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Bladder neck obstruction

User
Posted 01 Aug 2014 at 20:33
Chris, I self catherise twice a day and probably will continue to do so for ever now as I do not manage to empty my bladder sufficiently retaining between 250 and 400 mls. There is a risk of UTIs from self catherising but equally it stops residue building up in the bladder which can be a place for infection too.

So what does it entail? Without giving you all the details it requires you to insert a catheter, a thin tube, up your penis, past your squinter muscle which can be slightly painful and then into your bladder. At that point the urine is removed easily. When this has stopped you simply draw out the catheter and discard. As long as you do not tense, it sounds a lot worse than it is. You have to be careful with hygiene, I wash my hands three to four times during the process as well as use the hand gels. You only use the catheter once so each catheter is sterile.

I hope that helps. I can tell you more if you need more detail. It's ok and does empty your bladder. The thought is much worse than the reality.

User
Posted 01 Aug 2014 at 22:29
I'm doing about 5ml a sec. But that's measuring it myself. I've never had a flow test

Something else.... our Yorkshire Puddings haven't tasted the same for some time now :)

Bri

User
Posted 02 Aug 2014 at 13:52
Brian Yorkhull

Thanks for the info.

Brian, a bit slow at first then the penny dropped.

I do a fair bit of driving and post op started looking for toilets on journeys, I noted a lack of WCs , then I saw a sealable urine bottle in Boots so bought a couple. Keep one in the car just in case, not had to use it yet but it has measure scale on it,which was useful when doing the intake output for incontinence nurse and saves problems with the Yorkshire puds.

Read a bit about dilation treatment and get a bit concerned when it talks about attending A&E unable to pass urine.

I think I would like too plan what treatment and when rather than get what is given. Slow flow apparently is common 3-6 months post op and I am at 3 months post op. Brian I guess if your flow has been slow for a long time the opening has settled at an acceptable size.

I do have a slight kidney problem so not keen to store urine for too long.

Has anyone else had experience of other treatments for bladder neck scar tissue following RP.

Thanks Chris

User
Posted 02 Aug 2014 at 14:07
I'm 18 months post op Chris. But i have had RT as well which worried me as that can cause problems and to be honest may still. I do think now and again about whether I go to have the procedure. The only problem being at the mo my peeing isn't an issue at all. But what if?

I've never had a UTI or have urgency, I'm never up during the night so I reckon my bladder is emptying sufficiently

The treatment I do know to avoid is where they use an electrical current as the Incontince risks are quite high with that

All the best and keep me updated

Bri

Edited by member 02 Aug 2014 at 14:10  | Reason: Not specified

User
Posted 08 Aug 2014 at 21:40
Bri

Looks like I will have to answer my own question, flow rate was getting worse, frequency went up, when I say flow it was dribble and squirts. Got a call this morning can you come in Monday morning quick pr_ op then surgery in the after noon! not keen but Thursday morning thought it might be visit to A&E. Frequency every hour but only 100 mm or so (puds will have to taste strange a bit longer). Hope I am okay for Thursday or that will be another bi monthly support group meeting missed. Oh and possibly another UTI also on antibiotics again, GP say UTI should be gone for Monday.

First question Monday is it electric current.

Will let you know how it goes.

Thanks Chris

User
Posted 09 Aug 2014 at 20:13
Good Luck Chris. I'm sure it will all go ok.

Fortunately my wee is not just a dribble. It's a steady flow but as the doc said I just can't pxss over the fence

Keep us updated

Bri

User
Posted 09 Aug 2014 at 20:49

Now that's torn it just wet myself giggling, thanks for that Bri.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-embarassed.gifhttp://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-embarassed.gif

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 10 Aug 2014 at 13:07
Bri

I could not pixx over the fence. But I could spray a six foot fence from one foot away, but it would take a bit of time.

Thanks Chris

User
Posted 13 Aug 2014 at 18:44
Bri

Had the the bladder neck stretched Monday lunch time, they got the camera into the bladder had a look round and found a plastic object in the bladder, that may explain the water infections. I was supposed to have a tap on the catheter after the night bag but because it was not written up I had to have a bag. Had to stop over night because there was a lot of blood in the urine. Went back to work today a bit sore and was by passing quite a bit, then total blockage for an hour all back to normal now. Big debate about who by and when the catheter was coming out but now booked for Sunday. Next step lets see what it has done to the continence, surgeon was confident it would not affect it.

Thanks Chris

User
Posted 13 Aug 2014 at 19:16
They found a plastic object in the bladder ..... Hhhhhhmmmm, you mean like a 1 litre jug, a couple of casino chips perhaps or even a small piece of Lego? C'mon Chris - an explanation is needed!
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 13 Aug 2014 at 20:48
Bet it 'was one of the 'staples' they leave in situ after the op

Bri

User
Posted 14 Aug 2014 at 20:21

Hi....

Perhaps not directly relevant, but have had the 'Suprapubic'  (= Belly)  catheter in place for 6 years now.  Has been a trial at times but something I'm now pretty resigned to, and change it myself every 5-6 weeks - think I'm far better at it than they are !   Don't suffer from infections as often as I used to, and positively avoiding antibiotics seems to have paid off.   Next week,  in for saturation biopsy no. 4 ..... and positively shudder at prospect of waking up with both the suprapubic  AND the huge  'triple-barrel' variety up the front  (following the usual rigid cystoscopy to check wrecked bladder and find yet more stones.... )  which is always an eye-watering 'jaws' event on removal.   Will bring the total cores-count to  not far off 100 and doubtless put me out of commission for a while with usual bleeding both sides - the price of  protracted AS/WW, but no complaints.......

