Ever Decreasing Circles part three

User

Posted 03 Jul 2015 at 19:01

Good result for you Paul, let's hope you have more good results over the weekend?

dave

Do all you can to help yourself, then make the best of your time. :-)

User

Posted 03 Jul 2015 at 21:40

Lyn,

I drink very rarely these days. I have always loved real ale but found that my bladder does not allow me to enjoy it as I used to. Also wine and port are favourite tipples but I enjoy a good night's sleep more and feel better the next day. So I have now got into a pattern of rarely drinking unless I really really fancy one. I find that once I have made a decision not to drink it does not impact on my day. I may have a drink tomorrow though!

User

Posted 03 Jul 2015 at 22:16

Originally Posted by: Online Community Member

"Lyn,

I drink very rarely these days."

Same here Paul. Barely a drop touches my lips. ;-)

dave

Do all you can to help yourself, then make the best of your time. :-)

User

Posted 03 Jul 2015 at 22:58

Brilliant news Paul that all went well with the Zapping, I will be thinking of you on Sun so good luck for that. I still can't believe they are doing a Sunday Servicehttp://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-innocent.gif. What ever next Sunday School on a Tuesdayhttp://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-innocent.gif.

Being a teetotaller like Country Boy I can understand your abstinence http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-innocent.gif. Personally I never touch a drip (sorry I meant drop) .

Enjoy that cricket and a restful weekend.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 03 Jul 2015 at 23:51

Originally Posted by: Online Community Member

Lyn,

I know love but it amused me to say it!

CB - yeah, right!

Julie, I am teetotal having had only a sip of sherry in March 1984. However, I have recently been considering trying some - everyone I know seems to find that getting lashed helps with all sorts of problems.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 04 Jul 2015 at 08:53

Paul, maybe a Bairstow moment again ..that seemed to inspire you to embibe.

Dave...Those drops never touch your lips they just go past them on their way south !

Julie
If you didn't have a tipple to celebrate getting married to the tumeric prince I would be mortified!

Lyn if a sip of sherry was your only ever experience in 1984 I am not surprised you abstain it's horrid stuff. I won't use it in cooking not even trifle yeuk!

Me personally well I think most of you have a little idea of what I like to very occasionally sip (quaff, splurge, splaugh) etc.!

User

Posted 05 Jul 2015 at 18:20

Hi Paul
Really glad to see things are moving along nicely
How are the leg pains are you getting any relieve yet
Si

Don't deny the diagnosis; try to defy the verdict

User

Posted 05 Jul 2015 at 19:50

Hi Si,

Had CT Scan today so completed all the tests. My leg feels ok but I have been resting and taking pain relief. Once I feel it's right I shall ease off the pain relief and see if the pain stays away. Onco stays between 2-6 weeks for full relief, 80% success rate so here's hoping. Fingers crossed that the CT scan is clear then I can settle down for a while. Been a difficult few weeks but now feeling I am getting great service and support and know what is happening which always helps.

User

Posted 05 Jul 2015 at 20:04

I hope so much you can settle and that the pain eases off enough for you to pull back on the painkillers. Pain is awful and has a cumulative effect gradually dragging you down further and further. Best wishes Chris

If life gives you lemons , then make lemonade

User

Posted 05 Jul 2015 at 23:12

Hi Paul,

So glad that you have a good weekend (loved the FB pics) now to wait for results of the scan sometimes it seems that we are always waiting for one result or another. I am keeping everything crossed for you that scan results are good and the RT helps with the pain.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 17 Jul 2015 at 15:53

Two weeks on from the RT and I think my right leg is feeling better, certainly the sharp pain has not been experienced for a week now. I had dropped off the pain killers but then found my left femur is now painful so back on the pain relief. I guess that will be another conversation with onco next week when I will also get CT Scan results.

