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User

Posted 31 Jan 2019 at 15:59

Hi Rafael,

I hope the other party is not or has never been involved in any criminal activity if your DNA is a “100% match” with his, as you’ll be hauled in for any crimes linked to him (and you)! That’s if he hasn’t died of prostate cancer by now. Were you separated from an identical twin at birth?

Try and keep a brave face on it all, and think of how many trips to Barbados you will be able to enjoy with your inevitable compo, which you richly deserve.

Best wishes as ever.

Cheers, John.

Edited by member 31 Jan 2019 at 16:02 | Reason: Not specified

User

Posted 31 Jan 2019 at 19:18

I'm so sorry to hear about this Rafael. Sometimes we hear about stuff like this but nobody believes it could happen to us. Sending you my best wishes and hope you get this sorted out without too much stress.

Maria

User

Posted 31 Jan 2019 at 21:42

Originally Posted by: Online Community Member

why are you wittering about criminals and twins? Rafael’s DNA was used to confirm that he is the patient with the wrong result :-/

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 01 Feb 2019 at 02:26

Originally Posted by: Online Community Member

“why are you wittering about criminals and twins? Rafael’s DNA was used to confirm that he is the patient with the wrong result :-/“

OK, Matron and Rafael, sorry, I misread the post. He’s a 100% match with his own DNA.

Cheers, John.

Edited by member 01 Feb 2019 at 02:28 | Reason: Not specified

User

Posted 01 Feb 2019 at 14:52

🤣🤣🤣

I read an interesting article yesterday about all these gene testing kits people are buying each other as Christmas gifts, etc. Apparently, a new phenomenon is emerging - an unexpectedly high number of people discovering they are no a match to their parents, only a half match to a sibling and / or that a stranger on the databank is an unknown close relative. It seems that for £63 people are getting rather more than they bargained for, so Rafael is probably relieved that he is a match to himself :-/

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 02 Feb 2019 at 14:36

John - you're hilarious!

Lyn - yes, good to know I'm a match with my own biopsy cores involved in the mixup. Since it appears that they have sorted out the mess, I am awaiting response from them to my question asking if they can give me the correct biopsy results and report using my cores. I will push them if I do not hear from them by next Wednesday.

Rafael

He who lives, loves and knows what it means to die - Jiddu Krishnamurti

User

Posted 02 Feb 2019 at 15:28

Interestingly one of our former forum member has recently found exactly that from a DNA test. Not a relation to the father, bit of a shock. Beware! Not relevant to your story Rafael. Good luck.

Devonmaid

User

Posted 03 Feb 2019 at 07:00

Maybe that old wives tale about toilet seats was true after all!

User

Posted 27 Feb 2019 at 10:43

The SIRI saga goes on and on. Normally the investigation takes 3 months but it is now entering its 5th month. I got an email this morning saying they hope to hand the final report to the CCG on 19 March. It would take the CCG 3/4 weeks to ratify the report before I can have sight of it. They say it is a very complex case... hmmm.

I have everything prepped on my side bar the report to embark on a battle.

It now seems I will have to wait till mid-April before I get the report.

Rafael

He who lives, loves and knows what it means to die - Jiddu Krishnamurti

User

Posted 16 Mar 2019 at 17:03

It is over 6 weeks since I requested a corrected copy of my histophathology report now that they appear to have sorted out the mix-up. I am being kept in the dark about it. On top of that, the SIRI saga is dragging on beyond its normal 60-day investigation period and the situation is getting frustrating.

I am concerned I may never receive a copy of my true biopsy results due to the mix-up. Does anyone here have any advice for me as to what I should do next to obtain the corrected biopsy results before I get their SIRI report on the mix-up situation? Any advice would be much appreciated and hopefully there is a lawyer or two amongst you on the PCUK community.group.

Regards

Rafael

He who lives, loves and knows what it means to die - Jiddu Krishnamurti

User

Posted 16 Mar 2019 at 17:24

You don’t need a lawyer. Write to the hospital and the NHS trust stating that you are making a Subject Access Request and set out exactly what information you want ... the corrected biopsy report, all records relating to the investigation of the error, and anything else that you think you may need. As long as you are specific about what you want and you are only requesting records relating to yourself, the hospital and Trust have a limited period of time to respond and cannot argue that the request was too broad or that it would take too long to gather the information. If they do not reply within time they have breached their statutory duty and you can complain to the Information Commissioner’s Office.