Cheers /  David

'It couldn't possibly happen to me....'
User
Posted 16 Aug 2014 at 14:30

Lyn / Bri

Sorry for the delay in replying. Not had Lego in the house for a number of years, we did go to Monte Carlo but lost all the chips, that left the plastic urine jug, then I realised we had Yorkshire puds so it was back in the cupboard.

Brian was close with the staples, I think.

It was a bit hectic when the surgeon told me what had happened, but three things I remembered were clip, haemorrhage and migration. It is my assumption it was plastic from seeing video clips of the op. I am unable to contact my surgeon at the moment, but may get some info Sunday when the catheter is removed.

My first instinct was that the clip had been left in by accident, but Bri’s comment got the grey matter working.

I have delved into google and found that a “Hem o lok clip” is frequently used in robot-assisted laparoscopic radical prostatectomy, what I cannot find is confirmation that they are routinely left inside or that they are used in the UK, or how big the clips are if used in the procedure.

On another site, which I cannot now find, it described typical symptoms of clip migration, frequent UTI, urine retention and at three months poor flow rate, which pretty much describes what I went through.

The following are links to old US National Library of Medicine National Institutes of Health

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3272559/

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2963780/

Extracts from of the links below

Of the 641 patients, 25 (5.7%), 1 (2.0%), and 2 (1.3%) had a bladder neck contracture after RRP, LRP, and RALP, respectively. Two RRP patients had a bladder stone. In total, 6 patients had surgical clip-related complications. Metal clip migration was associated with 2 (8%) of the 25 RRP cases of bladder neck contracture and both (100%) of the RRP cases of bladder stone. Moreover, both (100%) of the RALP cases of bladder neck contractures were associated with Hem-o-lok clip migration into the anastomotic site.

 

It appears that surgical clips are prone to migration and may cause, or significantly contribute to, BNC or the formation of bladder stones after radical prostatectomy. These findings raise questions regarding the use of foreign bodies in close proximity to the vesicourethral anastomosis during radical prostatectomy. At the very least, they indicate that care must be taken with the surgical clips used for inducing hemostasis near the apex of the prostate in radical prostatectomy. In addition, because the incidence of BNC after RALP is low, when unexplained voiding difficulty occurs after RALP, one should suspect that a Hem-o-lok clip has migrated, especially because Hem-o-lok clips cannot be detected on X-rays.

 

Thanks Chris

User
Posted 16 Aug 2014 at 16:15
Thanks Chris, I haven't got a follow up app with the urologist regarding this. He's a bit like a car sales rep, great service when doing the business, cap after care.

Will get the next PSA and hol out the way then maybe ask for an appointment to discuss.

Last appt was with his registrar who quite frankly was clueless.

Bri

User
Posted 18 Aug 2014 at 20:09

Bri

 

Had the catheter removed Sunday morning, came out mid afternoon, bladder almost empty just a few ml left. Was passing urine every half hour until about 2200, got up at 0030, then 0230, and then 0400 for work. Frequencey slowed to every 2 hours during the day but not a lot of volume, 125 ml. rough flow rate 8-12 ml/sec so vast improvement there. Solid stream then stop, but get the feeling I want to pass more. I had a couple of close calls but continence is still there. Early days so will see how it goes tomorrow, in the office all day. Nurses did not have any info on clips, so still in the dark over that one.

 

Thanks Chris

User
Posted 18 Aug 2014 at 21:00
Cheers Chris, sounds promising. Are you self cathing

Bri

User
Posted 19 Aug 2014 at 12:36

Bri

Had normal catheter in from Monday to Sunday then removed. No self cathetering  and frequency getting further apart.

Got to say the bag and catheter was a lot easier this time after a simple procedure rather than after the original op. 

Thanks Chris

User
Posted 03 Oct 2014 at 20:23

Well six weeks post dilatation I am booked in for a second go at it 20th October, flow rate back down to just under 4 ml/sec with dual and triple flows. I did ask if the vacuum pump could be causing the problem but my surgeon thinks it is related to the catheter removal. My catheter got stuck on the way out and he thinks this may have caused some damage. still got the continence and hope to maintain it following the procedure. I did notice today when urinating that I could not stop the flow, not tried it before but a bit surprised. Had a PSA test whilst there and was told if I heard nothing no news was good news, three days later not heard so assume all is still okay.

 

Thanks Chris

User
Posted 04 Oct 2014 at 07:03

Bit of a bummer Chris. I did read that some men needed the procedure again but not that quick. Hopefully as he says something to do with the catheter removal.
My flow is the same fortunately. There is someone else on here burtcan't remember who, who has had a decreased flow for years.

I'm having an ultra sound scan of my kidneys etc as in a Q&A session with another consultant he confirmed there is the potential for kidney damage with a reduced flow. Quite angry that my consultant didn't arrange this

Hope your next op is successful

Bri

User
Posted 04 Oct 2014 at 20:38
Bri

I have been on blood pressure tablets for about 10 years and have a slight kidney impairment so I get the blood tests for the kidney function at least every year. Good news is I am still emptying the bladder so no worries there. At least I know what to expect so should be no surprises. Following the first dilatation I was doing 20ml/ sec that soon settled to about 10 then gradually down to just under 4.

Thanks Chris

 
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