Journey begins with Cabazataxel

User

Posted 21 Jun 2015 at 21:19

Sue, glad to hear you are we to get away for a holiday. Have a good time, it is so good to get away from it all for a short time. Tim at the moment is following the same pattern of the cycles with at the moment feeling a bit woozy and a slight loss of taste. Keeping a daily record of how he feels really seems to show how predictable he will feel during each cycle. He seems to be enjoying getting up early in the morning now, I hope it doesn't become a habit!! I think if it was winter he would not enjoy the early mornings so much!!
Enjoy your holiday. Take care.
Linda

User

Posted 30 Jun 2015 at 12:34

Hello all. Well hubby had the turp procedure on Friday and was home on Sunday. He is doing really well and says the pain was so worth the gain, weeing properly again and hardly any leaks. Next chemo is on Monday providing the alp levels are ok after blood test on Thursday. The urologist said he could not believe that he could wee at all it was so constricted. Onwards and upwards. Hope you are all doing ok xxx

User

Posted 30 Jun 2015 at 16:35

Good news joy great to hear.
Xx
Mo

User

Posted 02 Jul 2015 at 06:29

Hi we are in Greece but from day one aches/pains in legs are making this holiday a struggle for my oh also I think early on in this holiday he picked up a water infection as his balance slightly strange behaviour and darker urine? With all the water we are drinking that seems to have cleared as at one point I was on the verge of coming home,things have improved but every night awake around 1am legs are terrible with aches pain killers don't seem to work he needs something stronger so will
Have to ask next Friday at appointment ,
Sue.

User

Posted 06 Jul 2015 at 19:10

Sue I hope you managed to enjoy the rest of your holiday, I hadn't noticed you had posted that all was not so well until today. Tim had his 7th cycle today, his PSA has risen very slightly to 3.7 but our onco doesn't seem too concerned. His main problem has been blood in his wee more frequently during the last cycle, hopefully this is more to do with the chemo affecting his bloods rather than increased cancer growth. Next chemo is in 4 weeks as we have a family wedding on 1st August so Tim wants to feel well for that, if he had the chemo in 3 weeks that would be the exact time he feels woozy and loses his taste.
Joy, hope the chemo went ahead OK today.
Take care everyone
Linda

User

Posted 07 Jul 2015 at 13:30

Hello all
Yes Linda the chemo went ahead yesterday thankfully has he was getting aches and pains in neck shoulder and strangely behind his eye. At 7.00pm last night he said the aches and pains had gone but, when we went to bed his leg began to ache so badly he went downstairs so as not to keep me awake. I was so cross when I woke at 6.30 and he tells me he was up until 4.30 and had took quite a cocktail of pills tramadol, cocodamol and ibuprofen.
Sue I am thinking the same we need to get something stronger for these emergencies. The turp procedure has really helped tremendously with the waterworks though so much he said it is life changing.
Love to you all xxx

User

Posted 04 Aug 2015 at 09:51

Chemo number 8 done yesterday. Blood tests show Tim's PSA up to 5 so is this the end of Cabazitaxel and what next?! Having a CT scan Friday and seeing onco next Thursday for result before she goes on holiday. It is such a pity the PSA is slowly rising as he has not felt too bad on this chemo and as we went 4weeks before this one so we could go to a wedding he has had 2 weeks of feeling really good.

User

Posted 05 Aug 2015 at 09:54

Hi we missed one to go on hols psa went up but as I mentioned before it's the bloods what are playing up .we have had one more chemo and psa was down which is great but the bloods are dropping which is having a huge effect on my oh he's struggling to put one leg in front of the other yes he does have the odd times during the day when he's not to bad but I'm wondering if this is what it's going to be like until the treatment stops he's due 2units tommorow and chemo no6 next week . He's blood yesterday was 80 I believe which is very low but not as low as before so I'm wondering if gradually it can be built up and his strength shall return.
Fingers crossed. Sue

User

Posted 12 Aug 2015 at 20:49

Hi just had chemo 6 and we was told 6-8 was the norm
Since chemo 4 bloods have been low as I mentioned before but since this has been happenng and we are experiencing low appetite which has been a new side effect even though my oh appetite is poor he has been eating regular but he is losing weight all his has been happening since the low bloods , the chemo is still working thou just wondering if any similar experience out there.
Sue.

