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Benefits discussion

User
Posted 26 Oct 2018 at 16:11
Hi Lyn

it wasn't a shop it was the macmillan bit in the hospital, apparently they usually have an ex cancer nurse in there but she is on holiday, I wasn't having a go about the volunteer she was lovely I am just frustrated about the drs. Tony has ckd 5 as well as the cancer, the treatment could kill him although hopefully not, the form to fill in for attendance allowance is a nightmare, I tried last year and was told he doesn't need enough help, I would like to see them doing it.numerous hospital appts, trying to sort his medicines with the drs and pharmacy, making sure he is doing everything he should. sorry for the rant just need to let it out.

regards barbara

User
Posted 26 Oct 2018 at 21:49

https://www.gov.uk/pip/how-to-claim

Hi Essexbabe, 

You sound exactly like I did last year, so frustrated.

Eventually the macmillan benefits lady emailed the PIP descriptors to me and I then rang the number on the above link. I printed out the descriptors first and went through them carefully and prepared my answers, I get really flustered on the phone and these are awful questions to have to answer. My husband gave his pemission at the beginning of the call and then I went in another room to give all the details over the phone.

I have the descriptors on a word document but I don't know how to attach them here. Can anyone help with how I can send to Essexbabe? 

When you've answered all the questions they then send the forms out to you that have the descriptors on them. I didn't have a ds1500 at this point (because the hospital lost his paperwork for the specialist nurse to do this but that's another story)and the DWP accepted oh for the higher rate without an in person assessment. A lovely Scottish chap called and asked me a couple of questions and my answers negated the necessity for oh to go for another inspection! 

The process should be easy if you have a nurse doing the paperwork but if you don't,  it feels like no one believes you and it's horrible feeling you have to justify how sick someone is 😕

It's a long phone call, give yourself at least 1hr and have all of the addresses and contact details in front of you.

Hopefully some one will be able to tell me how to send you a document,  in the meantime I'll look to see if I can find  them on the Web and add a link. 

Xx

User
Posted 26 Oct 2018 at 21:58

https://www.google.co.uk/url?sa=t&source=web&rct=j&url=https://www.citizensadvice.org.uk/Global/Migrated_Documents/adviceguide/pip-9-table-of-activities-descriptors-and-points.pdf&ved=2ahUKEwjx3aOii6XeAhUXIIgKHbZ1BbkQFjAAegQIBRAB&sqi=2&usg=AOvVaw1_0vW3XCAeqXtDbu7FHJxt

Mobility:

Minimum of 8 points required for standard rate or 12 points for enhanced rate – These points can be scored from just one activity heading or from a combination of the two boxes above, although only one score from within each heading.

Daily living:

Minimum of 8 points required for standard rate or 12 points for enhanced rate
These points can be scored from just one activity or from a combination of the ten boxes above, although only one score from within each activity.

The advice was to base it on the worst days. I'm glad I did it, for all of the good days oh has had, there have been a lot more crap ones since his diagnosis:(

User
Posted 26 Oct 2018 at 22:03

I've just read that this is only up to 64 years of age, I'm sorry, I should have checked that first. I didn't realise there were different benefits for different ages.xx

User
Posted 26 Oct 2018 at 23:46

Originally Posted by: Online Community Member
Hi Lyn
it wasn't a shop it was the macmillan bit in the hospital, apparently they usually have an ex cancer nurse in there but she is on holiday,

regards barbara

ha! I imagined it being a shop with crocheted toilet roll covers and second hand books! 

So did they say he doesn’t qualify because of his age or because he is likely to live more than 6 months? 

