I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

<123>

Hello to all, my problems are now beginning.

User
Posted 21 May 2015 at 22:42

I was given an appointment to receive my results about one month post biopsy. Ring for an appointment if not for your results.

Paul

Stay Calm And Carry On.
User
Posted 22 May 2015 at 10:19

I would go along the same route as 6F2 ( Paul ) suggested........ring the hospital to chase up your appointment if it's not already been arranged.

It's highly unlikely they will give you any results ( good or bad )  over the telephone...

Best Wishes

Luther

User
Posted 22 May 2015 at 12:16

Originally Posted by: Online Community Member

Haven't rang about results, thought it might upset the hospital staff. The waiting is driving me nuts. That will be 2 weeks tomorrow I had the biopsy. Is no news good news???

Unfortunately no, not in these cases.  Hospitals have a routine for giving out results and a process which they follow, I have never heard of them changing.  My result was 10 days after biopsy, I had to go to the hospital and I had to be accompanied.

It is understandable that you are anxious, we all were at that stage of our involvement with PCa.  You will not upset anyone by chasing them up, they are used to that.  Nothing to lose by giving them a call.  And remember whatever the result, there is so much that can be done for you so don't panic.  

Have a good weekend 

atb

dave 

Do all you can to help yourself, then make the best of your time. :-)
User
Posted 22 May 2015 at 13:55

My last biopsy results took 3 days as they were so aggressive , and I was in for an apt in 5 days . My original appt was for 14 days -- I think that is standard . We have 2 specialist prostate nurses at Southampton and they are just amazing and will chase things up -- but they never give details over the phone !!

You honestly aren't hassling people by chasing it up . They are lovely people , and over-worked , but its their job to help -- especially in this area where fear and worry are prevalent

Chris

If life gives you lemons , then make lemonade

User
Posted 22 May 2015 at 15:02

I was phoned by the specialist nurse when I was at work. She confirmed I had PCa but I was kind of expecting it anyway.

Hope you get your results soon

Bri

User
Posted 22 May 2015 at 17:51

Thanks for replying, I've been thinking all day about the outcome.
I met up today with a chap who told me he has just been given the all clear after 5 years, only returning for check ups.
He suggested ringing the Consultants Secretary after the weekend to enquire about when I can expect an appointment. So I'll do that.
You are all amazing people on this forum, with good advise for us newcomers.
I wish you all a good weekend.

User
Posted 22 May 2015 at 19:25
Hi Colin

I am a bit late in saying this but welcome to the forum!

When I was new to the forum a member posted a comment along the lines that "with PCa or potential PCa (or any cancer for that matter) sometimes we have to take control of our own destiny". I have never forgotten that advice and there have been some occasions when I have had to apply that principle.

I wish you well in getting your results after the bank holiday. More importantly I hope the results are what you want to hear.

Sending best wishes.

User
Posted 22 May 2015 at 19:45

Thanks rivertweed, I will keep that advise in mind.

User
Posted 26 May 2015 at 14:57

Just to say that I rank the nurse up today to see if my results were ready, she said that a appointment has been made for Wednesday next week to see the consultant, and I will be contacted later in the week to arrange.
I asked if she could say anything to me about the results, she told me that they wouldn't do that as they don't know what your reaction would be either way.
Soooooo still waiting
Colin

User
Posted 26 May 2015 at 17:42

Stay patient, do lots to take your mind off the waiting. Not easy, but too much thinking time won't help.


Paul

Stay Calm And Carry On.
User
Posted 30 May 2015 at 07:54

Just to say it's now Saturday still no notification from the hospital about an appointment for Wednesday. I went to see my local Dr yesterday and asked if he had any results, but nothing in. He checked further and found a report on the biopsy, he told that I do have prostate cancer with a Gleason of 3+3 (6).
Colin

User
Posted 30 May 2015 at 17:03

IT is frustrating when the hospital doesn't follow through. Ring them on Monday to make sure an appointment has actually been made and be FIRM that you were told to come on Wednesday for results

Good luck on Wednesday. Don't forget the notebook and pen and have somebody with you, two pairs of ears being better than one. If the wife is a worrier then perhaps a friend could go with you?

