Originally Posted by: Online Community MemberSome people says on here ohhh after 2 weeks of RP surgery I started running marathon, or cycling etc.
Do not believe any of them PLEASE!!they just wants to satisfy their ego and physically its impossible to do such exercises.
I don't think I've seen anyone say that after 2 weeks, but definitely after 6 weeks it's possible. Walking is very important post surgery though, and within a week to 10 days you should be well capable of walking about half a mile (if you were before surgery, that is) although it will be a bit slow doing the "catheter bag shuffle".
Although I was getting thoroughly bored of walking, I did wait the full 6 weeks before trying to ride my bike, and then I started back gradually, trying to keep the first few sessions to half an hour.
My post-operative instructions said no heavy lifting or vigorous exercise (including hoovering and lawn mowing) for 4 weeks (because of hernia risk). I tried a short run at 4 weeks, but I hate running anyway. It made my calf muscles ache, so I didn't repeat it. I didn't like the sound of requiring hernia surgery, so was very careful with lifting for about 2 months.
If you are extremely fit to begin with, it can really help speed up surgical recovery. Also the surgery is a lot easier to perform if you are not overweight. Recovery time will also depend on genetics, diet, age and general life circumstances as well.
I don't think this kind of comment is at all helpful. You don't know how he will feel. You only know how you feel/felt. It's perfectly valid to share your experiences, but trying to project them onto others is a step too far.
Edited by member 30 Jan 2021 at 11:25
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_____ Two cannibals named Ectomy and Prost, all alone on a Desert island. Prost was the strongest, so Prost ate Ectomy. |
User
I'd just add that the daily blood thinning injections you give yourself for a month after surgery DO NOT hurt. If they do, you're doing it wrong! Pinch a fold of flesh to inject into and it's completely painless. (I was on them after my surgery for kidney cancer.)
Chris
User
Originally Posted by: Online Community MemberI'd just add that the daily blood thinning injections you give yourself for a month after surgery DO NOT hurt. If they do, you're doing it wrong! Pinch a fold of flesh to inject into and it's completely painless. (I was on them after my surgery for kidney cancer.)
Chris
Agreed, the needles for the anti-coagulant injections are so short and fine you can’t really feel the injection, in my case there was scarcely a mark left behind and never any bleeding.
Cheers, John.
User
Originally Posted by: Online Community MemberI'd just add that the daily blood thinning injections you give yourself for a month after surgery DO NOT hurt. If they do, you're doing it wrong! Pinch a fold of flesh to inject into and it's completely painless. (I was on them after my surgery for kidney cancer.)
Chris
Plus not all men have to do these self-injections - some hospitals require them for everyone post-surgery, some only for those they think are at particular risk of DVT
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
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Hi Paul.
Thanks for update, don't beat yourself up as you are still in the curative 'camp'. Move onward..
This is the key question, as Peter posts.
... Quote ...I'd be wanting to know how confident the surgeon is of taking it all if I was seriously thinking of going that way.
Ask about MRI, location of lesions etc , can clear margins be achieved. Any possible attempt for nerve sparing. Surgery has served me very well. Any doubts the pendulum swings towards RT, I feel. I don't believe any other treatment options are available.
Gordon
User
Some hospitals require them for all inpatients, even if there's no operation taking place.
User
That's preposterous! We have both been inpatients a number of times and neither of us have ever had to do this, even after surgery!
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
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Hi Paul,
Sorry you find yourself in this situation. Your diagnosis sounds very similar to mine, although of course everyone's experience of surgery or radiotherapy will be different.
Pre-op PSA of 20 and G9 with spread into SV I personally wanted the reassurance of having the prostrate completely removed, and the confirmation that comes from the post-surgery pathology to confirm the grade and spread. But I'm sure there are equally valid reasons for opting for RT.
The surgeon made no promises about nerve sparing, other than he'd do what he could. I think being relatively fit and otherwise healthy helped with recovery from the surgery. And, personally speaking, I was not bothered about the daily injections. Best advice I received was to walk a bit each day, and each day walk a bit further.
In my case, although surgery was done on the basis that the intention was curative, I was told afterwards to expect further treatment at some point. Nearly two years later I'm still <0.1 on the quarterly tests - so far so good!
I wasn't offered hormone therapy (which comes as a surprise to some people) but point of mentioning it is that you'll encounter lots of views about different treatment options, and not everyone is offered exactly the same choices.
User
Cheers Chris,
Sounds very similar to my situation & I hope your positive outcome long continues.
I start my hormone treatment this Fri in daily tablet form & also an injection next Mon, I'm a bit concerned it's gonna play havoc with my system for a bit but I'll take what I can get to keep the cancer at bay.
The consultant explained its required to halt my testosterone as this is what feeds the cancer whilst I wait for my RP/RT to begin, but the pandemic is causing uncertainty with the timeframe & I know there are other unfortunate people been waiting on their treatment due to this.
I'm a pretty positive person who will fight this tooth & nail anyhow and encouraging posts like yours just show me why 👍
User
For what it's worth, I was diagnosed in the January and surgery didn't happen until the May. But I can only imagine what it must be like to have to deal with all the uncertainty around the pandemic as well as this. So you have my sympathies!
User
Hello Paul
I was also diagnosed in October, had a PSA of 383 with a gleason score of 9 (4+5), tumour is outside the prostate and areas detected in lymph nodes around that area. At 53 years old felt my world had collapsed. I wasn't offered surgery but immediately put on hormone tablets and have just finished 20 sessions of radiotheraphy. I might be lucky in that I have private health cover with my job and I was put on a fairly new drug called Apalutimide, not sure if the NHS offer it, at the end of December.
This combined with the radiotheraphy resulted in the PSA now dropping to 0.17, the plan is I'm now going to be tested every 3 months and on the Apalutimide for 2 years.
There are so many different treatment options that people get offered it's so difficult to understand which one to take, in some ways I'm glad I haven't had surgery as your hear of the potential life changing side effects but it is such a difficult balance as we all just want to be made better.
Best of luck with your journey.
User
Apalutimide was in the timetable for NICE approval in may 2020 but was delayed at the request of the manufacturer. They published the data from their final trials in January 2021 so hopefully it will be approved by NICE for NHS use this year.
However, Paul.1 doesn't fall into the suitability group as his onco believes that he isn't metastatic.
Edited by member 01 Mar 2021 at 14:39
| Reason: Not specified
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
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