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Erecting the Erection - Medication

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User

Posted 24 Sep 2015 at 15:59

Chromedome, good luck with your recovery
Yes it is very early days for you.
Perhaps your body just needs to catch up with your mind!

Did you have any nerve sparing I wonder?

We can't control the winds - but we can adjust our sails

User

Posted 25 Sep 2015 at 03:49

Originally Posted by: Online Community Member

Johsan

Do I regret that sex is no longer what it was, even given our advanced age? Of course I do"

Exactly

I get everything you say, but this comment stood out.

Does that feeling remain as just "regret" or does it progress to something else, do you think?

Les, perhaps "regret" was not the right word. Possibly "sad" would have been better

The same sort of sadness you feel when you realise your children have changed and are growing up and don't need you so much. That doesn't go away but it does alter as their lives alter and they move on

It's like the loss a lot of women feel at the menopause.

You don't have that worry anymore about getting pregnant but it is no longer your choice but something you now have to live with.

If you are still loving towards each other and can experience sex in a different form then you really are very lucky.

Yes penetrative sex is lovely, but so is life and I'd rather have my other half - miserable as he sometimes is bless him - than be mourning him (and if he's dead there isn't any penetrative sex anyway is there!)

I'm not being flippant about all this, really I'm not. I do understand that for a man this is a major deal,and it may be for some women too, but at least give the wife the benefit of your doubts and believe her.

Coincidently, I had a conversation about sex with my daughter yesterday.

Four years ago she was treated for aggressive colon cancer.

That treatment in effect "cooked" her personal bits and makes it impossible for any kind of "normal" sex. She is only 42 now so this was when she was in her late 30s.

Have they given up on each other. Not likely. She told me there's more than one way to skin a cat and she would rather be alive with "cooked" bits, enjoying what she has and what she does with that life, than mournfully remembered.

My son in law loves her deeply and has never complained that HIS life is now different too.

If you love wholeheartedly you'll put up with anything, especially when it isn't the other person's fault.

Sorry, rambling again !!

Yes, I get this.

It has dawned on me that I may have two illneses. One physical in the form of PCa which I will beat albeit with side effects, and an underlying mental health issue as yet not formally diagnosed let alone treated. Thank you for your responses, these have made me realise that I need to do something about it before this deteriorates further. (I havent admitted to everything as you might understand)

Thank you

User

Posted 29 Sep 2015 at 20:56

Hi everyone
Many of you wont be interested , but as you know there are also many who are chasing erectile function post-treatment at the moment.
The professional pump and rings continue to serve well and definitely practice makes perfect. Once you have a system it becomes quite easy. The downside for me is reduction of normal sensitivity and the fact that you should only have 30 mins max, and that it hinders the natural progression of lovemaking.
So the other day I risked my first self-administration of Caverject. Nail-biting ? Yes. Painful ? Fairly. Although being advised in the clinic to use 15mg for now I decided to use 17.5mg based on those results that day. I achieved an 85% erection which lasted nearly 2 hrs. It wasn't as painful as before in a throbbing way. I think I should be fine to use the whole 20 mg next time. Not as good as the pump but normal sensitivity and could be administered " beforehand " which is a bonus. I'm not enjoying pill use at all and gaining nothing from it whatsoever. I find time nearly every day to get a quick erection with the pump to keep health down there.
I pray for natural recovery but am still very early at 15 weeks and doing well and not expecting anything more at all at present. I think tablets pumps and injections all have their own place and moments. Feel free to ask.
Best wishes to you all
Chris

Edited by member 29 Sep 2015 at 21:04 | Reason: Not specified

If life gives you lemons , then make lemonade

User

Posted 09 Oct 2015 at 10:03

Hi, everyone. I find it fascinating that we have so many different takes on similar problems, both in terms of how we have found different treatments but also the advice and support we get. I'm 20 months on from a radical prostatectomy with 50% nerve sparing. I've used the pump but even with two rings loose hardness quite quickly. The ED nurse told me that sildenafil would be of no benefit to me but I take daily 5 mg cialis and she has suggested trying four tabs at a time to boost response. Otherwise it may have some general benefit to blood supply but no effect on ED. She also said from her experience that few people found Muse worked and didn't like using the pellets, but she gave me the same formulation in a cream which provided a warm glow but nothing else! So eventually I tried Caverject which works well. Using it is challenging but the injecting is not really painful, although it can be uncomfortable afterwards. Aside from using this I have no natural response. The big issue now is getting Caverject. My pharmacy cannot get any at the moment from its suppliers. s mothers are also using it I wonder if they are experiencing the same issue and if not, where their supply comes from?

