Dear Carol
The lack of sleep has been an issue for my OH too, for 3 years, since dx. It seems to be caused by the worry and the nocturia. He just does not get into a deep sleep, so his bladder wakes him up when the rest of us might sleep through it.
The only time he has had a few nights rest was when he was on strong painkillers for a bad back (unrelated to the Ca). We have talked about sleeping pills but he is reluctant to take yet another pill.
The upshot is that he is really tired all the time which affects all the family and can then obviously affect moods (for us - with 2 young children he never gets a rest in the day either)....so pretty difficult ongoing.
I too would be interested to hear any further comments on this problem, as we all know, nights without sleep really do affect the rest of our lives.
All the best
Alison