I had mine there was a gent next to me who was 80 years having the same as me.Good luck Geoff.

User
Posted 18 Sep 2018 at 08:34
Sorry! I worded that wrong he was 80 years old not having chemo for 80 years!!🤔🤔
User
Posted 19 Sep 2018 at 16:18

The best advice I can give is to stay positive, support as much as you can by attending appointments, and encourage him to continue with all normal activities and have ongoing little projects to keep interest up and look forward. If opportunities to do things arise then go ahead and do them. Don't put things off.
Expect some roller coaster days and varying mood swings but just go with the flow. If your oh seems to be depressed then be available to talk and listen and if tiredness is an issue then let him rest.
Just be alert to subtle changes but don't let the cancer rule your life. Things may alter as time goes on but we have found it is best to enjoy all the little things ' a good cup.of tea, a nature walk, time together but allow each other time to yourselves too. Think up new adventures together if some things change - life is good.

Edited by member 24 Nov 2019 at 16:12  | Reason: Not specified

User
Posted 19 Sep 2018 at 18:35

Thank you so much and that really makes sense. You don’t realise until you’re in this position how unimportant some things are in life and things that used to wind my OH off he just laughs at now

User
Posted 19 Sep 2018 at 18:42
After 42 years of marriage my wife and I were taking each other for granted. The 6 months since my PCa diagnosis and treatment have definitely brought us back closer together and we now are a very different couple. At least something good has come out of my cancer
User
Posted 19 Sep 2018 at 19:12

Yeah I do definitely understand that and initially it did with me and my OH but I now feel the struggle with everything and the guilt that it’s not about me at all and why do I feel so bad and why do I think a bottle of wine will blank everything out and make matters better when it makes things 10 times worse 

User
Posted 19 Sep 2018 at 19:14

I just find the thought of my life without my husband is not a life and I can’t do it without him 

User
Posted 19 Sep 2018 at 19:18

I have always liked a social drink,  due to my 22 years in the Army. For the five weeks I was on radiotherapy it was important that I had no gas in my intestines and I kept myself well hydrated so collateral damage was reduced whilst I was having treatment.

 I did not touch alcohol for the whole five weeks and strangely I was so taken with the five hour days and the side-effects I didn’t miss alcohol at all 

Between being diagnosed and starting hormone therapy I  turned to alcohol for relief but as you say it does definitely makes things very much worse.

 

User
Posted 19 Sep 2018 at 19:24

Yeah I do understand that and I feel so selfish coz this isn’t my battle but I feel it’s a way of numbing out my emotions for now. Tomorrow is a new day so basically onwards and upwards as they say if my OH will even talk to me. Thanks for taking the time to reply. 

User
Posted 19 Sep 2018 at 20:03

My wife had to get to know my mood. In the first month or so I was angry with everyone. Then I got to the feeling sorry for myself and not wanting to talk about it,  as I knew if I did, I would burst into tears and that was simply not done for a bloke .

my wife had to read up on all the information she could find to under what I was going through.  At first she couldn’t work out why I was so disinterested sex as we have previously Had an active sex life.  Of course this was caused by the hormone therapy but I hadnt  felt like talking to her about it. Once I got my Radiotherapy appointments  we started to talk a lot about all the problems and once we talked I felt much better.

i now felt able to cry on her shoulder and accept help. I hope you can get to this point, it helped me no end

 

Edited by member 19 Sep 2018 at 20:04  | Reason: Not specified

User
Posted 19 Sep 2018 at 20:44

Hello Sharon ... I’ve had the devastating news today that my dad has Prostrate cancer (high grade) ... I have no figures apart from the P one at 7.6 ..! I am joining my dad for a bone scan tomorrow ... I’m heart broken ... and am hoping just chatting and hearing stories gives me and dad some positive hope ... it’s my 44th birthday today and I need my dad around for my 54th ..!!! He’s only 72 years young and a young 72 ... xxxxxx

User
Posted 19 Sep 2018 at 20:53

Louise it’s vital you stay on here and tell us what your Dads PSA was on discovery and then every bit of information you get subsequently.

There are many members on here that can help you come to terms with your dads prognosis and give you informed. Many people on here will have had the same diagnos as your Dad. 

Getting a bone scan the next day is very quick and a good thing. If by P you mean PSA many on here including myself have higher readings, mine was 38. Please don’t worry too much till you have Dads Gleason score, which you will only get after a biopsy, But he needs a DRE (Digital Rectal Examination) then a Biopsy To find out the true stage of his prostate cancer.

 I can fully understand how worried you are, having been there myself, but about your dad‘s condition, you will not know anything concrete at all about his prognosis until he gets his Gleason score and T Rating. 

 Until then you need to keep him calm and try to get through to him that just because he has raised PSA this not mean he is going to not be here for your birthday that you mention.

 Please stay strong keep us up-to-date on here about your dad’s diagnosis that way we can give you targeted advice to help you through this 

Edited by member 19 Sep 2018 at 21:06  | Reason: Not specified

User
Posted 19 Sep 2018 at 21:05

Thankyou for replying Pallance 😊 ...

 

Dad has had a Biopsy and an MRI ... ? Ive got to get more information when I join him tomorrow at the hospital ... he only knows the PSA was 7.6 ... I asked him what his Gleason score was (via text) ... and he replied ... is that an actress!? (he’s trying to keep his sense of humour!) ...

 

 

 

Edited by member 19 Sep 2018 at 21:07  | Reason: Not specified

User
Posted 19 Sep 2018 at 21:11

Then Dad will have  Gleason score, if his Biopsy was about a couple of weeks ago.

i.e. My Gleason score after biopsy was 4:5 T2c. This is. What you are looking for. The 4:5 is the grade of cancer and the T grade is where it is in the body

User
Posted 19 Sep 2018 at 21:41

This illness is tough. Once it’s spread outside the prostate there’s no cure (that doesn’t mean there’ll never be one). Howeve, you try to get travel insurance and their interpretation of terminal is that your life expectancy is shorter and if you have mets then that’s the club your in. I was diagnosed May 2017 with widespread through the bones. I’m still here 16 months later and still doing okay. PSA not registered for 13 months. However, I had private medical cover and went on to Abiraterone instead of chemo. This will, hopefully, become standard first line NHS treatment if approved by NICE in December, thus avoiding the impact of chemo as I have. All I can say really is all the very best and stay strong. Never give up hope. This time two years ago Abi was a trial drug and hopefully it will now become the go to treatment. It changes all the time.

User
Posted 19 Sep 2018 at 21:47

What Tony says is true on the basis that Oncologists will never use the term cured, rather in remission.

But,  although Tony’s comments are valid you do not even have a Gleason score for your dad yet,  so do not worry in advance until you have the information you need to see where you and your dad are going .

The  Gleason score will tell you what the grade of cancer is that your dad has and the T score will give you the full information on how advanced his cancer is so until you have this please do not beat yourself up over outcomes that you do not know even exist 

User
Posted 19 Sep 2018 at 22:15

Thanks for the info ... Im wondering if I’ll get any information tomorrow as the appointment is for a bone scan and not to talk to doctors! 

 

Im really hoping I can find something out 😕

thanks again 

 

 

 

User
Posted 19 Sep 2018 at 22:17

I will post tomorrow and update xx

User
Posted 19 Sep 2018 at 23:32
Louise, start your own thread tomorrow so that your information doesn't get mixed up with Sharon's - it will be easier for you to keep track of your dad's story as you get more details.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 19 Sep 2018 at 23:41

Ok I will thank you x

 
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