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Simon Story Chapter 2

User
Posted 03 Jul 2014 at 11:28

Spot on about good oncologist. Wish Neil had our second opinion guy last June, suspect he would have had Neil straight on chemo and possibly would have bought us a lot more time. Loved the post about the stuffed fig, Bri !

Cheers Fiona.

User
Posted 03 Jul 2014 at 11:31

I am so glad you said that first Lynn, re number of bodies , I am sure there is a obvious answer and Si will tell us but for now I can only assume that Si is an alien with 4 bodies.

BFN

Julie X

 

NEVER LAUGH AT A LIVE DRAGON
User
Posted 03 Jul 2014 at 11:46

I have no idea, with all of my scans there are 4 images, now you have mentioned it i will have to find out unless someone on here knows

 

Don't deny the diagnosis; try to defy the verdict
User
Posted 03 Jul 2014 at 19:53
Si you look so Skinny you need pizza, kebabs and fosters xxx
User
Posted 03 Jul 2014 at 20:12

Originally Posted by: Online Community Member

I have no idea, with all of my scans there are 4 images, now you have mentioned it i will have to find out unless someone on here knows

 

Si, good to see you back on the forum

I am guessing,  but could the second two be taken after you have contrast injected?

 

Paul

User
Posted 03 Jul 2014 at 22:03
OK time I stepped in! As you all know I am very much against holiday snaps being shown but if these pictures are how you look after going on an all inclusive holiday to Outer Mongolia then all is forgiven. Seriously they do give hope to others and I can see punters trying to download them and taking them to their specialist to compare with their own scans on their next appointment. Bri, unfortunately I can't see your picture, perhaps that is fortunately, but I gather it is of a dried up fig. I am using an iPad so perhaps that is why.

Going back to the scans I think Paul is right in that the 2nd two are after the contrast has been injected. Whatever like Allister (Alathays) who has extensive mets throughout his body yet still enjoys life and continues to take part in a number of activities, your scans Si give hope to those who are worried that any metastasis is automatically the end. You have shown that that is far from the case. Prostate Cancer is a funny old game, not in the Ha Ha sense, but in the way it is so diverse and goes down so many paths, if caught early enough it can be cured, later down the line it can be controlled. I have played the game for over 15 years, I might be about to lose the battle very shortly but when I was diagnosed all those years ago, 5 years was the initial target, never dreaming that the 5 years would be trebled. So I think newcomers should look at the positives and hope that we three and so many more bring, so as always,

Life is for living

Barry ( alias Barrington )

User
Posted 03 Jul 2014 at 22:55

I have moved this post to the start of a new thread.

 

Paul

Edited by member 05 Jul 2014 at 18:22  | Reason: Not specified

Stay Calm And Carry On.
User
Posted 22 Jul 2014 at 17:58

well another month another blood test

ALP 39  

PSA less than 0.01

Testosterone less than 0.01

Another month of Abbi, happy boy

Si xx

Cant use the less than symbol if you do it will not post http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-innocent.gif

Edited by member 22 Jul 2014 at 18:02  | Reason: Not specified

Don't deny the diagnosis; try to defy the verdict
User
Posted 22 Jul 2014 at 18:03
Your abnormal you :)

Keep knocking it into touch mate

Bri

User
Posted 22 Jul 2014 at 18:08
Si, what fantastic results mate.

I'm really chuffed to read this latest update.

So you'll be on form in London on Dec 3d, huh? : )~

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User
Posted 22 Jul 2014 at 18:51
Great news Simon, long may Abby do its job!
User
Posted 22 Jul 2014 at 19:16
Good news Si and feel free to drop In if you are nearby, it would be good to see you and Vanessa ,

Life is for living,

Barry (alias Barrington )

User
Posted 22 Jul 2014 at 20:27
Si superman long may these resuts continue xxx
User
Posted 22 Jul 2014 at 20:27

Well that's proved it then you are an alien.http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-wink.gif What fantastic results for you , do you deserve the name Si Superman absolutely . Honestly Si well done, I am so pleased for you.

BFN

Julie X

NEVER LAUGH AT A LIVE DRAGON
User
Posted 22 Jul 2014 at 22:11
So delighted to hear this, Si you are our talisman. Now you can have your holiday and really enjoy it.

Big love to you and Ness

Allison xxx

User
Posted 23 Jul 2014 at 09:46

Fantastic news, Si. Delighted for you and your family !

 

Fiona.

User
Posted 23 Jul 2014 at 13:56
Nice Simon, very nice.

Keep it that way.

Dave

User
Posted 24 Jul 2014 at 14:06

Thanks for all the comments guys, really appreciate it http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-smile.gif

Think i am starting to get a bit twitchy, 19 month HT and 12 months Abbi i am getting at the stage of one or both failing, and as i know my next treatment plan it has become very appealing to me.

My discussions with my Onco has always been if you pick the right time to change treatment then surely you can go back on that treatment as it has not failed you. makes sense to me http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-smile.gif

So scans next month, then big discussion i like my idea and will take a lot of convincing not to change.

Best wishes to all

 

Si xx 

 

 

 

 

Don't deny the diagnosis; try to defy the verdict
User
Posted 24 Jul 2014 at 15:04

Hi Si

I am catching up after being away for a couple of days. Your results are great news for you and Vanessa and an encouragement for those in the same or similar circumstances.

Best wishes

Alan

User
Posted 24 Jul 2014 at 16:09
Hi Si

Great news regarding PSA , and I like your logic,

Roy

 
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