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User

Posted 06 Feb 2021 at 20:36

I don't remember much about the tests I had but I do remember me 'peeing in a bucket' and having a biopsy, then being operated on to have my Prostate removed by the Da Vinci Robot in April 2015. It worked for me and have never had a problem since.

User

Posted 09 Feb 2021 at 18:13

The MRI scan completed without incident - in and out of hospital in just over an hour including 30 minutes in the new scanner. No problems at all; I thought I would be enclosed but I went head first into and beyond the scanner so had a lovely view of the ceiling. Noisy but not an issue. Marvellous NHS technicians. Now to await the outcome and then the bone scan next Monday.

User

Posted 15 Feb 2021 at 09:37

I was due a bone scan today but on Friday heard that the appointment was cancelled as the scanner in Carlisle had broken down. So it next week's biopsy is the next step. I don't expect that whatever process that is needed will not be delayed.

Did anyone drive to and from the biopsy? (Hospital is 5 miles away)

User

Posted 15 Feb 2021 at 10:28

I did and it wasn't a problem

User

Posted 15 Feb 2021 at 15:46

I normally use a motorbike for hospital appointments as the parking is easier. On biopsy day I decided to take a taxi, just in case. I think I would have been fine in the car, probably would have been fine on a motorbike but didn't fancy taking the risk.

Dave

User

Posted 15 Feb 2021 at 16:28

J had his biopsy on the way to work - driving was fine.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 15 Feb 2021 at 21:40

I headed in to the one stop shop on 1st July 2020 following a 54 ng/ml PSA test the week before, and in three hours underwent a DRE, MRI scan, and a Biopsy.

I left with a four week supply of bicalutamide tablets, a T3 prostate cancer diagnosis, and the promise of Bone and CT scans in the very near future.

I was advised not to drive myself to the one stop shop.

The scans were both done on the same day 10 days later. Full marks to the NHS for efficiency.

Edited by member 17 Feb 2021 at 09:01 | Reason: Correct a spelling mistake

User

Posted 24 Feb 2021 at 15:55

I had the biopsy this morning and confirmation of cancer with a score of 5 (range 1 to 5) on scale I don't recall the name of.

Got home to find an appointment for bone scan next week in Newcastle - about a 90 minute drive so it will be a full day out.

The biopsy uncomfortable but bearable.

I drove to and from hospital without problem. Now 4 hours later taking it easy with slight discomfort around the anus.

Next step see the results of all in 2 to 3 weeks and decide treatment,

My brother insists that we may all choose where to be treated -arguing that Carlisle would be unlikely to be the best option. What do others think?

I don't know how long a waiting list there is for whatever treatment - anyone have ideas on going private (I am by no means wealthy and do not have insurance but maybe it would be money well spent)!?!

User

Posted 24 Feb 2021 at 16:46

I think wait for your full diagnosis first - the multi-disciplinary team will look at your case in detail and determine which treatments are available and suitable to you. Carlisle may only offer treatments that are available in Carkisle; you can then do some research and if there are treatments that interest you and available at Newcastle, you can ask for a referral.

We self funded for private treatment; it is nice to have a private room and a coffee machine at clinics but it cost a fortune and the treatment failed so J had to have salvage treatment 2 years later. The usual aftercare and support is not always available on the NHS for patients who go private. Lots of things to think about but get your full diagnostics first.

On the flip side, my dad paid £25k 23 years ago for nerve sparing surgery (which wasn't available on the NHS then) and he has only had a recurrence in the last 2-3 years

Edited by member 24 Feb 2021 at 16:49 | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 24 Feb 2021 at 17:27

And I had private surgery for my kidney cancer but DIDN’T have a private room. I was in an NHS urology ward in an NHS hospital, because the private hospital didn’t have the Da Vinci robot. Private treatment doesn’t necessarily equate to more comfortable rooms, etc.

Chris

User

Posted 10 Mar 2021 at 18:40

I had a bone scan yesterday and today I pre arranged appointment with consultant urologist.

1. He confirmed PC with prostate outside capsule.

2. Gleeson 4 + 4

3. T3/4N1M1B

4. From tomorrow hormone tablets Biicolutomide 50 mg for 28 days.

5. On 14 th day Zoladex injection = 10.8 mg

6. Radical treatment i.e. surgery not possible

7. Indications it may have gone into pelvic bone but awaiting bone scan results

8. 5 years max survival but depends on new treatments!

Thoughts and advice please.

Thank you

User

Posted 10 Mar 2021 at 20:33

Don't believe the 5 year survival thing - the urologist sounds like a bundle of laughs. We have men here with your diagnosis who are still living a good life 10 years later and in a few cases, 15 years or more. I hope that the urologist has now referred you to an oncologist?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 10 Mar 2021 at 20:52

He says he will make an appointment with an oncologist - I guess when bone scan results are available.

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