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15 years on (continued)

User
Posted 30 Jun 2014 at 12:54

A huge sigh of relief to see you back posting Barry, I think as you say you have been over doing it lately . So R&R for the next few days. You make me dizzy just reading where you are and what you are up to .

Love as always to you and Karen

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 30 Jun 2014 at 13:38
Barry,

You nearly gave US ALL heart failure! Pleased to see you posting again, thank Karen for keeping us up-dated, take care, my friend, and enjoy Eire.

God Bless.

Chris

User
Posted 30 Jun 2014 at 13:55

Barry,

Great to see you posting again.

You take care mate, see you soon.

 

Love to Karen as always.

 

Mike & Kath xx

User
Posted 30 Jun 2014 at 14:07

Have been thinking about you on and off all day, TG. Good to see your post !

 

Fiona. X

User
Posted 30 Jun 2014 at 15:19
This post Almost had me doing a somersault.

I don't think my back would have coped. So glad you are feeling a little better my friend.

Keep resting and recovering ready for your trip to the emerald Isle.

Love Allison xxxx

User
Posted 30 Jun 2014 at 15:39

Barry you need to alter your signature to "Life is for living in the slow lane now"

Glad to hear you have perked up.

User
Posted 30 Jun 2014 at 17:01
Excellent news. Rest well before Dubin!
Stay Calm And Carry On.
User
Posted 30 Jun 2014 at 20:11

PHEW,

Glad your felling a lot better

 

Best wishs

Barry

User
Posted 30 Jun 2014 at 21:01
Good on ya TG. You had folks worried there for a bit. We should have known better. Keep setting those goals

Bri

User
Posted 30 Jun 2014 at 21:12
I know its just a ploy to fill more pages than the Newark Mob! You know the score, its so easy to do too much, just another lunch, just another..... But care for yourself and give yourself the respite then you can continue to enjoy yourself for a good while. I was in Dublin recently for the first time and really enjoyed it. I know you will have a great time.
User
Posted 30 Jun 2014 at 22:17
TG , you never cease to amaze me, and long may you continue to do so.

Roy

User
Posted 01 Jul 2014 at 11:53
Well Barry

All I can say is thank goodness VJ and I are not so good at accessing the new forum and therefore not so proficient.

We just read through your latest postings and, as others have said, nearly had heart failure and felt very down by Karen's post.

Really glad to read you are feeling better and that you are going to take it a tad easier.

Wishing you all the very best from both of us.

Kim

User
Posted 01 Jul 2014 at 21:41
TG that hammock looks very cosy spend lots of time in it being suspended in space is supposed to be extremely good for you! Xxx Mo

Ps you can let karen have a go too

User
Posted 02 Jul 2014 at 16:47
Hi all,

After a dreadful weekend when I felt absolutely down and out and as near as damn it on deaths door I feel a little better as the days have passed, resting as much as possible. My consultant told me to have some more blood tests to see whether it is worthwhile to continue to take Enzalutamide. They came back today with mixed results, one lot of liver enzymes went up yet another lot have gone down. Assuming that he called it a draw my Onco has prescribed another months worth (GP can not prescribe these magic pills at this moment in time). By the way my PSA is now 0.06 how weird is that.

I saw my GP today as my feet have swollen and I am now on water tablets, I was with Karen and my GP turned the conversation round to the "end game" asking where I wanted to be at the end. We had quite an interesting chat about how I was going to go, as to when to make these final decisions. My preference would be to go back to the Hospice in my final days but to die at home. Sounds morbid I know but we all know that it won't be far off now and I respect my GP for taking the time to go over these things in a kindly fashion without being condescending. I told him that I was setting targets, the next being our jaunt to Dublin, he was in agreement with both setting targets and Dublin, but did tell me to rest up in the meantime. He was in fact quite amazed that I had done so much since leaving the Hospice.

I'm on a mix of 13 tablets at night now which certainly gives a good nights sleep but in the minutes to nodding off I'm in a world of my own, having allucinations and reaching out for things that aren't there, then I come back into the real world before zap it's time to get up.....with only 10 tablets to take with my morning cereal.

At least the weather has been kind and I'm spending a lot of time on my hammock. I normally would be chilling out with a beer watching sport on the TV but after the debackle that was the England Football team, the farce over Pietersen and the England Cricket selectors who haven't got the ba**s to get rid of Cook as Captain we now have Murray crumbling at Tennis I am now down to watching Last of the Summer Wine.

No matter, Dublin in a few days time because........

Life is for living

Barry (alias Barrington )

User
Posted 02 Jul 2014 at 17:17
I am not surprised your GP was amazed at what you have done Barry, since leaving the hospice. Not long until Dublin now, keep resting. Love to you and Karen, Janet
User
Posted 02 Jul 2014 at 17:49

Barry? You've been watching Last Of The Summer Wine?

OMG. Does this mean you'll be wearing the full 'Compo' garb next time we see you?http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif

Please don't make him your new hero.

Keep out of mischief, you hear? : )



George, Lynn & Katrina.

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Edited by member 02 Jul 2014 at 17:50  | Reason: Not specified

User
Posted 02 Jul 2014 at 19:20
Barry, another great post. I am so pleased your GP took that initiative. It is so important to take every opportunity to plan the end-game. It is the one 'gift' of this dreadful disease that it is possible, if we take it, to think about what might happen and what we want to happen. Having that degree of control is so important for you and for those around you. I saw my dear friend, who died of bowel cancer not realise until too late and I think he regretted not being able to do things he had intended for hi children. It sharpened my mind at the time and remains with me for future reference. Now is not a time to pretend things are not progressing! Having sorted out the pathway you can then focus on your goal of 'life is for living' without worrying about what will happen!
User
Posted 02 Jul 2014 at 20:01

Well what can I say Hammocks and Last of The Summer Wine now your talking, that is my kind of afternoon.  Keep those feet up and energise yourself for Dublin. If you find a Leprechaun when you are there can you bring it back for me.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif

BFN

Julie X

 

NEVER LAUGH AT A LIVE DRAGON
User
Posted 02 Jul 2014 at 20:55
Brave GP. Haven't we discussed on here time and time again what a difference it makes when you have a medical team in whom you can put all your faith and trust.

I feel a bit anxious though. I have been away from home so much over the last few weeks and just snatching a bit of the forum when and where I can. Now we are whizzing to France until the 22nd July and Lord only knows what you will get up to while I am not here to tell you off. You and that bear are so badly behaved!

Hold me in your heart as I hold you and Karen so dear to me. Know that even if I am not posting, I am thinking about you and hoping you get lots of rest and KEEP WELL! If you do anything naughty or devilish, like being too blunt to forum members, ignoring advice or not doing what Karen tells you, you will be able to hear my voice tearing a strip off you. You are my Top Gun and I love you so much xxx

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 02 Jul 2014 at 21:30
Hello Topgun

Do you remember me maybe some of the others might ,I have been coming onto this great. website for 11 years,I'm still going striong had all the treatment HT RT HT for a long time now,PSA going up.

Have been reading your posts and what you have been getting up to !

Take care just wanted to be in touch again. We have posted a long time ago.

Take care.

Brian 2

Edited by member 02 Jul 2014 at 21:31  | Reason: Not specified

 
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