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Erecting the Erection - Medication

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User

Posted 21 Apr 2016 at 15:16

Not quite in the same league but a pulsating shower head on a power shower is very stimulating.

Thanks Chris

User

Posted 21 Apr 2016 at 15:22

I would be very cautious about the Viberect John - the research on its efficacy was done with a group of men from age 25 - 40 (mean age was 26.9), none of whom had ED. For men with partial erections, the stimulation may produce a stronger, firmer hard on but it is not going to produce an erection in a man unless his nerves have repaired. It might be more useful (and cheaper) to buy a TENS machine. That's not to say the viberect mightn't be fab for getting an orgasm but don't rely on it to cure ED.

My other concern would be to check with the urologist or oncologist first. The vibration should in theory be like a very, very vigorous hand-job only much more so but I would want to know whether there is any risk of activating / dispersing any left-over cancer cells. That may not be the case but conscious that men with PCa shouldn't have back massages etc except from a physio / masseur / chiro that is specially trained, I wonder whether this could carry the same risk?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 21 Apr 2016 at 15:23

Originally Posted by: Online Community Member

Not quite in the same league but a pulsating shower head on a power shower is very stimulating.

Thanks Chris

I'm off to try it now!

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 21 Apr 2016 at 17:52

Originally Posted by: Online Community Member

I would be very cautious about the Viberect John - the research on its efficacy was done with a group of men from age 25 - 40. So men with in theory, no problems getting an erection. How is that worth anything to men with PCa or after effects? They will tend to be older, and have problems, otherwise they would not be seeking assistance.

Tihs. No one has ever warned me of this. Not that I have had any back massages, or any massages for a while now, :-(

Is anything else risky? Is very very vigorous hand applied exercise risky in any way?

dave

Do all you can to help yourself, then make the best of your time. :-)

User

Posted 21 Apr 2016 at 18:38

Thanks all for the advice/ suggestions , all worth thinking about.

The good news is that I was able to see via online GP prescription service that my request has been accepted for the pump and rings. So I'll be off there tomorrow morning to collect it and take it the pharmacy. Hopefully if I ask nicely they may request the goodies to be expedited soonest , hopefully by Monday in time for my hols.

And to have the pump would be a great present for my birthday whilst I'm away !!

Regards all,

John

User

Posted 12 May 2016 at 06:41

Hello fellow sufferers -men and women
So after 11 months now of committed daily pumping and no actual natural function at all since RP , being the proactive kind of guy I am , I decided to self fund and take daily Cialis 5 mg .. I've been on it just over a week with my doctor"s permission. Side-effects seem to be indigestion and making my normal back ache worse.
And so the planets aligned and jiggy jiggy occurred this morning , and a definite healthy 50% erection erected. Not enough for penetration but big smiles haha.
Thing is , reading other's posts , IS this any better than pump alone ?? Yes lovely to be harder without all the paraphernalia, but only a lazy lob. Now I don't know what to do re Viridal injections to get a full useable erection ( if not painful ). ED nurse yesterday texted to me to NOT mix these drugs. He didn't even suggest injection dose reduction ( which was my plan of action ).
I think I'm gonna stick with 4 months Cialis now I've bought it , use the pump daily for exercise , and maybe risk an injection when we next feel fruity , which isn't that often these days tbh since this disease hit us. I'll make it a lunchtime so I can get to A&E if needs be.
Best wishes travellers
Chris

If life gives you lemons , then make lemonade

User

Posted 12 May 2016 at 09:26

Chris

50% is a step closer so you and El must be chuffed after only a few days of your new regime.

I just googled "taking daily Cialis and using Viridal injections, some interesting links with very mixed views on both should you/shouldn't you and the results for those that did.

the webchat links suggest that for those who had non nerve sparing surgery it should be OK but for those that had nerve sparing surgery it could be very risky re priapism occurrence.

Of course I would not advise reliance on google searches but would take the advice of your ED specialist nurse above everything else. In the meantime I would say persevere with the pump and Cialis alone for at least another week. I believe it takes a while for that daily dose to build up and stay ever present in your system.

xxx

User

Posted 12 May 2016 at 12:49

Reported as smap.

Dave

Do all you can to help yourself, then make the best of your time. :-)

User

Posted 12 May 2016 at 15:49

Chris,

Oh takes cialis 5mg every second day, but not on injection days. As long as he moves about afterwards (I've morning and not evening) there doesn't seem to be any ill effects. On the days we choose to have a furtle around but not use an injection, the cialis seems to help. He does get an erection, but as you say, it's probably not useable. We've not tried, and although I'd like to see if it is useable, I don't want to turn it into a disaster if it isn't.

From our point of view, it REALLY isn't all about the actual act, it can be just as enjoyable without penetration. Not better, not worse, just different.

L x

User

Posted 12 May 2016 at 16:57

Hi L
Please take the time to try Colwick Chris' Flaccid sex. We just couldn't get round to it but tried the other week. It would be inappropriate to say too much but with time and effort we both agreed it could be awesome. Google the 'scissors' position where you are perpendicular to each other. You need a big bed , lube if needed , two pillows and then just relax , breathe. I was amazed at what I could achieve by doing absolutely nothing !!!

If life gives you lemons , then make lemonade

User

Posted 12 May 2016 at 18:34

You forgot the most important bit keep the windows shut, unless you live in an isolated House.

