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Need some hope

User
Posted 25 Feb 2021 at 22:04

Forgot to say Skye28, would be very happy for you to PM me when you have a moment,

Rachel

User
Posted 02 Mar 2021 at 12:28

Originally Posted by: Online Community Member

Forgot to say Skye28, would be very happy for you to PM me when you have a moment,

Rachel

Hi - I have sent PM but not sure if you can see it as a new member? 

 

User
Posted 04 Mar 2021 at 08:43
Hi All,

I thought I would check back in. Husband has been on enzalutamide for over a month now. We are waiting for a very recent blood test result to show whether it has worked on his PSA which was 136. He is stage 4 and its spread to his lymph nodes and bones. Bearing in mind everything he is not doing too badly at all, he has completely changed his diet and is exercising everyday without fail. Still working but from home in a role where you do need to be switched on. I think working is making a real difference to his mental health.

Does anyone know the success rate when a man takes enzalutamide? I believe it works for most men but most men of his age dont have T4 metastatic cancer so stats arent the be all and end all of everything. He could move onto chemo of course but really trying to avoid that. He might need to go onto statins as his blood pressure is high and he has an appt with the Doctor tomorrow.

We are SO looking forward to the end of this lockdown and moving forward. It is so so depressing at present. Would love to think we could have a few holidays over the summer (not UK!)

User
Posted 04 Mar 2021 at 09:13
Hi there,

My partner is about a month ahead of yours. Stage 4 spread to distant lymph nodes below chest. Initial PSA was 177. He started Enzalutamide on Jan 21st and PSA 3 weeks ago was 4.84, so definitely working. Next blood test March 15th so will let you know. Blood pressure rise is i think a fairly common side-effect, unfortunately.

Sounds as though he is doing all the right things re: diet and exercise: that's really impressive. Let us know how he gets on and hope this helps.

User
Posted 08 Mar 2021 at 11:36
Just a quick update. Husband has been on Enza since end of Jan 21. His PSA score was 136. Its now 0.25 which is really really good news.

Could anyone say what the stats are for how long Enza works to surpress the spread of the cancer. He has a T4 diagnosis with a Gleason score of 9.

User
Posted 08 Mar 2021 at 11:44
It doesn't work like that Corrie - there are no stats. Usually, enza is given to a man once his hormone treatment has failed and the research data suggests that on average it gives a man who is castrate resistant an extra 12 months (although the range was 3 months to many years). There is no data for your situation as it is a new strategy introduced since the pandemic struck.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 08 Mar 2021 at 12:55
Thank you. I thought that might be the case. He has I guess done it a different way round to normal due to Covid. He is having little side effects but something is working.

I notice on this forum as well that some people dont want a prognosis or stats. It is what is is and as it affects us all differently stats can be meaningless.

 
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