There is good advice on the ICO website about how to make a SAR https://ico.org.uk/your-data-matters/your-right-of-access/

The relevant hospital and trust should both provide information on their website about who to send a SAR to but the law says that even if you sent it to the wrong person or department, that does not affect their duty to give you the information within one month. If they cant provide it in one month, they must write explaining to you why they need more time.

Interestingly, the vast majority of cases being investigated by the ICO relate to NHS organisations.

Edited by member 16 Mar 2019 at 17:28 | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 17 Mar 2019 at 01:31

I got a copy of my records from the very same Royal Surrey County Hospital in short order, without any problem.

Not because I had anything to complain about, just that I am nosey and like to know what’s what. It took them over six weeks to deliver my post-op pathology report, and when I looked through the records it seems Tommy the Tumour was stuck in a freezer for over four weeks before they even got round to examining him. I was told the path lab there is hopelessly short-staffed, which no doubt contributed to the confusion in your case.

The records - a file about an inch thick - are mostly boring, with my daily temperature and BP readings, which medications I was given, what I had to eat, etc., etc.

Cheers, John.

Edited by member 17 Mar 2019 at 01:33 | Reason: Not specified

User

Posted 17 Mar 2019 at 11:07

But Rafael will specifically request all emails and other records relating to the investigation of his case rather than asking for his medical records.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 17 Mar 2019 at 13:29

Thank you Lyn for your helpful reply. I am in touch with the investigation team and I was assured by them that the investigation would be completed by the end of next week. The report will then be handed to the CCG to be ratified before they can give me a copy. However, they still failed to mention anything about my request for a copy of the corrected biopsy report despite me asking for it on two occasions. The team urged me to wait for the report and they would then invite me to discuss it with them. My dilemma is that since I shall be expecting the report within 4/5 weeks now, is it worth waiting before I take the SAR route which may take 4 weeks? I will follow your advice and look into the SAR situation and I will consider writing to them tomorrow via email.

I am finding the situation frustrating and in some ways stressful. It is clear that the investigation team will have covered almost all aspects of what need to be looked into with the exception of my request for the corrected biopsy report, if ever they have attended to that task.

Thank you Lyn for your advice and suggestion on the SAR route, which I was not aware of in the first place.

Regards

Rafael

He who lives, loves and knows what it means to die - Jiddu Krishnamurti

User

Posted 17 Mar 2019 at 13:56

This is an absolute disgrace. Rafael. I know that money can't make up for the fact that you've had life-changing surgery which was very likely completely unnecessary, but I sincerely hope that you get a VERY sizeable pay-out from this to allow you to enjoy many more holidays in Barbados!

All the best,

Chris

User

Posted 17 Mar 2019 at 14:42

I have made a SAR request for the corrected biopsy result just now via email to my hospital's SA team and received an automated response confirming that my email has been received.

All I can do now.is to sit back and wait. I will certainly let you know if I managed to get a copy. By the way Mane has just scored for Liverpool...

Regards

Rafael

He who lives, loves and knows what it means to die - Jiddu Krishnamurti

User

Posted 17 Mar 2019 at 15:35

Originally Posted by: Online Community Member

....By the way Mane has just scored for Liverpool...

Regards

Rafael

Pleased you have got your priorities right 😉

Cheers, John.

User

Posted 17 Mar 2019 at 15:43

And Millwall is doing well, hammering poor Brighton...

Regards

Rafael.

User

Posted 17 Mar 2019 at 16:58

I think it is absolutely right to put in the SAR as well as waiting for the official report and meeting. By the official report and meeting, they can control what information is provided to you and my guess is that their legal team will be involved in the wording. The SAR gives you the raw data which may be important when it comes to taking legal action.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 18 Mar 2019 at 19:13

I filled in the SAR form online this morning and attached copies of papers they requested me to email. I got back a response this afternoon from the SA team saying that all is in order and they are proceeding with my request. Boy, that was quick and it is thanks to Lyn and PCUK that the ball is rolling.

One of the attachments I forwarded to the SA team was a copy of my email dated 5 February last month to the consultant urologist asking for a copy of the corrected biopsy results. It was 7 weeks ago and has remained unresponded. I can't wait to see how things develop.

Regards

Rafael

He who lives, loves and knows what it means to die - Jiddu Krishnamurti

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