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User
Posted 19 Dec 2020 at 21:07
Good luck , and if they get it I hope you will be fine my friend. Meanwhile I feel I’m in tatters mentally and physically with everything else considered. But I’ve had a superb 5 1/2 yrs since surgery. There is light at the end of the tunnel if they sort it and then you help yourself after. Good luck ok

If life gives you lemons , then make lemonade

User
Posted 19 Dec 2020 at 21:54

Good luck for the 23rd. Hope all goes well.

Ido4

User
Posted 21 Dec 2020 at 00:12
Hi,

Thanks for the support, it is helping me; to those who have already been through this thank you. For without those threads I may have been more reticent to doing anything without more obvious signs. I still don’t have outward signs of the lurking inner troubles.

Still having “Is the right thing” thoughts though after reading the surgical permission form, not doing anything would be idiotic now I understand my situation. I am sad that anyone has to go through this.

At the beginning of October I had no idea I would be here, since then it’s been scary BUT the clear information here and personal stories have helped me immensely, thanks for the openness. In the last week I have discovered, a senior colleague had an RP 10yrs ago, another colleague is having a test, and yesterday I found out a relative is awaiting an MRI for a high PSA.

Pelvic floor exercises underway..

This year is one rolled up cluster of nastiness, and the last few months I have been wishing away the days to the next appointment; need to regrow the positivity!

Buzzy

User
Posted 21 Dec 2020 at 07:50

Good luck for the 23rd and I hope you have a smooth recovery. 

Kev. 

User
Posted 22 Dec 2020 at 18:28
Good luck tomorrow Buzzy👍
User
Posted 24 Dec 2020 at 20:39
Well that was a fun 48hrs...

The NHS when it works well, really works well, and yesterday it really did that for me; I am grateful for that and all the attention I received during my operation from all the professionals I met.

I had two very experienced consultants operating and they did the best job I could have asked for. I am now home after my procedure with a few more holes and a better understanding of the cancer and the process of its removal. The operation I was told was “Difficult” and I was in theatre for over 4hrs.

I now have the additional plumbing installation that I already hate and about 2 weeks to enjoy it.

I will not know if I need further treatment until my PSA level can be measured in a few weeks, but at least I am home for Christmas with my family and the instigating organ has been removed.

I wish that all the members of this online community have a good Christmas, and a PC free new year.

Buzzy

User
Posted 24 Dec 2020 at 22:07

Hi buzzy, happy Christmas, I guess. I'm impressed at how fast you have been treated, well done NHS. I don't know how much you intend drinking over Christmas, but I found the main advantage of the catheter and bag was not having to get up in the middle of the night for a pee. Every cloud has a silver lining. 

Dave

User
Posted 24 Dec 2020 at 22:19

Great to see you on the other side of your op. I hated the catheter but time flies and it'll soon be out. 

Have a great Christmas and smooth recovery. *raises glass*

Cheers, Kev.

User
Posted 24 Dec 2020 at 22:30
Best of luck Buzzy!

If life gives you lemons , then make lemonade

User
Posted 25 Dec 2020 at 15:41
Christmas Day,

What a weird day, spent most of it finding out how to manage the Catheter and how to wear it; “Cowboy” (Thigh) or “Secret agent” style ? (Shin) Also amazed at the bodies ability to produce mucus on demand...( Too much detail?) I can’t wait for it to be removed already!

Epiglottis is a mess due to surgery yesterday, permanently feeing it in my throat, Family being great despite my desire to nip at no notice to return dirigible quantities of CO2 and methane back to the atmosphere! No Farts are NOT trustworthy creatures at this stage.

Noticed some beverages appear same leaving as arriving in the body, must try more complex fluids like beer for scientific reasons.

Who would have thought a good Christmas present would be something someone else had taken away?

Buzzy

User
Posted 25 Dec 2020 at 16:30

I liked secret agent style. Go out for a walk in the park, notice the bag is near full, pretend you're tieing your shoe lace, surreptitiously open the valve, then off you walk. No looking for public toilets or sneaking into McDonald's. 

Dave

User
Posted 26 Dec 2020 at 11:43
Onwards and upwards Buzzy....

OH was secret agent as well, it's a bit more convenient. You will get into a routine with the catheter and time passes quite quickly and before you,know it, it's 'out' day. It's a good day.

Keep yourself moving as much as your body lets you. Walks round the garden turn into walks down the road and so on.

Take care

LW

User
Posted 26 Dec 2020 at 20:46

Originally Posted by: Online Community Member
Christmas Day,
What a weird day, spent most of it finding out how to manage the Catheter and how to wear it; “Cowboy” (Thigh) or “Secret agent” style ? (Shin) 

Secret agent style for the win...

https://youtu.be/VncH-WYbcS4 

_____

Two cannibals named Ectomy and Prost, all alone on a Desert island.

Prost was the strongest, so Prost ate Ectomy.

User
Posted 28 Dec 2020 at 00:23
So much stuff to take in sometimes, the bit about catheters getting blocked by clots and passing blood after 4 days with no issues I had today....leg bag blocked and learned new plumbing skills...thank the laws of physics... as everything shut today it seems.

Sorted after a bit of panic but feeling better now gut swelling receding and changing to bruises.

I have a routine now that helps, there has to be a better design bag system!

Buzzy

User
Posted 28 Dec 2020 at 00:30

😀😀😀😀

That made me laugh thanks!

The straps are rubbish though and the bags I have have poorly designed valves, Wine bag...

Hmmmmm? That’s a thought?

Buzzy

 

User
Posted 28 Dec 2020 at 09:52

Originally Posted by: Online Community Member

😀😀😀😀

That made me laugh thanks!

The straps are rubbish though and the bags I have have poorly designed valves, Wine bag...

Hmmmmm? That’s a thought?

Buzzy

I have a few of the large overnight bags left that I offered to my son (med student) as wine containers. If they were allowed to have parties, I think it would be very funny to serve wine from one. 

With catheters, I think the most important thing is to keep it REALLY clean to avoid infection. I used the shower attachment, standing up in the bath. Made the mistake of trying soap once. (Something you only do once - it stung the urethra quite sharply.) My instructions said clean the catheter every time you have a bowel movement.

_____

Two cannibals named Ectomy and Prost, all alone on a Desert island.

Prost was the strongest, so Prost ate Ectomy.

User
Posted 28 Dec 2020 at 12:09

Unfortunately hospitals issue what they have got , not what is best. By the time most of you get it sorted the Catheter will be out. 

Thanks Chris

User
Posted 28 Dec 2020 at 23:36
Catheter hints and tips...In the morning I will not...

A) Leave leg bag valve open after decoupling night bag.

B) Don’t point coiled hose at face after the above.

C) Don’t squeeze full night bag when trying to tear off the drain tab over the loo.

D) Try not to drop coiled hose on floor after tearing off the drain tab.

Oh what fun!

Buzzy

User
Posted 29 Dec 2020 at 10:56

It’s a steep learning curve! 😅

Ido4

User
Posted 29 Dec 2020 at 13:57

Wishing you a smooth recovery Buzzy. Was my husband’s 5 month post op ‘anniversary’ on Sunday.

 
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