I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

<12

PSA Test Good But ED Problem

User
Posted 19 Aug 2020 at 06:44

Thank goodness for this forum! Your all so helpful. Thank you

User
Posted 19 Aug 2020 at 08:11

If you buy a pump yourself, ask for a VAT exemption form first.
You are buying it as a medical appliance (zero rated), not a sex toy (20% rated).

If you obtain through iMEDicare (self purchase or prescription), they will provide you with the free training you would have received at a pump clinic. This training is really important - it doubles the chances of using the pump successfully at home afterwards. At the moment, this is done over a video call, due to COVID.

User
Posted 19 Aug 2020 at 10:34
You have applied for your prescription fee exemption certificate, haven't you?

Makes / models approved for NHS prescription include:-

Osbon Erecaid Esteem

SomaErect

Farnhurst Elite

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 19 Aug 2020 at 10:45

Thanks Lyn. I live in Wales so prescriptions are currently free here. Whether that applies for an expensive pump I'm not sure but will check. 

User
Posted 19 Aug 2020 at 11:16

Originally Posted by: Online Community Member

Thanks Lyn. I live in Wales so prescriptions are currently free here. Whether that applies for an expensive pump I'm not sure but will check. 

 

Doesn't everyone with a cancer diagnosis in the UK get free prescriptions for five years?
(It's likely more a question of whether or not you can get someone to write you one out of their budget)

_____

Two cannibals named Ectomy and Prost, all alone on a Desert island.

Prost was the strongest, so Prost ate Ectomy.

User
Posted 19 Aug 2020 at 14:40

Originally Posted by: Online Community Member

Originally Posted by: Online Community Member

Thanks Lyn. I live in Wales so prescriptions are currently free here. Whether that applies for an expensive pump I'm not sure but will check. 

 

Doesn't everyone with a cancer diagnosis in the UK get free prescriptions for five years?
(It's likely more a question of whether or not you can get someone to write you one out of their budget)

 

Yes,  but you have to apply for an exemption certificate first. 

It isn't quite that straightforward; anyone being treated for cancer or who needs treatment for the side effects of cancer treatment is entitled to apply. So men who opt for active surveillance don't always get it :-( Once the 5 years is up, you can only reapply if you a) are still being treated or b) are still being treated for the side effects. Fortunately, ED solutions count as ongoing treatment. 

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 19 Aug 2020 at 15:25

If you haven't got your exemption yet, when you pay for your prescription meds, ask for an FP57 receipt (a till receipt won't do).

Then when you get your exemption card, take it with your FP57's into any NHS pharmacy, and they'll repay your prescription charges.

User
Posted 19 Aug 2020 at 15:42

I got my pump for free through the continence clinic which was part of the follow up. Had a consult with someone from the supplier company on usage and then it was basically "onward my son and lube" :)

Make sure you use it! Through low level depression I let it slide and I am having an uphill battle getting going again.

You can get prescription exemption through your GPs but may have to fight. Mine were total d*cks pretending they dod not have the forms (I suspect they did not want it coming out of their budget) so my lovely onco nurses at the hospital sorted it.

Edited by member 19 Aug 2020 at 15:46  | Reason: Not specified

User
Posted 19 Aug 2020 at 16:43

Andy
Before I was able to get a prescription pump I got one from love honey and then one from Amazon. They came with a squeezy ball type pump which soon failed. So then I got a seperate trigger type pump part only, as an accessory, different inserts/seals and rings are also available seperately. The advantage with the prescription pumps is they come with a cone to help put the ring on. The advantage with the cheapies is they are lighter and I can use it without support while standing, the seal/vacuum can support the weight of the pump, so shaving showering etc. It just needs a good seal (trim close or shave). I have found I can, with the cheapy, after a couple of inflations remove the seal/comfort insert and put a ring on the pump and then once erect carefully slip the ring off the pump and onto the penis. Slightly more difficult but possible is to do a couple of inflations then put a ring on the penis and squeeze it all into the pump and still get a seal. Then pump it up with the ring already on.
One thing to be careful of with using the pump without the seal is not to suck in the skin and nerves near the base. If you see a bulge at the base when pumping release the vacuum and gently pull some skin away from the edge of the pump and try again.
If I had to choose between the Somarect and the cheapy it would be the cheapy every time. The only other advantage really is you get an excellent selection of rings with the Somarect, but you can buy them seperately anyway.

