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HIFU, my experience

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User
Posted 15 May 2019 at 08:04

Hi Barry,

thank you for replying.  It has given me good insight.  Once I figure out how to put more information about my prognosis on my profile from my hand held device, I will.  

I have been going to Cromwell hospital and seeing a surgeon by the name of Dr Hashim Ahmed.  He’s been courteous, professional and very detailed.  I am getting a second opinion  at the London Hospital. 

Because of what I feel is a favourable review of the treatment for this (HIFU),  I wanted to get as much post op information as I can get.  If I can find someone who has a similar situation,  first time, small tumour who had HIFU,  it may put me at ease.

Thank you 

Frank 

User
Posted 15 May 2019 at 13:29

Frank,

We are not supposed to name our consultants on this forum but before the name you gave is removed, I can confirm that consultant is one of the leading exponents of HIFU as is Professor M E who also is in Private Practice as well as being at UCLH. You may find it of interest to scroll down to videos in this and read the blog. http://www.ahamm.co.uk/prostate/blogdetails.htm

 

Edited by member 15 May 2019 at 13:30  | Reason: Not specified

Barry
User
Posted 15 May 2019 at 13:35

Im sorry, I wont do that again and will read the bi-laws here.   Again,  as I am a big believer in sites like this, I've meant no disrespect to the group

Ive deleted the original post and have inserted the post without the surgeons name>

(thank you Barry)

 

Hi Barry,

 

thank you for replying.  It has given me good insight.  Once I figure out how to put more information about my prognosis on my profile from my hand held device, I will.  

 

I have been going to Cromwell hospital and my doctor has been courteous, professional and very detailed.  I am getting a second opinion  at the London Bridge Hospital. 

 

Because of what I feel is a favourable review of the treatment for this (HIFU),  I wanted to get as much post op information as I can get.  If I can find someone who has a similar situation,  first time, small tumour who had HIFU,  it may put me at ease.

 

Thank you 

 

Frank 

Edited by member 15 May 2019 at 13:38  | Reason: Not specified

User
Posted 11 Jun 2019 at 03:09

Latest psa  (June 2019) still 0.07

User
Posted 11 Jun 2019 at 08:07

Great result.

Best wishes,

Ido4

User
Posted 11 Jun 2019 at 11:24
For a suitable patient this can be a great treatment and always good to learn men are doing well regardless of what treatment they have.
Barry
User
Posted 02 Jul 2019 at 06:36

Originally Posted by: Online Community Member
Unfortunately, a small new tumour is said to be too close to my rectum fortreating with HIFU.

A while back I know, but another thread you just commented on made me search back for this.

Would having a biodegradeable spacer (such as SpaceOAR) inserted help by spacing the prostate away from the rectum by 10mm or so? This presumes HIFU would work through it - being mainly water, I can't see why it wouldn't, but when having HDR brachytherapy where installing the dosing tubes is guided by ultrasound, they have to insert the tubes under ultrasound guidance before injecting SpaceOAR, so maybe there are some limitations with using SpaceOAR with ultrasound?

User
Posted 02 Jul 2019 at 10:56

Thanks for the thought about Space Oar Andy which I did mention on another thread and will ask when I have a telephone appointment with UCLH tomorrow. It is possible that because HIFU produces heat this might be transferred to the Space Oar and thence inwards so might act as a conductor but the question needs answering, if not for me for others. Actually, there is another reason why I am not suitable for HIFU as there is calcification to get through.

It is interesting that when I had my template biopsy in December last my PSA dropped slightly and I wonder whether this was because the needles removed part of what was a small tumour. (My PSA has since moved up again slightly)

I am inclined to wait the outcome of a further PSA test in 3 months time and if there is significant increase to investigate the possibility of Focal Laser Ablation (FLA) but this most probably would mean going abroad, most likely to the USA. As I understand it, the laser is directed through rods right up to the target. The over-spill (if I can put it that way), is less than with HIFU so it might just be possible that I would be suitable. The husband of another member (Claret username) had FLA in the USA and is doing well but he had it as a primary treatment.

Naturally, I will post any further thoughts/developments.

PS. For anybody who is interested this is some info from another much larger forum where I am a member.  It is largely used by the men of the USA but does have members from all over the world.  Without signing up as a member (which is free) you may not get full access :- https://www.inspire.com/groups/us-too-prostate-cancer/discussion/hifu-vs-fla/

Edited by member 02 Jul 2019 at 17:01  | Reason: Not specified

Barry
User
Posted 05 Jul 2019 at 19:18
I did take the opportunity to ask the team member at my telephone appointment with UCLH on the 3rd July about the possibility of Space Oar being used as a barrier between Prostate and other organs for patients having HIFU. I was told that it had been tried experimentally with a very few patients but it had gone straight through the Space Oar. So it would seem not to be a success with this form of treatment.
Barry
 
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