Regular readers will recall I have had a 'pain in the bum' for about three years. This was diagnosed as an ishygluteal bursitis and I was referred to orthopaedics recently to see if an steroid injection would help. I had delayed this appointment as the other pain in the leg had rather trumped this one. Today went for rearranged appointment. I have to say I was very impressed with the orthopaedic practitioner I saw. From the moment I described the symptoms to him he was sceptical that it was bursitis at all. In fact one symptom, pain when walking more than 30-40 yards he felt indicating this was not bursitis. So we went through my three bone scans and he feels that the likely cause of this problem is the bone mets in the pubic bone, the cause of the mega pain recently. The more we talked the more I felt he was correct and that probably all along the minor pain was a prelude to this more severe bout recently. So I have been cured of bursitis!

Be interesting seeing the onco next week for a review of the scans and the latest pain and see what's next. I have felt really tired since the RT plus the fatigue from the HT so it's been a hard few weeks. Still the sun is shining, cricket is on the TV and off to Scarborough to watch Yorkshire on Sunday so hopefully with my trusty pain killers I will have a few days respite before my consultation.

User

Posted 18 Jul 2015 at 19:49

Paul
enjoy the cricket at the seaside tomorrow. you are bound to get your favourite fish and chips there!

Cured of the big B ...amazing but it does seem that it might actually be part of the big C instead, must be uncomfortablle sitting on those benches at the cricket or the plastic seats, so make sure you carry a nice seat pad with you.

Good luck with your Onco visit this week, looks like RT has helped in one area and maybe it will again.
Best wishes
xx
Mo

User

Posted 21 Jul 2015 at 19:07

So the scores are in. I saw a different onco today but she was as engaged and informative as her colleague and knew my situation so it was a good and rounded discussion. Good news abounds, CT SCAN shows no evidence at all of any spread in any soft tissue so this is great news. The same as three and a half years ago. My PSA still stable at 27 so it's been in the mid twenties for six months so no hike there and my right leg is slowly feeling better in response to the RT. So carry on with casodex and keep enzo in the box for now.

I went feeling a little down, the RT + HT has really tired me the last few weeks so my spirits were not at their highest and on Saturday my good friend, Mr UTI joined me again though I caught it early. So I was concerned that the results would continue the downward trend. But no they could not be better, given the events of the last few weeks.

I feel much more in touch with my onco's and they take time to discuss, explain and listen. All I ever ask for really. So if I did not have an infection I would have a drink tonight. Back in Scarborough for the last day's cricket tomorrow. Not on wifi much here but home tomorrow so back to normal then.

User

Posted 21 Jul 2015 at 19:21

Great results Paul. Apart from our favourite urologist I have found the oncols to be more receptive. Was it Lucy.

Really pleased for you.

Enjoy the cricket

Bri

User

Posted 21 Jul 2015 at 19:23

Not on first name terms like you Brian, I only got her surname. She was good and informed.

User

Posted 21 Jul 2015 at 20:30

Good news Paul and much better service from the medics, sorry the cricket has been so dire (as far as I've seen on the news that is).

Hopefully the tiredness will get better over time, john found a lot of it was down to the painkillers, but he is nearly off those now, down to 50mg tramadol once a day and paracetamol as required.

Lots of love
Allison

User

Posted 21 Jul 2015 at 22:13

I haven't been up to speed lately but who the heck is Lucy? http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif where did she pop up from. Jokes aside such good news Paul after what has been a hard few months to at last get some good news maybe she is Lucky Lucyhttp://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif

I am over the moon for you with scan results I know it has been hard with the pain and the worry that this has caused. To feel confidence in your Onc is such a good feeling.

I don't know any cricket terms and I don't any foot ball terms but I sure can shimmy so here is to you Paul I am going to shimmy round the kitchen singing Go Paul, Go Paul . http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON

User

Posted 21 Jul 2015 at 22:16

Hi Paul,

Really pleased everything is going well for you. You deserve it.

I'm sure England will turn things around.

Steve

User

Posted 21 Jul 2015 at 22:20

Good news, Paul, so pleased for you ! Just hope the cricket lives up to expectations !

Fiona. x

User

Posted 21 Jul 2015 at 22:22

Paul
that is great news all round (bit like your favourite cricket man) I know the UTi is a hinderance but at least you detected it from the start so you should be able to clear it without too much trouble.
I am glad you chose to go and watch Yorkshire rather than England you might get to see a better outcome!

all the very best
xx
Mo

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