Good luck

Cheers
Bill

Edited by member 19 Aug 2020 at 17:04  | Reason: Not specified

User
Posted 19 Aug 2020 at 17:05

"without support while standing"

For the proper medical one I guess one could tie some string around ones neck and loop it to the inflated pump and wander around with that attached - just don't walk into any walls :) :) :)

 

On a serious note I have lymphodema around my bits so I get stuff sucked inside the pump quite often. It jeffing hurts!

Edited by member 19 Aug 2020 at 17:06  | Reason: Not specified

User
Posted 19 Aug 2020 at 17:31

Originally Posted by: Online Community Member

"without support while standing"

For the proper medical one I guess one could tie some string around ones neck and loop it to the inflated pump and wander around with that attached - just don't walk into any walls :) :) :)

 

😂😂😂🤣

It hangs on while standing and limited walking around, wouldn't advise going for a jog or anything like that.

Cheers

Bill

 

 

 

 

 

 

User
Posted 19 Aug 2020 at 19:36

Originally Posted by: Online Community Member

If you haven't got your exemption yet, when you pay for your prescription meds, ask for an FP57 receipt (a till receipt won't do).

Then when you get your exemption card, take it with your FP57's into any NHS pharmacy, and they'll repay your prescription charges.

GPs aren't responsible for holding stocks of these forms or issuing to patients. Pharmacies should all have a supply. 

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 26 Aug 2020 at 19:05

Ok I had appointment with consultant who is really pleased with the progress so far regarding dryness and PSA results. In terms of ED he suggests I stay away from a pump for the time being and has recommended I return to using Tadalafil 5mg 5 x weekly and 20mg 2 x weekly with sexual stimulation for next 3 months. He believes the previous intolerence was probably a red herring. If this doesn't work he suggests I go for intra-cavernosal injections. His view on pumps are "not very exciting and can be a cold experience for you and your partner". I asked  about the long term consequences if nerves/muscle are not exercised and the potential of no erections if I don't do anything right away (e.g. using pump). He said that out of the operations done by himself 80% will have erections even though it may take up to two years. He believes that using a pump will not necessarily make any difference to the muscle/nerve performance over time and by not using one will not affect the longer term outcome. I sense he is not against using a pump but just doesn't think I need one right now.

I am now slightly confused regarding the pump situation based on every ones positive views on here and wonder why he is preferring the tadalafil and if this fails straight onto the injections?

User
Posted 26 Aug 2020 at 20:04
Call me a cynic, but he is a surgeon rather than an ED specialist? If you like and trust him, stick with his advice for now but keep an open mind for the future. Did you ask about referral to an actual ED service?
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 26 Aug 2020 at 20:41

I did ask and he suggests if injections etc are needed it makes sense to refer to a local (to me) ED specialist via private insurance company. My consultant is in London and I live in Swansea so makes sense I guess. Other than that I will also speak to my GP regarding his view on any local ED services. Only one I can find locally is NHS sexual health clinic. 

User
Posted 26 Aug 2020 at 21:10

Hi Andy.

See my profile.  Top of list would be pump as an absolute minimum.

So you have had no erection at all for nearly 6 months ?

See this copy / paste. Ie link.

We never got to injection stage, although discussed with wife.

I never found PDE5 any use.  ....Patience Persistance and Pump

Slow slow progress, 3 yrs for us , now 5 yrs post op. as I supposively had non nerve sparing.  

Regards Gordon

Posted: 04 Aug 2020 at 20:46

 

Hi Gilly


As Andy states.  Plenty of support if needed.   I assume he has read https://community.prostatecanceruk.org/posts/t10993-Erecting-the-Erection---Medication


Folk on here  really need more information to advise I feel.


From your posts your partner had ED pre op.


How have you helped with penile rehabilitation ?  Use of  pump etc


Regards

 
Forum Jump  
<12
©2025 Prostate Cancer UK