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Just diagnosed yesterday

User
Posted 23 Oct 2020 at 19:13

Just watched you YouTube video Kev. Tough to do but I really appreciated you doing it. I am 3 years since my Stage 4 diagnosis and most of the time I now feel a renewed joy in the little things with heightened awareness - the smells of wet grass and leaves, for example. Perhaps it is because, like you, I have now really realised that I only have one life and this is it and it is the hand I have to play. Thanks.

Alan

User
Posted 11 Nov 2020 at 16:16

Finally a little good news to post on this journey.

Blood test three weeks ago showed my PSA down to 13 from 82

Now two weeks into my first month on enzalutamide another blood test and a call from Oncology revealed that my PSA is down to 3 and my calcium score down from almost 900 to 300 with virtually zero side effects so far.

Oncologist delighted with the results so I have to agree with him, if he is happy that makes me happy.

Early days I know but anything positive is a move in the right direction, I still feel as though I am walking on a frozen pond, each new step that doesn't go through the ice is a fantastic relief but there is still another step to take.

 

 

User
Posted 11 Nov 2020 at 16:25
Brilliant, Phil
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 11 Nov 2020 at 16:57

Great response Phil.

Ido4

User
Posted 11 Nov 2020 at 18:26

Excellent news, don’t stop believing 

Dream like you have forever, live like you only have today Avatar is me doing the 600 mile Camino de Santiago May 2019

User
Posted 13 Jan 2021 at 12:11

Hi all

Just an update as promised

Call this morning from Oncology Pharmacist, PSA down to 1.4 and Bone markers within normal levels with all other bloods normal. Next test now moved out o eight weeks from the two that has been the norm.

All good news on that front but I must admit with Christmas, New Year, daughters 14th Birthday all with a week and the announcement from my son of a new grandchild due in June, its all become a little overwhelming.

I have with the help of my wonderful wife managed to stay positive so far but when you get these markers in life although you can say "ok lets aim for the next one" It was difficult with so many all together, once the "I wonder if I will see another thought" came into my head I was stuck with it and the depression that came with it.

Covid doesn't  help, with my wife booking some dates for caravan hols with her usual bubbling optimism both about the virus and my condition whilst I was hitting a low only made the issue worse before my brave front cracked and I was reduced to tears, only to get a rebuke for not telling her how I was feeling, even though she had noticed my mood and was trying to cheer me up without saying anything openly. 

At least now with the appointments moving to 8 weeks I can try and put it back in the box in my head without the constant reminders and needles. I have been advised about counseling but feel its not for me, I need to be able to block it out so the less I have to see or speak to anyone the better, being on here is enough and gives me support when I need it so far.   

Oh Happy New Year and lots of them to everyone on here

User
Posted 14 Jan 2021 at 11:35

I would enjoy the good news.

I have been on hormone treatment for one year. My PSA went from 852 to 1.5. Now the hormone treatment has stopped working and my PSA is now back to 626 and still going up. 

I'm reduced to going to the experimental cancer medical team and put on trial treatments to see what happens. I have not been told how long I have got yet. I am 62.

User
Posted 14 Jan 2021 at 14:24

Great PSA result Phil. Bone marker results are excellent too.

Sorry you are having problems with low mood, you are not alone.

 

Ido4

 
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