So........ the GP has given you the report on the biopsy and he has said that you do have cancer. 6+6 isn't that bad. There have been others on here up in the hundreds and even thousands, who still lead normal lives albeit under treatment. My husband's was 3+4 at the start.

There are many treatment routes to follow these days so please don't despair. Try and reassure your wife. This is the hardest part, the waiting around for somebody - anybody - to tell you what's what.

Once you know where you stand it will get easier.

Keep posting and asking questions. There is much experience on here of the various treatments on offer and somebody is bound to know the answer.

All the best to you and Mrs damperman
Sandra

We can't control the winds - but we can adjust our sails
User
Posted 30 May 2015 at 17:22

Thanks Sandra, it is hard. This has been the worst 5 months of our lives, and I'm sure things will improve. When the full results are known I will post here.
Thanks again for your support, Colin

User
Posted 30 May 2015 at 17:51

Colin

Yes, it's bad news, but you will have a range of treatments available to you almost certainly putting you in the cure camp.

In preparattion for your appointment, read the support packs on the site, arm yourself with info, write down your questions and take someone with you to make notes and maybe ask the questions you may not have thougt of.

If you have any questions beforehand, you will get a response on here.

Good luck in whatever treatment path you opt for.

Paul

Stay Calm And Carry On.
User
Posted 30 May 2015 at 18:22

Paul

I'm not sure I know what the questions are to ask, I trawl this site and others for answers. I think it's best to wait for the official diagnosis and go from there.

Colin

User
Posted 30 May 2015 at 18:45

Colin

You will be given other scores with numbers relating to any spread from the prostate. Hopefully, these will confirm a cure prognosis, but whatever they will give you a good understanding of where you stand treatment and cure wise.

The N score measures any spread to lymph nodes and the M score any further spread. I hope this doesn't alarm you but gives you an idea what to expect. The T score shows the spread in the prostate.

There is more info here.

http://prostatecanceruk.org/prostate-information/getting-diagnosed/staging

Stay Calm And Carry On.
User
Posted 30 May 2015 at 19:02

Paul

Thanks for that, I'll check the link.
I see you were 1 core from 12 that showed cancer. I'm sure my Dr said I was 3 from 5 one side and 5 from 6!the other. Not really sure what that outcome is.

User
Posted 30 May 2015 at 22:11

Colin

I also had a template biopsy which showed 7/26 cores as cancerous. However, my Gleason score was upgraded from 6 to 3+4 following this.

I would also read about the treatment options, radical prostatectomy, braccytherapy and radio therapy, plus active surveillance, which are most likely the choices you will be given. These are on the same section of the website as the link above.

Paul

 

Link here

Edited by member 30 May 2015 at 22:14  | Reason: Not specified

Stay Calm And Carry On.
User
Posted 01 Jun 2015 at 14:05
Hello Colin,

The wait for official news is appalling isn't it? Timescales are an awful thing- you don't know what to expect. So here's our timescale so far.

My husband also found his PCa accidentally at a well man check. he had his blood test on 26th September, the gp called on 29th september. He went for his urgency referral on 7th October, at which they performed the biopsy. Then an agonising wait to 22nd October where cancer was confirmed. He had a Gleason 9, 3% in the left and 20% in the right.

We had to wait for bone scan and Mri scan - bone scan 4th November, Mri 6th November.

Initial consultant appointment was 22nd November. He had a prostatectomy on December 1st.

From what I have read on this forum, I think this is pretty quick, but the surgeon seemed keen to get a move on because of the very high gleason score. It seems he was correct, as it had reached the margins. At a gleason 6, you may find there is less urgency.

Good luck for Wednesday.

Louise

User
Posted 01 Jun 2015 at 15:17

Hello Louise

Hope both you and your hubby's getting on ok.

The hospital rang today to say an appointment has now been made for Thursday at 09:29am so I'm pleased about that. My first PSA check was carried out mid January, so you can imagine the wait is really hard, not just for me but also my wife.

I'll have the full info to post on Thursday.

Colin

 
Forum Jump  
<123>
©2025 Prostate Cancer UK