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Cheshire Chris's Treatment Thread

User
Posted 12 Sep 2018 at 20:54
Well, this is annoying!

Last weekend I had constipation so severe I finished up in hospital; now I've got awful diarrhoea that just won't go away. Perhaps not too surprising considering the amount of laxatives I was knocking back a few days ago.

Taken Imodium as a temporary measure, but has anyone any views on how best to get things back on an even keel? High fibre or low fibre? I've been going for the high fibre this last 2 days - wholemeal bread, high-fibre cereals, etc. Is that the wrong approach? Maybe I should be on bananas and boiled rice?

Chris

User
Posted 12 Sep 2018 at 23:03

Perhaps we all have our own ideas and taste on what's best, getting the level right for your own rate of digestion and sensitivities.  I'd recommend trying to cut back taking tablets and eating 'real' food, i.e. not processed food.  By that I mean baked potatoes, beans, greens, muesli, fruit and wholegrain bread.   I add bran to muesli according to how I feel, there's a spelt bran with a union jack on the box that's quite good tasting.   The best loosener I've found is adding more ground linseed to the muesli than looks right.   I never look for hardener but usually blame dehydration and going on a long drive which probably mixes dehydration with stagnation and vibration.  I don't think many have a diet like we do, it's my wifes fault.

User
Posted 12 Sep 2018 at 23:06
Thanks, Peter. Feeling a bit fed up with all this, to be honest with you! In the last couple of weeks I’ve really been through the wringer. Oh well, such is the road to recovery, so shouldn’t complain. Well, perhaps just a little bit...

Chris

User
Posted 12 Sep 2018 at 23:41
I suppose the ideal would be to work towards what your diet was prior to treatment if it produced good results, perhaps making some compromises towards a more healthy diet anyway. Could side effects of any tablets or medicine play a part I wonder?

I have had to take a laxative capsules each day for a number of years now, although my wife has no problem on the same diet and beverages. I find this helps with constipation but occasionally results in slight looseness. Maybe it's due to hereditary to some extent. I remember my mother used to soak senna pods in water and drink, so she had the same problem and this was years before she died. She nevertheless lived to 101!

I think it's better to be a little loose rather than constipated at any time but particularly after surgery when straining could do damage.

Barry
User
Posted 13 Sep 2018 at 17:33
Omelette or quiche tend to bung me up.....

Probably better to stick to a reasonable amount of roughage ( wholemeal bread and bran flakes in my world) rather than swinging right back the other way though.

Ref the exercise question, I've rediscovered swimming after a 15 year gap. Low impact and works the whole body. Been doing it twice a week for the last three weeks and worked my way up to 2k this morning. May have been a bit too much as very weary now!

Nick

User
Posted 13 Sep 2018 at 17:41

I’ve just started swimming again after 4 years. I could only manage 500mtrs each time, hope to get it up to 1km twice a week from October. I openly admit to being a prolific cyclist and am now up to 120 miles a week after finishing my RT. I also am walking 4 miles a week in two sessions.

all of this is done sedately and sensibily 

Diet wise I start my day on rolled oats porridge, whole grain sandwich and ham is a lunchtime favourite, snacks of lots of fruit, ending up with three veg, meat and varied spuds

User
Posted 13 Sep 2018 at 18:33
Thanks, all. Had a bit of a “down day” yesterday, but feeling much better today. Sometimes everything I’ve been through recently all becomes a little bit overwhelming! I guess we all have our bad days along this journey.

Saw the district nurse again today and had the dressing taken off my final surgical wound, so that’s good. I need to sit around the house for a while now because the newly-exposed wound needs to “harden up” and because it’s right at my waistline it rubs when I walk, so trying to keep movement to a minimum for a couple of days. Diarrhoea’s a lot better today, too, so a better day all around.

Chris

User
Posted 13 Sep 2018 at 20:39
It is okay to have a bad day or to feel overwhelmed - you have had so much to deal with and I think you have been amazing so far but many people experience something like PTSD once the treatment is over.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 14 Sep 2018 at 07:22

Originally Posted by: Online Community Member
Thanks, all. Had a bit of a “down day” yesterday, but feeling much better today. Sometimes everything I’ve been through recently all becomes a little bit overwhelming! I guess we all have our bad days along this journey.

Saw the district nurse again today and had the dressing taken off my final surgical wound, so that’s good. I need to sit around the house for a while now because the newly-exposed wound needs to “harden up” and because it’s right at my waistline it rubs when I walk, so trying to keep movement to a minimum for a couple of days. Diarrhoea’s a lot better today, too, so a better day all around.

Chris

Sounds like all the excuse I would need to binge watch "Breaking Bad" again! !!

User
Posted 16 Sep 2018 at 07:30
A quick update:

Now two weeks post-surgery, and things seem to be going pretty well. All 5 of my surgical wounds are healing nicely (I take a picture every couple of days on my phone, and the change is very noticeable going through the sequence). Daily walks are now up to 1.5 miles with no discomfort. I haven't needed any pain medication for the last several days and (thank goodness!) the diahorea has completely gone away. I see my consultant on 11th October (6 weeks post-op) at which time I'll find out the lab results from the removed kidney. Hoping there won't be any unpleasant surprises then!

