50 and recently diagnosed

User

Posted 19 Oct 2020 at 22:12

Yours sounds similar to my case although Your PSA much higher and I am N0M2. Treatment options offered very similar

Started decapeptyl 2 months ago and Chemo due to start in next week. This will be followed by RT next summer. I’m interested that you are offered Enzalutamide as my Onco was not sure when best to do RT if I went down that route.

I have also been accepted on the ATLANTA trial which I think you may be eligible for If interested

http://imperialprostate.org.uk/atlanta/

User

Posted 20 Oct 2020 at 08:09

Originally Posted by: Online Community Member

As to radiotherapy, I may be wrong but you may get just 6 fractions opposed to what the above post indicates, I suggest you check with your doctor. Usually you have more if you are deemed cureable but then you would not usually have chemo/enzaclutamide so not sure what they have indicated?

Certainly I believe this was true until very recently but more and more centres seem to be coming to the conclusion that it is worth treating advanced cases with upfront radiotherapy if there are only a few sites where it has spread.

I have mets in pelvis and one rib have been offered chemo followed by 20 fractions total of 55Gy

User

Posted 20 Oct 2020 at 17:44

Originally Posted by: Online Community Member

I have also been accepted on the ATLANTA trial which I think you may be eligible for If interested

http://imperialprostate.org.uk/atlanta/

I thought that was closed to new trialists?

Damn, just seen one of the eligibility factors is 6 months or less since dx 😕

Edited by member 20 Oct 2020 at 17:51 | Reason: Not specified

Good luck to everyone coping with the insidious big C

User

Posted 20 Oct 2020 at 18:21

Thank you, I will speak to the Oncologist at my next meeting which is less than 3 weeks away to see what her thoughts and views are on the trial.

User

Posted 20 Oct 2020 at 18:40

Originally Posted by: Online Community Member

I have also been accepted on the ATLANTA trial which I think you may be eligible for If interested

http://imperialprostate.org.uk/atlanta/

I thought that was closed to new trialists?

All of the local centres are closed due to Covid but they are still recruiting at Imperial College I believe unless it has changed in the last fortnight. I contacted them directly to get information.

User

Posted 22 Oct 2020 at 08:52

Originally Posted by: Online Community Member

All of the local centres are closed due to Covid but they are still recruiting at Imperial College I believe unless it has changed in the last fortnight. I contacted them directly to get information.

My reading of it (and I may be wrong) is up front chemo excludes acceptance? I will email the contact address just to confirm, unless one of the PCUK folks knows for certain?

Good luck to everyone coping with the insidious big C

User

Posted 22 Oct 2020 at 10:02

Jay Kay and JasperM my oh was diagnosed in March with advanced pc aged 53. He was offered the option of chemotherapy or enzaclutamide. I think they were unsure about whether the chemo would be disrupted and said that the Nice guidelines were offering the latter as an alternative at that moment in time. We did a lot of research and went for chemo. He’s just finished his sixth and final and they’ve now said they’ll do six rounds of ‘Low-dose’ radiotherapy before Christmas. The oncologist said this is the current thinking with treatment for advanced disease.

User

Posted 22 Oct 2020 at 10:14

Thank you Skye28. I feel like I am now armed with quite a few questions for my next meeting with the Oncologist.

Edited by member 22 Oct 2020 at 10:16 | Reason: Not specified

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