Thanks Chris

User

Posted 12 Jun 2016 at 07:01

So everybody
I'm now days away from 1 year post op. Daily pump use but no natural recovery yet. As you will know I self funded Cialis 5 mg from an online source and have been taking it two days on then one day off.The symptoms are totally manageable -mostly a bit of heart burn. I am now , with any sexual stimulation , able to get a fully useable erection hurrah. By adding a cheap Ann Summers penis ring ( clear , blue or black depending on how racy I'm feeling ) I've been able to have great sex with full erection. Far far better than the injection , because zero pain involved. I was getting long long pain after injecting , even though very happy with the erection. I'm fairly confident my GP will now switch my scrip to Cialis , and he's so nice he would prob let me have occasional injections aswell.
My main problem , which many report , is that in a very short period of time I seem to have lost maybe 2" in length and some girth which has just added even more unhappiness to this f***ing cancer. Just can't suss it as I use the pump daily and if anything he was looking better than pre op with all the exercise , and then maybe just in 6 weeks this has happened. I'm confused whether daily pumping actually isn't enough to prevent atrophy , unless you're at it 24/7 , or whether my 8 months of Bicalutamide is causing it.
Anyway very chuffed mostly. Lovely holiday in August to look forward to then back on the rollercoaster by stopping HT and then trying to confirm whether I'm advanced instead of just locally advanced , by a further Choline C11 PET scan. So Christmas time could be a bit fraught with angst. In the meantime I'll fit as much bonking in as possible. Gonna get a standing order with interflora 😬😀

Edited by member 12 Jun 2016 at 07:04 | Reason: Not specified

If life gives you lemons , then make lemonade

User

Posted 12 Jun 2016 at 07:15

Could it be the hormone therapy that has caused the reduction in length and girth??🙂

User

Posted 12 Jun 2016 at 08:39

Hi Chris

Good to hear that you are back on the bones, wish I could say the same.

I take 5mg daily of Cialis with no side effects, and a 20mg when the notion takes me, I too have noticed a reduction with my wee fella who seems to have lost a bit of length, I too believe it is the HT implant that I received 3 months ago, have another implant this Wednesday, cannot wait for that, plus I think that not having any erections for 8 months has contributed towards the loss of length. Really getting me down with the lack of erection, tried to get a pump from the NHS but was told to wait and try Cialis first. May have to buy one myself as my next appointment with the ED nurse isn't until October.

Have a great time on holiday and try and put this s*** to the back of your mind, I know that it is not easy as I have just returned back from Tenerife and it is hard to forget our problems. The holiday was more relaxed this time as I couldn't drink much due to my wee urinary problem I have at present but still enjoyed the time away in the sunshine.

Onwards and upwards

Cheers

User

Posted 12 Jun 2016 at 08:41

Well Done Chris

http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif

Edited by member 12 Jun 2016 at 08:41 | Reason: Not specified

We can't control the winds - but we can adjust our sails

User

Posted 12 Jun 2016 at 16:25

Well done mate I know you have worked hard on the problem. I have not used the pump very often due to the stricture and not noticed to much shrinkage. Daily sildeafil keeps the penis slightly swollen most of the time.

Thanks Chris and Chudley

User

Posted 12 Jun 2016 at 20:34

If your GP won't prescribe Cialis 5mg daily on that evidence I would be mortified. I am so pleased that you are getting such great results now.

As for the loss of length or girth, try not to worry about that, especially if you are both still getting great pleasure! bicultamide might be contributing. Other men on here have said that once normal erections start to happen and post HT things tend to get back to pre op status over time and with continued use of the pump and exercise!

Your lemons are beginning to sound more like good grapes

my very best wishes

xxx

User

Posted 05 Jul 2016 at 13:23

Hi guys / gals
Update if anyone interested. ED nurse phone appt today. I complained no natural recovery at 13 months post op. Discussed my daily pump usage ( once per day for 10 mins ) , and that sadly in the last 2 months I have rapidly lost length and girth. He was surprised at that , but nonetheless suggested I use the pump LESS regularly as if it was going to work it would have by now.
Discussed Viridal injection and why I needed a full 40 mg to get an 80% erection. He couldn't answer that and stated each man was different. I explained I was slowly but surely avoiding injection and penetrative sex because of the terrible pain I experienced for hours after.
He told me there is a BRAND NEW injection ( he couldn't remember the name ) which we will try 1st August at appt if my Uro happy to prescribe / fund it. Apparently far less pain. Also said we could try Muse in the future to prevent needle marking and bruising I am experiencing.
He asked how I was getting on with my daily Cialis 5mg which I'm self funding. I told him initially it was brilliant but not quite enough for full sex. He expressed that I should definitely continue this and less use of the pump and as much nookie as possible. This was strange coming from an area that refuses to fund daily Cialis on the grounds of insufficient evidence that it is beneficial. All in all a good review , and at least I got to vent some angst , which as you fellow sufferers will know can really bl***dy get you down after a while.
Onwards and upwards. Never give up !
Chris

If life gives you lemons , then make lemonade

User

Posted 05 Jul 2016 at 15:21

I don't really need to say this to you but never give up. I am now 26 months post op, I am now getting that strange feeling in the penis and testicles as if an erection is about to happen, sadly I don't get the erection but at least something is happening. Still getting semi tumescence even without and medication. My pump use has been hit and miss because of my stricture and I have not used the pump for weeks with out any noticeable shrinkage.

Thanks Chris

User

Posted 05 Jul 2016 at 15:25

I'm getting those feelings too .......
Always a disappointment when I reach down though. I'm going to continue the Cialis maybe 4 times per week.

If life gives you lemons , then make lemonade

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