The next "event" on my calendar is a full blood test at my GPs on Wednesday to make sure that the bicalutamide I'm taking for the PCa isn't causing any liver damage. Tomorrow I'll have been on it for a month. The only real side-effect I've noticed is a complete and utter lack of libido.

I'm planning to go back to work at the start of November (I've been on long-term sick-leave since my cancer diagnosis back in May), although I expect I'll need more time off when I start my RT in Feb. My employers are fine with that.

So, we're getting there!

Chris

User
Posted 16 Sep 2018 at 10:35

Glad to hear things are improving Chris.

Ian

Ido4

User
Posted 16 Sep 2018 at 11:49
Great update
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 16 Sep 2018 at 13:29

Great news Chris. I’m now 12 days post end of radiotherapy and the side effects are beginning to fade. Urination frequency is easing and diarrhoea has gon as well. So im back to where I was pre RT just about.

Ive now just got to be a glass half full person waiting for my post RT PSA test 8th November. As I was T2c i know the outcome should be as expected, but can’t help being apprehensive.

good luck with the rest of your treatment mate and keep yourself fit and healthy. I’m going back onto dieting from today as I have put a stone on since starting Hormone Therapy last April, weight gain is a known side-effect of hormone therapy but also the antidepressants I’m on called mirtazapine also can cause weight gain so I’ve got to start working at it as my waist has a spare tire and my chest is getting embarrassing 

alan

User
Posted 16 Sep 2018 at 19:09
Great news about the improvement in the RT symptoms, Alan! I understand exactly what you mean about waiting for the PSA results - I'm on tenterhooks waiting to find out what the bicalutamide has done to my PSA, which I too find out in November. I'm hopeful it will have come down significantly, because a month on HT has had a dramatic effect on me: my penis seems to have shrunk to about half its previous length, zero erections (or desire) and very tender testicles - if I put even slight pressure on them as I sit down or stand up it makes me wince. Does anyone know if that's a common side effect of bicalutamide?

Trying to get as fit as I can without overdoing it. It's a bit sad when, as a previously keen walker who did a 10-12 mike walk most weekends with my local Ramblers group and thinking nothing of it, I'm now sweating and exhausted after walking a mile and a half. Still, I'm sure that'll improve over time.

All the best,

Chris

User
Posted 16 Sep 2018 at 19:16
Chris, I had 14 days on Bicalutamide 50mg, The intention of this was to reduce the chance of a testosterone flare before I started on the Triptorelin Hormone Therapy. At the 14 day point I had my first injection of triptorelin then I continued on the Bicalutamide for another 14 days only.

So from 8th April till my review PSA test on 10th June my PSA went from 38 down to 6. That was over 8 weeks. I hope yours performs better!

User
Posted 16 Sep 2018 at 19:23
Cheers, Alan. As I say, my only issue thus far has been the tenderness in the testicles. I’ll be speaking to my oncologist on the phone in a little over a week to tell him the results of the blood test I’m having this Wednesday, so I’ll ask him about that then. I suppose it’s possible it’s a side-effect of the surgery, but the HT seems the more likely culprit. I’ll see what he thinks, anyway.

Chris

User
Posted 16 Sep 2018 at 19:50
It’s weird how we all get different reactions to side effects. I get no other symptoms from the hormone therapy other than hot flushes, dry ejaculations (only after a much longer foreplay) and a bit of fatigue.

The other thing I am worried about is the effect it’s going to have on my muscles as I am still an active sportsmen and like to compete in the over 65 age group in cycling. Physio advise I have had is to start doing resistance training to try and offset the muscle wasting and bone issues associated with hormone therapy.

User
Posted 18 Sep 2018 at 12:23

I emailed my surgeon about the pain in my (left only) testicle, and he said that it could be surgical bruising, but advised me to have it checked out by my GP. I saw my GP this morning, and he's diagnosed epididymitis - an infection of the duct that goes from the testicle to the prostate - and put me on a course of antibiotics to get rid of it. He's also sending me for an ultrasound scan as a precaution, but says he's certain that this is what it is.

I'm pleased it's been diagnosed, anyway, because it's flipping painful!

Chris

Edited by member 18 Sep 2018 at 12:24  | Reason: Not specified

User
Posted 21 Sep 2018 at 13:46
On Wednesday, at the request of my oncologist, I had a blood test to check that the bicalutimide isn’t causing any liver damage, and thankfully it’s come back as normal, meaning I’m OK to stay on it, so that’s good news.

Chris

User
Posted 22 Sep 2018 at 18:31
Having a rough day today mentally. I always knew intellectually that it was probably going to take me 6-8 weeks to get over my surgery, but today has been one of those (fortunately rare) days when I just think "Why me?" and everything I've gone through in the last few months and the fact I'm still so physically incapacitated three weeks after surgery all gets a bit overwhelming.

It started with something stupid and trivial - I was reversing my car out of my garage this morning which I must have done literally thousands of times before when for absolutely no reason I scraped the wing mirror on the garage door frame. I just sat there and burst into tears for no reason at all, and that was just the start of what's been a horrendous day when I can't help thinking about all the awful things that RT might do to me, and do I really want to go through with it?

Taken some Diazepam to calm me down which I've not needed for months. No idea why this all suddenly came over me.

Think I'll get an early night and hopefully the world will seem a bit brighter again tomorrow.

Chris

 
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