User

Posted 09 Oct 2015 at 10:56

Hi There
Im using Caverject and was initially given 4 , but my pharmacist also stated its damn hard to get hold of. It works for me too but not 100 % . Beggars cant be choosers I suppose . Pump still works well . You need very tight rings I find

If life gives you lemons , then make lemonade

User

Posted 09 Oct 2015 at 20:36

Originally Posted by: Online Community Member

Hi, everyone. I find it fascinating that we have so many different takes on similar problems, both in terms of how we have found different treatments but also the advice and support we get. I'm 20 months on from a radical prostatectomy with 50% nerve sparing. I've used the pump but even with two rings loose hardness quite quickly. The ED nurse told me that sildenafil would be of no benefit to me but I take daily 5 mg cialis and she has suggested trying four tabs at a time to boost response. Otherwise it may have some general benefit to blood supply but no effect on ED. She also said from her experience that few people found Muse worked and didn't like using the pellets, but she gave me the same formulation in a cream which provided a warm glow but nothing else! s mothers are also using it I wonder if they are experiencing the same issue and if not, where their supply comes from?

Hi wightman,

What many medical professionals do not get is that not every tablet, pill or capsule work,s for everyone in the same way. So, bluntly, your ED nurse's experience is not worth "diddley squat" to you if it closes HER mind to playing around and allowing you to experiment.

If you read through all the profiles here (you need to get out more, ;-)) you will see that many of us play about with "Meds" and treatment to see what works for us as individuals, and that may mean doing things differently.

If I were you I would consider putting any request for medication in writing stating that "failure to give me the medication at this time may well hinder my best hopes of recovery." Present a business case and you may get what you need?

atb

dave

Do all you can to help yourself, then make the best of your time. :-)

User

Posted 10 Oct 2015 at 01:07

It is a national supply issue to do with the company failing to get their licensing docs sorted last year. In many areas, the dual chamber Caverject has not been available for months now - there are other threads on this forum about alternatives such as the single chamber injections.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 10 Oct 2015 at 01:09

Chris, if it lasted two hours I would be very hesitant to increase the dosage yet - the last thing you need is a trip to A&E for blood-letting. Do you have a letter from the ED practitioner in case you do have to go to casualty?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 10 Oct 2015 at 07:36

I don't have the funky dual-chamber modern pen , I have the mix it up yourself system " Playing proper Dr's and Nurses ". I read your story with interest Lyn a few times . Based on 65% for hour and half at 15mg , then 80% at 17.5mg for just over hour and half , he said I should technically be safe to try 20 mg . I mean whats all the palaver about to only half do the job ;--))
But im totally getting your point . NO I don't have a letter , and NO I don't have the anti-dote . He said if he gave that out , then everyone would be whacking maximum dose in . Although sex is possible with pump its just very disappointing with a very weak base to the erection etc . I would be chuffed if 20mg was perfect . He said to be wary if erection lasts 3 hours , getting in the car at 4 hours , and must be treated within 6 . If I got there and they wouldn't treat me , i'd have it out pants down and scream up and down A&E till they fixed me .

If life gives you lemons , then make lemonade

User

Posted 10 Oct 2015 at 10:03

Aay, you should be more precise in your posts! You first said that 17.5mg produced an 85% for nearly two hours, now it is 80% for about an hour and a half which is rather different and makes sense of the specialist's advice.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 10 Oct 2015 at 12:43

Sorry Lyn to only provide " guess-timations " .. We tend to keep the stopwatch out of the bedroom to spare me any further embarrassment ;-))

If life gives you lemons , then make lemonade

User

Posted 10 Oct 2015 at 13:37

:-) ;-) ;-) ;-) ;-)

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 20 Oct 2015 at 16:40

Originally Posted by: Online Community Member

Chromedome, good luck with your recovery
Yes it is very early days for you.
Perhaps your body just needs to catch up with your mind!

Did you have any nerve sparing I wonder?