User

Posted 15 Aug 2015 at 17:54

Results of scan were mixed. Most areas were still showing a decrease in the cancer, however one lymph node and an area around one kidney had increased. Our onco said this showed that cabazitaxel was still working however some of the mutated cells weren't responding. In fact when Tim had a biopsy from around the kidney before starting cabazitaxel she had said it was mainly the common prostate cancer with a few cells of another type, at the time we hadn't taken in all in and these other cells were small cell. Her plan is to go ahead with number 9 and as long as things are still stable number 10, then to have a rest and maybe have chemo for small cell. This is making things seem even more scary but while he still feels so well we have to make the best of it and hopefully we will still be able to get away for a while at the end of September.
Linda

User

Posted 17 Aug 2015 at 08:58

Hi what a weekend!
My oh was admitted to hospital Friday possible infection but all results are inconclusive?
Fast heart rate Anemia breathing quicker than usual very confused all the signs of infection?
He has been on antibiotics since being admitted and may come home today but he is very pale as his bloods have been so low since chemo 4 wondering what will happen now very worrying time 😂
Sue.

User

Posted 17 Aug 2015 at 09:43

Hello all
We are off for chemo no 7 today. Oh psa was up last time, but they have a new machine so onc says he needs a trend from this machine now. His bloods are also on the decline so he has to have 2 units of blood. He is more tired now and very pale. We had asked if he could skip a treatment so we could go to Portugal but rethinking now because the week before chemo the aches and pain return. Seems that this chemo helps with pain but not much else. Will find out results today from last blood and when the transfusion is going to be done. They say he will feel a lot better after. my thoughts are with you all love and hugs to you all xxxx

User

Posted 17 Aug 2015 at 10:56

Thinking of you all.
Seems you're all going through a rough time of it.
Hope there is some improvement and your other halves feel better soon.

We can't control the winds - but we can adjust our sails

User

Posted 17 Aug 2015 at 15:54

Back from hospital with my oh he looks a lot better it seems the bloods are the problem whilst trying to get through this chemo I'm wondering if we will move on to abieratrone as we are having problems. Like you mchjoy we skipped the treatment and went to greece with low bloods and it proved to be the wrong thing to do . They have put sepsis on his notes or progression but not sure which one has caused this very worring weekend but he's home walking about and eating😃
So hope it improves.
Sue.

User

Posted 17 Aug 2015 at 16:14

Sue glad your oh is home and looking better, I hope he continues to improve.
Joy I hope chemo no 7 went ahead OK. Hope he gets his transfusion and this makes him feel better.
It is strange how the chemo affects people in different ways. Tim has really had no problems with this chemo unlike when he was on docetaxel which made him feel iller and iller every cycle.
Thinking of you all
Linda

User

Posted 17 Aug 2015 at 18:30

Hi all the chemo went ahead today and the transfusion is on Wednesday hoping this works as he has looked so pale lately and much more tired, so fingers and toes crossed. So glad your oh is home sue and feeling better. I will post when the transfusion happens and let you all know how it goes. Stay strong and well xx

User

Posted 22 Aug 2015 at 16:16

Hi joy it seems we are on a similar journey the bloods seem to be getting in the way .
Our oncology appointment is next Friday but will have to keep an eye on his colour etc,
When they discharged my husband they said could be progression or septis ? I don't know where I am if progression would he have picked up? Which I think he has by looking at him but he says he feels lousy ! He as no energy ? I have family but you don't want to worry them with this roller coaster but you just don't know what to expect when things are low!

User

Posted 15 Sep 2015 at 20:23

Well Tim's journey with cabazitaxel is over he didn't have no 10 as his PSA has doubled in last 2 months. His onco has decided he needs a couple of months or so with no chemo and then maybe she will give him chemo for small cell. When he had a biopsy on the growth in his peritonium a few months back it showed there were a few cells that had mutated to small cell. He goes for another blood test and CT scan in a months time and we will go from there. He is being so positive, I wish I could be the same! We have just managed to have 10 days holiday in Majorca which we both thoroughly enjoyed and Tim felt so well for the whole of the holiday. He really has been so lucky that cabazitaxel has made him feel so much better than he has for a year or so, what a pity that it had to come to an end.
Will update when new treatments start.
Linda

User

Posted 15 Sep 2015 at 23:12

Hi Lindy,
so sorry that they have confirmed small cell now although I guess it explains why Tim never really had any impact from the different hormone treatments. On the up side, he copes well with chemo and perhaps the next lot will give him another boost and you will get in more holidays and sunshine x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 18 Sep 2015 at 20:44

hi Lindy,
I've just seen this, I'm so sorry that the chemo had to stop but as Lyn says, your Oh seems to do well on chemo so the type they use for small cell may be beneficial to his well being too. Is there any chance you can get away to the sun again before the next lot starts? It sounds like it would do you both good and why not?

Lots of love
Allison xxxx

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Journey begins with Cabazataxel

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