Journey begins with Cabazataxel

Hi linda hope all goes well for you,
And a holiday on the cards is great can I just ask you about travel insurance we do have some in
Place but just like to compare notes as we love our holidays and hoping to go Greece in September
But if we could get a sneaky one in whilst on treatment to Spain would be nice.
We have our hospital appointment later today so far things quite good on this chemo getting ready for 4tth cycle next week.
Kind regards sue.

Hi linda
At the moment we have a annual policy with nationwide it cost £85 it includes
Prostrate cancer and a few other bits added on ie blood pressure etc.
We pay £10 a month into a flexi account to have this . I was very surprised at the low cost and
Rang them back several times to check!
Yes our appointment was routine psa not come down yet as only had two treatments but
Apparently that's quite normal my oh has had a numbness around his lip she said that's common to
Not due to treatment but bone pressure has anyone else had this?
Apart from that all ok we was told perhaps do 8 cycles now she's talking 10 !
Sue.

hi everyone cycle three yesterday and no pains or anything this time my oh usually has two painfull days then everything ok but this time nothing he sat there last night waiting for something to happen! Fingers crossed x hope everything is going well for you.
Sue.

Hi just had fourth round of chemo at the moment bloods seem low so going for
blood test Monday to see if it has dropped again,possible blood transfusion but not sure yet
Day four of treatment but very tied and ache in arm which has put my oh in a bad mood as things
Are generally good still never mind !
Take care .
Also can't think they were too low as he had his treatment ?

It certainly is a roller coaster ride in every sense imaginable!

Glad your OH is through 4 treatments now, they would not have proceeded if his blood work was out of limits.

The arm aches are a common SE, well aches anywhere are to be honest.

If his bloods are a bit low in areas they nay give him a transfusion of red cells or plasma these really do give a boost to well bring for a while and can be repeated fairly regularly. Is your OH having Zometa or Denusomab to try and provide bone strength?

Make sure you take good care of yourself as well.

All the best

Xx

Mo

The orthopaedic guy says no pins needed yet but will see us again in two months.

The urologist however was a little different. Three attempts at the flow test, scan showed 450 ml in the bladder but the best output was 25 ml. Going in on the 26 for a Turp procedure. Downside the chemo has to be stopped for a while because of increased risk of infection, and the chemo definitely helps with the pain. Last psa was a slight inc from 169 to 173 so goodness knows what it will do without the chemo. Praying and hoping the Turp goes well.

Hope everyone else is doing ok. Take care all joy

Thank you for that hubby is worried but when he asked if he would be incontinent after he was told very unlikely but if they didn't do it he would because the bladder would overflow. Did you need pads for long after.

when Mick had his TURP he was retaining about 200ml of urine all the time and that was cuasing infections, he was due to go in for his biopsy at the time so the urologist decided he would "fit him in" for both procedures at the same time. He went in at 7.30am but did not get to theatre until nearly 5pm as there were one or two surgical emergencies which bumped him down the list. However he had the procedures done under a spinal block anaesthetic was back on the ward (complete with catheter) about 90 mins later tucking into sandwiches and a cuppa. They kept him in overnight to flush fluids through and check his output, By mid morning the next day they declared his urine was relatively blood free and removed the catheter. He had to drink another load of water so that they could be sure he would empty his bladder fully when he did pee which about lunchtime. They checked volume and did a bladder scan with a litttle hand held scanner. Then he was discharged. He was a bit sore from the biopsy and every now and then over the next 5 dyas or so he would have a little bit of clotted blood pass in his urine which he had been told to expect.

He had no leaks, mishaps or any other urinary issues in fct he was back to pre PCa Mick for a while. If his cancer had not been so aggressive and if he had responded to any treatment at all I am sure that TURP would have made him feel much better for a long time.

Hope all goes well for your OH and soon so that he can get back to his chemo.

By the way PSA often rises immediatey after a TURP as the cancer does not like anything in what it considers to be home territory.

best wishes

xx

Mo

My experience whilst in hospital, apart from the couple of extra days I stayed in was very similar to Mo's post regarding Mick. Hopefully it will follow a similar pattern for your OH. I remember me and someone else desperately wanting to wee so we could go home but they wouldn't let us out until we'd "been" !!

Arthur

Hi linda nice to hear you had a nice holiday.
It seems are journey sounds similar to yours with the disturbed sleep but bearing up quite well
We are having a break from treatment number five and going to Greece for two weeks we feel while all is well we are going to try and balance this roller coaster with a bit of normality
The oncologist agrees with our views so we are off Tuesday .
Take care everyone. Sue.