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Urinary incontinence

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User

Posted 22 Jan 2015 at 05:29

Originally Posted by: Online Community Member

its a postcode lottery as to getting daily Cialis
our health authority wont give my OH daily due to cost
he found Cialis gave him headaches and wasn't much help really so now has Viagra
which helps a little but not a lot

we watched a food health program where they recommended someone with ED take
a handful of pistachio nuts
its early days but they seem to be having an effect
he has only taken them for a week but had a semi erection naturally
(about the same as he is getting with Viagra)
so is carrying on taking them will let you know if they work

I had headaches and leg aches when I started taking the daily Cialis, for a bout a week or two I think? Made me stay awake at nights for a while and I would take a paracetamol to dull the ache. How long did he take them for? Did he try paracetamol for the aches?

As I understand it from my specialist and mu GP, well one of them, the other two, were at odds with the first, Cialis is for circulation and is a long term recovery aid. Viagra is for an "event" taken up to 8 hours before anticipated sex and preferably on an empty stomach. The Cialis has worked very well for me, I think? The viagra does not always do the job. But then sometimes I surprise myself and up for it and sufficiently capable without any extra help. Need to find a well bad woman now! ;-)

Can not understand it, but happy that it happens. And it is happening more frequently. Recovery is at times inexplicable and frustratingly unpredictable but welcome. Take heart others, and persevere with any meds.

atb

Dave

User

Posted 22 Jan 2015 at 11:03

our health authority will not prescribe daily Cialis
all they will allow is 4 x 20 mg tablets a month
OH tried them for 4 months even taking a paracetamol at the same time as Cialis didn't help
and since
they weren't having the desired effect anyway GP suggested switch to Viagra
which only help a bit more than Cialis
OH has appointment to see ED specialist next month in meantime is trying the pistachio nuts

User

Posted 22 Jan 2015 at 18:29

I bought four weeks supply of pistachio nuts today....

I still can't find any links to official articles which say cialis is better than Viagra for nerve repair. Our ed nurse is insistent that it makes no difference, they both do the same job. The NICE guidelines seem to say that the only difference is the time the drug acts for, unless I sm looking in the wrong place?

Where did your information come from about cialis being better?

User

Posted 22 Jan 2015 at 19:54

If you Google Cialis as prophylactic Prostatectomy you should find plenty - it is common in many areas of the country to prescribe 2.5 or 5mg daily OR 10 / 20mg once or twice a week which can be cut up and taken on alternate days.

I am surprised that your ED nurse doesn't know about this. Viagra and Cialis work in opposite ways - while Viagra helps to release chemicals that increase blood flow and enlarge the penis, Cialis works by blocking the chemical that deflates the penis. Hence the active ingredients in Cialis stay in the body longer and improve blood flow to the nerve bundles rather than the actual penis.

Interesting aside though that research is showing neither Cialis or Viagra have a prophylactic impact on men who have RT

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 22 Jan 2015 at 20:42

Originally Posted by: Online Community Member

I bought four weeks supply of pistachio nuts today....

I still can't find any links to official articles which say cialis is better than Viagra for nerve repair. Our ed nurse is insistent that it makes no difference, they both do the same job. The NICE guidelines seem to say that the only difference is the time the drug acts for, unless I sm looking in the wrong place?

Where did your information come from about cialis being better?

Louise,

I would be very wary about the boudoir department the next few weeks. And at other times if you notice that there are abandoned "shells" appearing?

Not sure but if a gentleman munching nuts approaches you with a lascivious grin about their visage, run RUN!**

ATB

dave

** but not too far and not too fast ;-)

My ex was very attentive and conscientious when chewing on my nuts. She was very attentive, thorough and persistent and very very effective. She only stopped when the packet was empty! :-0

User

Posted 22 Jan 2015 at 21:25

I'm sorry Lyn, I don't normally consider myself thick, and I do have some medical experience, but I can't find anything that categorically says that cialis is the drug of choice. There are some studies but they're a bit beyond me.

When I relayed the opinions of the forum about cialis being better, she said 'it makes no difference they do the same job. That's the problem with forums, the information is mainly hearsay'

While I appreciate that you really do sound like you know what you're talking about, I can't afford to upset the nurse. We are seeing her on Thursday, and intend to ask her to put my OH on the cialis instead. He is not having much fun on the digestive front with the sildenafil (or indeed any other sort of fun, although we know it's really early days) and we are going to use this as a good reason to change, but I really would like to have something I can print out and hand to her with evidence that cialis is the drug of choice.