 

 

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 27 Oct 2018 at 06:50
Thanks Kentish for trying to help x

Hi Lyn

I realised that's what you thought lol x

the doctors surgery just said to Tony "you don't reach the criteria"

I wanted the ds1500 because i filled in the form for attendance allowance last year and it is so long and complicated i probably didnt put it in the right way, i am going to try to get to a bigger macmillan centre and see if they can help me fill the form in when it arrives or i might contact the oncologists secretary to see if i can get a ds1500 from there.

regards barbara

User
Posted 18 Jan 2019 at 19:20
Well

I filled in the form for attendance allowance, put in all that Tony has wrong, how many times he gets up in the night, all the hosp appts that I have to attend with him, his end stage renal disease (ckd5) put his chemo, all the tablets and so on and so on sent the form back after it had taken me a week to fill it all in and today found out he has actually got the higher rate of attendance allowance, could not believe it really thought they would turn him down again. happy days. thanks for all your help, made sure I filled it in about his worst days by keeping a diary for a week.

regard barbara xxx

User
Posted 18 Jan 2019 at 20:02
Brilliant x
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 19 Nov 2019 at 20:14
Hi

I don't know if anyone is a member of The Benenden but if they are I have found them very helpful. When Tony had his first lot of RT (13 years ago) They paid for his petrol to get to the hospital for treatment each day, this was a really big help because it was an 87 mile round trip, I got in touch with them today to see if they would be able to help again as he is going to have 5 weeks of RT so another 5 weeks of 87 mile round trips and they have agreed to help again and have also said after the treatment they will pay up to £500 for a mini break in England to help with recuperation. They do not help with any treatment for Cancer but I did not expect the rest of the help.

barbara x

User
Posted 20 Nov 2019 at 10:01
Got turned down by local council for a Blue Badge. Failed Q1 How far can you walk?

Guy at the Council asked me where I'd parked and it was half a mile away.

Guess Stage 4 Incurable Cancer isn't enough for our Local Council.😖

User
Posted 08 Jan 2020 at 11:50

Allison

My cancer is incurable and I've been receiving PIP for nearly 3 years and now being requested to renew. Will I still get it do you think? 

User
Posted 19 Mar 2020 at 07:56

Hi all,

I have noticed that you have all been talking about benefits, my question is will I be able to claim any of these whilst I am still working or do I have to wait until the PC advances further until I am unable to work.

Thanks chris

User
Posted 19 Mar 2020 at 08:12
I asked, recently, AGEUK to help me fill in a Blue Badge Form, received badge within 3 weeks without any queries. And in the past we had Sight Concern to help us both fill in AA forms, and we both get the higher amount, so it IS worth getting a ‘Regular form filler’ for help.

Chris.

It might ask ‘how far can you walk’ but how often do you have to stop and rest on that walk!

User
Posted 20 Mar 2020 at 16:13

Hi Exbus / Nathaniel

Thanks for your reply, how did you get round the form because to start with although we are going through treatment ie. Radiotherapy, hormone injections ECT but we are still able to do things and I am not sure what to say in the form because at present I will most probably be refused.

You advice would be appreciated, private message me if you prefer.

Chris

Edited by member 20 Mar 2020 at 16:15  | Reason: Not specified

User
Posted 20 Mar 2020 at 16:27

Hello Chris, with the AA form, firstly my wife is registered Sight Impaired, which is why the lady was here, after filling in my wife’s form then asked my wife what help she gives me, as my wife said I had PCa, then asked a few questions to us both, filled the form in, we read it through and sent it off, remember it must be on written as if it was your worst day.

With the Blue Badge Form done at AGE UK, we walked in with my tri-Walker, I gave her copies of my latest CT and Bone Scan results, copy of my AA letter, says how much they’re paying me and a copy of my Continence letter, which says I’m being given Pads, then asked me how we got to her office, I told her we walked but I had to stop and sit on my walker, she then went ahead and filled the form in.

Hope that helps.

Ask for copies of all you have done, the letter sent to your GP is a start, I keep records of everything, I’m waiting for CD’s of my CT and Bone Scans at the moment, they’re in the post somewhere.

Chris.

Jasper, the office was half a mile from car park, how many times did you have to stop.

 

 

Edited by member 20 Mar 2020 at 16:33  | Reason: Forgot something and answered Jasper

User
Posted 20 Mar 2020 at 16:55
Chris

I'm still fortunate I can walk long distances.

I applied for the blue badge because a guy at the Cancer support group said if I'm stage 4 I'd get one.

He was wrong.

User
Posted 20 Mar 2020 at 17:38

Thank you for all your advice, very much appreciated.

Chris

 
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