Post Chemo & Enzalutamide

User

Posted 22 Oct 2014 at 21:22

brilliant news, latest research in uSA shows that those that respond well to Enza also respond well to Abby, because of the order your hubby has had treatent this should also be available to him. If Enza is working then keep with that it is a wonderful drug if it is prescribed early enough.

User

Posted 23 Oct 2014 at 18:57

Unfortunately, it is presently the case that if you have had Enzalutamide , then you can't have Abiraterone.

'tis one or t'other for the time being at least.

User

Posted 23 Oct 2014 at 19:18

Great news. Keep it going!

User

Posted 24 Oct 2014 at 06:53

What great news, just what we like to hear

Don't deny the diagnosis; try to defy the verdict

User

Posted 24 Oct 2014 at 08:51

Thanks everyone. Just to confirm, Abiraterone will still be available as had Enzalutamide first. It's a roller coaster! Off to see Lee Evans tonight for some laughs!

Also, RIP Alvin Stardust. My uncles knew him in his days of Shane Fenton.

User

Posted 24 Oct 2014 at 17:49

Finished my chemo on 4th Aug. PSA then 27. By Oct PSA up to 56. CT scan, Bone Scan and MRI scans now done. Oncho appt on 27th Oct. May be drunk till Monday. May be starting enzalutamide soon.

Lots of pain but fitting bathroom kitchen, shower room and 0.5 acre gardening still got to be done.

User

Posted 24 Oct 2014 at 19:28

I hope I'm wrong then, but that is what was explained to me. One or t'other is now the recent ruling.

And ;

" Similarly they will not be funding abiraterone for men who have already had enzalutamide."

from

http://prostatecanceruk.org/news/2014/7/prostate-cancer-drug-enzalutamide-still-denied-to-those-who-have-had-abiraterone

If this is wrong could you please confirm with any details / refs ?

Leaves many of us in a difficult position.

User

Posted 24 Oct 2014 at 20:56

Rob - No it's correct. I have finished 18 months on Abiraterone and have been told by Oncologist N.H.S. England have banned Enzalutamide to patients who have previously been prescribed Abiraterone.

Have been writing to M.P.'s P.M. etc. to try to get this ruling reversed, but not holding my breath. It is immoral to withhold drugs that can enhance quality and possibly extend life when we are contributing towards India's Mars probe, Nigeria's moon shot and all the rest of money we waste abroad.

There is a petition on this site calling for this ban to be lifted.

User

Posted 24 Oct 2014 at 21:20

Well then we should all celebrate with Glen that for some reason this particular onco is able to give her husband a rare opportunity - and every time that happens, it increases the likelihood of the ban being overturned.

Wonderful news Glen x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 25 Oct 2014 at 16:14

Thanks everyone. Very interesting about the not being allowed Abiraterone after Enzalutamide as I understood recently that you could have it this way round but not the other. Maybe things have changed and I've not heard this - if it's correct then it's a right bummer!

We'll just have to hope that the magic beans work for a while yet and then tackle the next stage.

It's a right b*s*ar* this disease.

User

Posted 26 Oct 2014 at 09:45

The ruling takes no account of the effectiveness of Abiraterone. Some men get years on it and some (like me) get absolutely nothing. My Oncol reckons that there is a good case to give it to men that receive no benefit from Abiraterone. The longer Abby works for you the less likely Enzalutamide will be effective but until you try it, you don't know! NICE has turned down every single drug for PCa in the last decade (at least initially). It took over 60 years for the first life extending drug to be approved for PCa (Docetaxel 2004) whilst we have seen a proliferation of breast cancer drugs since the seventies (with an accompanying survival rate). Am I on my high horse? You bet! http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-yell.gif

Nil desperandum

Allister

User

Posted 26 Oct 2014 at 17:54

Allister - Is there room for two on that hoss?

Trevor

Edited by member 26 Oct 2014 at 17:54 | Reason: Not specified

User

Posted 17 Dec 2014 at 14:45

Update following my husband's appointment with Oncologist today after 6 months on Enzalutamide. PSA 0.03, haemoglobin 10.5. 8 more weeks prescribed. Next appt mid-Feb.

Fabulous result, the magic beans are still doing their stuff. I think Christmas 2014 starts here.

It's still a roller coaster, it's been very hard in the build up to the appointment as things can change at the drop of a hat. However, as everyone knows, we have to live with this.

I'm cutting down to 3 days per week from the New Year so we can have more long weekends and spend more time together, luckily my employer is very understanding, I am lucky in this respect.

All the best everyone.

Glen

User

Posted 17 Dec 2014 at 16:57

This is a great news. Certainly time to enjoy christmas and the new year!

User

Posted 17 Dec 2014 at 18:37

Great news Glen http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif

I've now been promised a shot at Enzalutamide in the New Year so fingers crossed ....... http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif

Nil desperandum

Allister

User

Posted 17 Dec 2014 at 20:34

Thrilled to bits to read this, wonderful news xxx

User

Posted 18 Dec 2014 at 00:47

Oh Glen so pleased to read your news. Have a wonderful Christmas x

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 18 Dec 2014 at 17:32

Allister, I hope the magic beans work for you too!

User

Posted 18 Dec 2014 at 18:27

Good for you Allister. Hope it works wonders for you.

All the best to you and your family for Christmas

PS We are away for Christmas with our friends from Carrickfergus

User

Posted 19 Dec 2014 at 13:03

started enzalutamide on monday psa 28.5 , so tired with it , but i hope it will work

will post

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