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18 years with metastatic prostate cancer – operation number three, but no good news for me – the end

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User
Posted 07 Nov 2020 at 22:21

That's a hell of a post.    You write well you could tell us more about you, whether you're a follower of Johnny Rotten.  I can't say I was at the time but sometimes he's interesting.

User
Posted 08 Nov 2020 at 05:27
David,

Thank you for updating us us on your situation although it makes sad reading. I am very sorry your prognosis is not better after so much you have gone through to treat this rotten disease. I hope you will prove your consultants wrong and live well beyond their upper assessed time but also that you can still enjoy some things even if this means being heavily dosed up with pain killers.

Barry
User
Posted 08 Nov 2020 at 19:08
David ,

I am shocked and sorry to hear this news

Regards Barry

User
Posted 08 Nov 2020 at 19:12

Switching from pred to dex made abi work for another year for me.

User
Posted 08 Nov 2020 at 19:14

Thanks Bri.  Hope you have a good one too.  

User
Posted 08 Nov 2020 at 19:16

Thank you gilly 

User
Posted 08 Nov 2020 at 21:46

Dex makes me crazy John. Pred not so bad. 

User
Posted 08 Nov 2020 at 21:48

Thank you Peter. I do like a little bit of punk. Music with guitars is my thing. Love Radiohead. 

User
Posted 08 Nov 2020 at 21:50

Thanks Barry. I’ve realised that coming off the opiates is not something I have to worry about now, and am letting fentanyl do it’s work. 

User
Posted 08 Nov 2020 at 21:51

Thanks Barry. It’s disappointing, but I’ve been preparing myself for a while now. 

User
Posted 09 Nov 2020 at 12:49

Hi David

So sorry to read the latest update, you’ve thrown nearly everything at this. Did the guys at Windsor mention Actinium 225 for the bones or Thorium 227? Which I believe is on trial.

I hope you have a pain free Xmas and a wonderful time with your family.

all the best

Roy

User
Posted 09 Nov 2020 at 13:04

Thanks Roy. It was discussed but they couldn’t do it at the time - so I would have had to stop and go over to Germany. 

User
Posted 09 Nov 2020 at 20:25

Hi David,

Thank you for sharing your story with us. Your humility and acceptance are astounding X

User
Posted 09 Nov 2020 at 21:25

Thank you S.  

User
Posted 10 Nov 2020 at 08:35

Hi 

Just reading your posts and I’m incredibly sorry that you find yourself in the position you are. Your posts are honest and frank and we all appreciate how brave you are. None of us want to be on here but find ourselves with this strange bond with others we never knew before. When someone posts something on the forum that touches others it’s a very powerful thing, and you have certainly done that and I only speak for myself that I’ve been inspired, saddened and touched by your journey and your bravery.

Have to the most incredible Xmas and hold tight to the ones you love 

 

take care

 

Carlos

User
Posted 10 Nov 2020 at 09:02

Thanks Carlos. You have a great Xmas too. 

User
Posted 10 Nov 2020 at 11:06
Just been reading this thread. Well my 16yrs has been a picnic compared with yours. Can only echo above comments such as  informative frank post, bravery, fighting spirit and sincerely hope Xmas is as good as you all want.

Ray

User
Posted 10 Nov 2020 at 11:25

Thank you Ray. 

User
Posted 16 Nov 2020 at 12:07
Hope you are doing ok.

Thinking about you.

Gilly

User
Posted 20 Nov 2020 at 17:13

Hope you are doing OK and praying you get to spend Xmas with your lovely family xx

Debbie xxx
 
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