I'm at the point of giving up on this. I have googled for four nights, and got nowhere. Could you help with a link please?

Oh God, maybe I am thick...

User

Posted 22 Jan 2015 at 22:02

Louise,

serious comment,

You are NT thick.

When I had my RRP in May 2013 I was referred post op by the surgeon to go to my GP to have the meds, saving the budget of the Royal Berkshire at Reading, LOL.

The meds prescribed were 5mg Cialis/Tadalafil, daily, to improve general circulation around the body and the op site to aid recovery.

50mg Sildenafil/Viagra if and when I would like an erection to have sex. All good so far in theory.

When I spoke to my GP about the meds he confirmed that Cialis is for general circulation recovery. It works, my finger nails are the envy of most women!

Apparently Viagra was discovered as an erectile assistant purely by a accident. It was researched and tested as a medicine for heart problems and to assist general circulation problems, if my memory serves me right, in South America?

As the research continued with assessments of the results on the men, it was cited thstb their partners noted that the men had developed an increased sexual appetite. LOL, all these elderly men with circulatory problems were suddenly fine and demanding sex from their wives. No complaints for the women or their wives.

My opinion is not "hearsay", it is what I have experienced and am experiencing and living with. Now, my surgeon and my first GP go along with this theory and treatment regime. My last 2 GPs all have expressed surprise at my treatment regime, but nonetheless they are agreeable in support of this continuing. I am so grateful.

In summary,

The daily CIALIS works for me, has done for 19 months.

The VIAGRA has had mixed effects, but when it works it seems to work with spectral results. But, then again I get spectacular results more frequently now without meds. Deep joy.

I do hope that this helps you both.

Dave

User

Posted 23 Jan 2015 at 01:05

Sorry Louise, I am not at home to search for links or research - I can only tell you that this is quite common across England. John's consultant recommended it and told us that he must be prescribed Cialis. When the GP said no, the surgeon wrote telling him that Viagra was not a suitable alternative as a prophylactic as they act in different ways. As soon as we saw the ED nurse, she prescribed 2,5mg Cialis although this was later raised to 5mg. Later on, John's prescription was:-

5mg Cialis - every day
50mg Viagra - when needed
Caverject injections - when needed

They also gave him a vacuum pump.

He was prescribed Cialis for 4 years but doesn't need it any more.

I hope your appointment goes well.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 23 Jan 2015 at 01:08

Just as an aside, the appropriate response to any medical professional who expresses doubt or irritation about website info is to point out that the NHS information leaflet for men diagnosed with PCa recommends this forum as a source of advice and support and apparently, a number of ED nurses, PCUK mentors and doctors are members!

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 23 Jan 2015 at 15:33

Thank you Lyn that's helpful. I shall copy and paste it to take with me, along with a selection of others.

I'm normally quite a forceful person, but am aware it's not really as much about me at the moment. I don't want to come across as putting pressure on my OH.

Watch this space...

User

Posted 07 Feb 2015 at 23:28

Just a quick update. The nurse agreed to recommend cialis 5mg daily, which our gp has prescribed.

The continence has not improved yet, and he is still impatiently waiting for this to happen. Sometimes he says it's getting worse. I tell him this is because he is getting better, and doing more than he was. I hope, for his sanity, he at least sees s bit of an improvement soon. As he say, it wouldn't be so bad if thre was an improvement because at least he would know he was going in the right direction!

User

Posted 25 Apr 2015 at 10:37

I find Cialis helps with the incontinence, even taking 2.5mg alternate days. I found the following information on the NICE website in connection with it's use for benign prostatic hyperplasia:

Inhibition of PDE5 causes relaxation in the vascular supply of the prostate and bladder that increases blood perfusion to these areas, which may be the mechanism by which symptoms of benign prostatic hyperplasia are reduced. These vascular effects may be complemented by inhibition of bladder afferent nerve activity and smooth muscle relaxation of the prostate and bladder.

I did get back pain and muscle cramps initially but these disappeared with continued use.

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