Hi Johsan,

It was only partially nerve-sparing. I'm being prescribed Cialis - we'll see how that goes. I'm also being referred to a specialist nurse at the ED clinic. Fingers, toes, eyes and everything else crossed!

User

Posted 20 Oct 2015 at 17:04

I am nearly 11 months post op still pretty much fully incontinent and doesn't seem to be getting any better. I am on 5 ml of cialis, do get feelings but not full erections tried the pump but rings either to tight or not tight enough, I still use the pump for exercise. Have tried sexy time in the shower as sometimes get a semi while standing up much more so than lying on my back but because of the incontinence not much fun. Hoping after the year is up I will be referred to the incontinence clinic and perhaps the ED clinic.

User

Posted 20 Oct 2015 at 18:01

Oh dear davi1 - why are you waiting until the year is up? Push for those referrals now!

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 23 Oct 2015 at 17:19

Oh Chris you seriously need to make this into a comedy along with Johnny and his limp wet chip! My husband now has a radioactive light sabre after his Brachytherpy and was turned into a "dalek" after taking Viagra. Reading your post certainly turned my frown upside down. Thank you.

Andrea xx

User

Posted 29 Oct 2015 at 08:06

Hi all
A question to all Caverject users and maybe Lyn.
So last night opportunity to use full 20mg after near success with 17.5mg. No stress nice night away. And it was a flop. Maybe a 50% erection that lasted under an hour and nowhere near useable grrr !
Questions
1 Now had 5 wks Bicalutamide HT. No loss of libido but cud this have affected it ?
2. Is dose rate logarithmic or linear? Example if a guy 50% hard at 15mg , might he need 30mg. Do they do bigger doses? Annoying as it works within minutes but just doesn't do the full job
3. Does the dose relate to a mans size ? Does 20mg work better on smaller penises as a rule ?
On this particular occasion he just got fatter and fatter with no length and zero rigidity.
I am a far more patient patient and we laughed it off , but was sad as was hoping to have a monthly prop where the experience was more intimate without pumps and lube and standing up.
I am slightly concerned that the majority of men post operation go on daily Cialis and that has not been offered me. I hope the little fella ain't missing out on repair !
Best wishes everyone
Chris

If life gives you lemons , then make lemonade

User

Posted 31 Oct 2015 at 01:00

Chris the bicalutamide will not affect the caverject and no, caverject dosage is not related to size of the penis. It sounds to me like you didn't quite inject into the right place - a couple of times, John hit the urethra and the dose came straight out of the end of his penis. With practice you will get better at injecting precisely.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 31 Oct 2015 at 20:08

A couple of people have sent me a PM since I posted above and I don't like replying one to one in case the wrong information is given and there is no-one else to see it and correct it (personally, I think the biggest mistake of the new forum was to introduce PMs)

Common mistakes are to not mix it well enough or to forget to knock out bubbles from the top of the needle before injecting, or to inject into the wrong part of the penis. To inject Caverject correctly, the needle should go in half way down the shaft at a good 90 degrees - if you angle it even slightly, you might miss the spongy tissue and it won't work properly. Avoid visible veins or arteries as these will carry away the solution. Give the penis a massage to help the solution move around the spongy tissue. It is best to alternate from right side to left side so that scar tissue doesn't build up. You would know if you accidentally injected into the urethra as the solution comes out of the end of your penis.

Sometimes, there are rogue injections in the box or even a whole batch can be faulty. John once had a box in which every single one failed but it is possible they had been left on the windowsill and overheated.

If caverject is going to work, it will work regardless of whether you are in the mood or not. If it seems to work and then deflates, don't make the mistake of thinking the opportunity has been missed. The first time John had it with the ED nurse, he got an erection immediately but we then had a row and it went down. We drove home, stopped at a cafe, had another row and eventually kissed and made up, at which point the erection returned - this was probably about 90 minutes or more after the injection had been given. A bit of self-belief seems to help it along :-)

Sadly, there are quite a lot of men for whom it doesn't work at all but if it worked when the ED nurse did it then it is most likely a technique issue

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 10 Nov 2015 at 16:11

WOW! How did that happen??

This morning I woke up with a rock solid, unbendable, fit for purpose erection!!!

I'm really chuffed, cant wait for it to happen again!

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