Simon Story Chapter 2

it was posting those scan images that did it you have never been forgiven for managing to do something nobody else has. FFS I cant evenn post smileys or martian heads or anything.

results are terrific long may they continue

xx

Mo

Lovely scores Si x

Good news for you Simon.

atb

dave

Steve

Time for another Fosters Si

Arthur

Time for an update;

The last 7 weeks have been manic, thanks to working for a wonderful company, the last three years i have just worked from home not doing very much, but the person looking after my accounts left and they are in a bit of a mess. So back to many nights away, lots of work but everything is now sorted.

Jamie (my onco) still not happy about my decision to stop treatment he even wrote to my GP to have a word http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-innocent.gif So my last Zolodex was early September, scan results last month, all good and my latest bloods where PSA <0.01 ALP 37 Testosterone <0.4, seems to me my body must have been storing up the HT.

So next appointment with Jamie is the end of the month, and this is where i have a problem. When i came off treatment Jamie asked if Ness was happy with this, oh yes said I and when i got home Ness said is Jamie happy with this, oh yes said I. well the truth is neither was happyhttp://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-innocent.gif

Well ness is coming to the next appointment and i am going to be in big trouble http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-innocent.gif the nurses in the cancer unit are fighting over who is doing clinic that night with Jamiehttp://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-innocent.gif

This might be my last post http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-innocent.gif

Si xx 

fabulous results I will call you to talk about the other side of your post.

I do wonder why Jamie is not taking the opportunity to put you right under the microscope, if you are a willing patient?. There just has to be something different about your body and how it is dealing with this cancer. Some protein marker has turned itself back on or some other genomic anomoly, and it isn't Fosters either!! I know we call you Si Si Superman but you really do seem to be quite unusual.

chat in a bit

xxx

Mo

Hi Lyn,

Just looked back on my bio and when i started chemo in Jan 13 ALP was 239 and PSA was 2 ish so when active my cancer does increase my ALP.

My CT scan last month showed no soft tissue involvement, but Jamie did say that he has had two other patients with very low PSA with extensive mets and both times it went to soft tissue.

More Fosters needed http://community.prostatecanceruk.org/editors/tiny_mce/plugins/emoticons/img/smiley-laughing.gif

Si,

You're a 'one off'! Yours are incredible results.

If your body tells you that you're doing the right thing, then I would listen to it.

I steer well clear of giving medical advice, obviously, but there are some guys with PCa who just seem to defy all odds and have a good long spell off treatment.

Gut instinct works for me as regards when to start or stop treatment, but I do have a scan whenever I have the slightest worry about niggling pain anywhere in my body.

Long may you continue to confound!

(saying nothing about your porkies) ; )

All the very best,

George