HIFU or Full Prostectomy?

User

Posted 17 Nov 2020 at 01:38

Just to say hi as my husband has chosen to go down the focal treatment path since his diagnosis with a large Gleason 6 tumour at the end of 2016. He has a complete choice from AS to the radicals of RP or RT.

He chose focal due to a low risk diagnosis but with at 53 he wished to avoid side effects particularly incontinence and ED and to have minimal impact on his career.

He has now had 3 focal treatments ( 1 focal laser ablation in the USA early 2017 followed by a focal HIFU early 2020 in London ( reoccurrence now graded G7 (3+4) which need a repeat this Autumn. I have a thread for the full back story

So not a straightforward journey at all but a QOL choice and of course monitoring has to be ongoing but then it does for all is my understanding.

Good Luck

Clare

User

Posted 01 Dec 2020 at 08:44

Hi looks like you are in the same position as my husband, diagnosed nearly two weeks ago and decided to go for HIFU, hope we have made the right choice 🤞

User

Posted 01 Dec 2020 at 11:09

All the best with it, I initially made contact with a private clinic in London and nearly one month on I am no further foward after a phone call from them where I gave them all of my details, then I sent another email to chase which was read and nothing has come back. so I'm not going to mention the clinic but if they cannot get it right at the start then I have no faith in them

Today I have an appointment with an oncologist to discuss that route so I have many questions for him and I hope at the end of it I'm clear in my head which route to take

all the very best to you its not easy whatever route you take but I know I am one of the lucky ones in that it has been caught early

Edited by member 01 Dec 2020 at 11:32 | Reason: Not specified

User

Posted 01 Dec 2020 at 15:32

Hi Audiman

Hope today goes ok

Clinics can be a bit hit and miss. When I found the Prof Whocannotbenamedhere I found things very refreshing as they embrace automation plus his support staff and colleagues made the whole process very simple once I decided surgery was the route. My only regret was waiting so long to get a follow up PSA (July 2019) after being given the all clear by my local team (February 2018). Local team said to get my PSA done every 6 months but leaving it 18months may not have been prudent as I went from PiRADS2 -> PiRADS4.

Also UCLH team are definitely worth talking to as have latest gear and leading edge skills plus they have a private facility next door I think. In my view its worth spending a few hundred quite to get a couple of different views.

Best of luck and keep us posted!

Simon

User

Posted 02 Dec 2020 at 07:03

Many thanks Simon, I had what I felt was a good meeting with an oncologist who I spent at least 45 mins with and he went through and explained everything with various options available. He has suggested the best course of action based on my case would be stereotactic Radiotheraby and he is also going to cost Probeam Radiation which I have been reading about but I know its not available on the NHS.

I felt a lot at ease after speaking to him and I have never had anything but praise for all of the staff at the hospital as from the very begining I have always been seen very quickly etc.

The problem they have at the hospital though is there is a delay in having the procedure for a rectal spacer to protect the bowel as he said they have a back log and are only allowed to do two per week??. My case is not ultra urgent so its not such a big deal but now that I know action needs taking I just want everything sorted and get it all over with.

I totally agree with you about having a few opinions and if you have the time then take it and get as much advice as possible, I consider that I am one of the very lucky ones here that this has all been caught at a very early stage.

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