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53 with PC

User
Posted 28 Feb 2021 at 07:38
I had private treatment, Jacques (work medical insurance) and my case certainly went to an MDT.

As Franci was alluding to, nearly everybody gains weight during HT. You may struggle to combine HT with weight loss.

Best wishes,

Chris

User
Posted 28 Feb 2021 at 07:44

Hi Jacques, if I may explain, in your first post you posed a question about which treatment course you should follow. I answered as no one from the Radical prostatectomy side had chipped in. I do not regret my choice, it was based on my own experience of my father having RT. Unlike you I only had 2 choices so the decision was easier.

Re HT and weight loss my only experience is what I have read on here - all negative. So your best shot at shedding pounds is before the HT starts.

The surgeon I saw said keeping thin was a the best defense he knew against getting cancer and avoiding recurrence so it it would be beneficial to you to lose as much as you can.

Edited by member 28 Feb 2021 at 07:45  | Reason: Not specified

User
Posted 28 Feb 2021 at 08:48
I didn't really have any choice, as radiation would effect my gut too much (I already have colitis, albeit mild). However, from the nomograms I've seen, the best chance of avoiding recurrence is HDR. From what I recall adding HT to that didn't change outcomes very much. However, others know more about this than me, so don't take my word as gospel.

Whatever treatment you're going for, I would suggest losing weight. I can easily lose a kg a week if I want and I'm only 67kg to start with.

User
Posted 28 Feb 2021 at 09:08

Thanks for the clarification. Having read your blog what you experienced sounded somewhat traumatic. Sorry you had limited options but have somehow got through and adapted. My father died of PC. He was old school and left it too late before complaining about it (Aged 82 back in 1990). Luckily (or not?) he left me a legacy. At least caught early and apparently stable.

I totally get what HT does to a man and the body. This will require a total life changing approach - especially with diet and exercise. As standard they've already stuck me on Bicalutamide. Being a nonsteroidal antiandrogen im guessing i'm already on HT. Still, it's not impossible to lose weight, it needs a complete rethink. I read (above) someone saying about snacking. I understand snacking is difficult to overcome but it isn't impossible to overcome. When it comes to weight lose those are the things you need to overcome. Getting into the right mindset is key. Something like 'this' is a good incentive to kick start that mindset.

As said earlier, I've adopted over the last 12 months intermittent or extended fasting. Other diets didn't work. I lost a good amount of weight. 20kg. Put about 15kg back on, because I adopted my old bad habits over last 4 months. I don't do that 16/8 nonsense, but literally OMAD. Occasionally, maybe every 3 months fasted a full +48 hours - drinking only black coffee or water. Nothing else. The most enlightening occasion, which I will do again, is 120 hours. Sounds mad? It wasn't. It was actually an amazing experience. I had so much energy. Wired. Felt 'clean'. It promotes Autophagy. Cellular regeneration. Cancer need glucose to survive. Promote ketosis then cancer cannot survive. Who knows?

I guess there is logic to it. I might even try starving this cancer by fasting after tonight. Dump those standardised tablets I was given (Bicalutamide). Do a two or three week stint (easy enough) and arrange a PSA test to see what comes back. If favourable then maybe an MRI? Nothing to lose. Only gain, if it clears things.

Not sure if people know but the longest fast was 382 days. The man lost 12st. Didn't die. He had plenty of reserve energy stored as fat. This he burnt via Ketosis. We have all been conditioned to eat little but often. 5 meals a day. Snacks. Processed foods. Those ideas were bad ideas. If you are not hungry at breakfast why eat toast? Because you are told you should have breakfast? Listen to your body, but be careful. Certain foods you must avoid. There are good books worth reading by Dr Jason Fung about this for anyone who wants to look at losing weight easily.

Interesting article on fasting and Cancer:

https://blog.supplysideliberal.com/post/2018/4/3/how-fasting-can-kill-or-slow-down-cancer-cells-while-leaving-normal-cells-unharmed

 

Edited by member 28 Feb 2021 at 14:38  | Reason: Link to article on Cancer and fasting.

User
Posted 28 Feb 2021 at 17:44

Lifestyle changes are advisedly best as an adjunct to not an alternative to medical treatment. Fasting m,ay help but won't cure.

Don't dump the Bicalutamide tablets. They are being given for a reason as part of a protocol. If you mess with that, you reduce your chances.

Just my half pence worth.

Edited by member 28 Feb 2021 at 17:46  | Reason: Not specified

User
Posted 28 Feb 2021 at 18:19
Don't stop taking the bicalutimide tablets. Assuming you're due to have an HT injection in the next few weeks, the reason you're on bicalutimide is to prevent "tumour flare" when you get the injection whereby the tumour can rapidly increase in size. It's really important to prevent that.

Best wishes,

Chris

User
Posted 28 Feb 2021 at 18:27

To be honest I do not know as yet what course of treatment I will go for. This cancer I have was discovered only because I had a slightly raised PSA level of 3.4.  I was told by the surgeon that it was likely that if I had done nothing for 5 years there would be a 100% chance I'd still be alive other than if I was killed by other means and not this cancer. This medication is given as per their guidelines on all diagnosed cases. Part of protocol - as you say. I do not see the point of taking these whilst I have not yet decided what course of treatment I will go for. I do not think they will make a huge difference to this cancer short term if I took them or not. At the moment they are doing me more harm with fatigue, hives and skin rash I'd rather not take them until I've decided what route I will take. At that point I will follow whatever instructions the specialist gives me and take whatever tablets they offer. It's early days.

Don't know why people get so excited by cancer. s*** happens.

Edited by member 28 Feb 2021 at 18:36  | Reason: clarity

User
Posted 28 Feb 2021 at 18:30

Not assuming anything. Nothing's decided. This cancer I have was only found because I only flagged a slightly raise PSA of 3.4. Once decided we'll do what needs doing.

Edited by member 28 Feb 2021 at 18:35  | Reason: Not specified

User
Posted 28 Feb 2021 at 19:25

I sort of agree with you about not taking the medication until you know what treatment you will decide on. 

Prior to covid I don't think you would have been put on HT until the treatment decision was made. I can only guess that now things are being delayed by covid they are putting everyone on HT as a holding measure. 

In your first post you described Active Surveillance as just delaying the inevitable. I would probably agree with you on that, but I would say that delaying these unpleasant treatments is a very good idea, of course not to the point of letting the cancer get too far advanced.

I would say that if Active Surveillance is still on the table don't start the HT. If you have already decided against active surveillance you may as well start the HT, as it will help any treatment you do have. Of course if the side effects are unbearable that is another story.

I do agree it is better to take a relaxed view to a cancer diagnosis, but sadly for some people the disease is more advanced and the prognosis not so good. 

Dave

User
Posted 04 Mar 2021 at 20:07

Hi Jacques

Hope you find the solution you are looking for. Great experience on this forum.  I'm sure you know >1kg weight loss per week often has negative long term effects on the body.    You obviously have great will power .

Regards

User
Posted 05 Mar 2021 at 09:39

Thanks for your message but that statement is just not proven. Don't know if you realise that living has a negative impact? You die eventually.

 
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