ARE YOU GETTING DEXA SCANS?

Important point George. Good to mention it.

My OH had the same bone checks every 2 years and been put on the Calcichew etc like yourself as he was also deemed 'borderline'.

Hope others are getting this checked out too. After all this Pca the last thing any of us needs are other issues to contend with!

ATB

Alison

Never had one George but with 6+ years of Zometa I reckon my bones are like concrete http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-cool.gif

My dad (86) is on HT. He has suffered vertigo before, but had another bout yesterday. Could this be related to HT?

Paul

Hi George,

I raised this with one of the oncologists last year after Neil had a spontaneous arm fracture. I think she thought I was mad and that I meant a different sort of scan but I knew darn well what I wanted and why. Ended up chasing up having it done privately but of course events overtook us,

Regards, Fiona.

Thanks for the heads up George , i see my Onco in 4 weeks so i will ask about this now i am on Enzalutamide and HT jabs http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif

George, Thanks for this “ enduring the pain and misery of broken bones, bent spine, and all that comes with osteoporosis.” :) :)

Most likely too late for me so a note of caution and it might be said this is an excuse for not taking action. However when various medics say pretty much the same “you’re doing extremely well” but will never say cure there is mind set of what the hell PCa will get me before other ailments start getting problematic. So I ignored the symptoms.

With all my refurb work it was not unexpected my hands would start playing up. So for 5 years I ignored the discomfort from middle joints onwards which actually stared to clear up but then it moved to lower finger joints. So whilst at doc’s I passed the comment re my hands. After examination came the diagnosis osteoporosis. I thought not so bad but the downward spiral is at present going downhill at a pace. If I had taken action earlier would I be at the stage I’m at now is an unknown but I think it’s fair to say I wouldn’t be any worse if I had. I would add to George’s comment as I know he like I felt the cold due to RT/HT. So is cold an early warning sign and or a reason to be more aware and take action?

As regards hospital scans. The gory bit - not so long back I nearly took the top of my finger off with a 5 foot crowbar (it actually didn’t hurt as much as hitting it with an hammer). Because I’m over 65 there is a policy of passing your notes on to CNS to see if it’s deemed a bone scan is required. However after mentioning HT the consultant passed the comment your injury is down to brute force not HT (fair comment). I’m guessing the CNS made the same opinion but then I doubt if she was made aware of my past HT so no scan.

I go right back to the start. Do not make the mistake I did with the ‘mind set of what the hell PCa will get me before other ailments start getting problematic. So I ignored the symptoms.” Get checked out.

Best of luck to all

Ray

Hi George

Cold: on a scale of 1 to 10 I've recovered to level 2. Pre RT/HT I was one of the last to put a jumper on now it's hardly ever off and I'm one of the first to put a coat on. I'm very careful of getting what I call scary cold as it can take hours to get warm again.

Here's hoping the veteran club membership continues to grow.

Good luck to all.

Ray

Ray

I requested a dexa scan last Thursday, letter arrived today and had a choice of appointments from tomorrow onwards.
That's what I call service!

Hi,

I have taken calcium tablets since I was put on hormone treatment.  I read in the PCUK Hormone Therapy booklet that it was important to do this and my GP agreed.

 I think it's something that should be standard practice if you're on hormones.

Steve