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Pump problems

User
Posted 14 Sep 2020 at 11:39

Good points, Lyn.

After my surgery I knew that my GP would not cooperate so I asked my urologist to write to the GP and in his letter, he wrote  and I quote ......." for rehabilitation following this major surgery and this patient's long term mental and physical health it is vital that he is prescribed a suitable pump......". He also suggested a pump which is on the NHS prescription list. I was also able to obtain replacement rings on a prescription when needed. Also a sales guy came to the house to discuss and explain how to use the pump. That was 9 years ago so I would like to think that GPs nowadays are better informed and should not refuse to prescribe.

So I suggest to those who are having problem with their GPs please ask your urologists.

User
Posted 14 Sep 2020 at 19:19
There are NHS trusts / CCGs that do not permit GPs in their area to prescribe pumps, regardless of the urologists' recommendations. I posted John's retired pump to a member here a couple of years ago because they are not available on the NHS in the area in which he lives.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 15 Sep 2020 at 07:09

I did not know that!

User
Posted 15 Sep 2020 at 09:22

I had problems getting a prescription pump at first so tried the cheapies from Love Honey and then Amazon. I first got one with a squeezy pump but the actual pump was slow and soon split. Then I got one with the scissor or trigger/pistol type pump which has lasted ages. It also has a longer more flexible pipe. Now I have got a prescription Somarect as well. To sum up my opinion on the positives and negatives of each.

Somarect Positives:

Top quality pump unit

Excellent choice of rings

Slightly easier to apply the ring

Comes with inner sleeve if required

Good safety pressure relief valve

Instructions

Somarect Negatives:

Heavy (can't use it standing without holding it)

Not waterproof

Expensive or prescription only

Cheapy Positives:

Price and variety available

Waterproof so can use in bath or shower

All parts can be bought seperately as extras or variety

Lighter so can wear while standing if you get a good seal

Cheapy Negatives:

Some of the actual pump units are weak (The pistol type is fine).

Slightly more difficult to apply a ring, although just takes practice

Be careful that if the pressure relief fails that you are ready to just pull the pipe off

If I could only have one regardless of cost it would be the cheapy.

Cheapy:

I have found that if you pump up to full engorgement then remove the comfort seal I can wear a soft ring and then get the tube over the ring forming the seal and then pump with the ring already on.

Or if you are shaved or at least trimmed short, put the ring on the tube without the comfort seal and slip it off and onto penis before releasing the pressure

It all takes practice and a bit of trial and error.

Good luck

Cheers

Bill

User
Posted 21 Sep 2020 at 14:28

How do I find out if my gp can prescribe pumps 

User
Posted 21 Sep 2020 at 18:59
You can look up your NHS trust's policy on pumps, or you can ask the GP.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 07 Oct 2020 at 18:05

Not been on for a while since i mentioned the symptoms i was experiencing after using the Viridal Duo . The erections i got started out great and we had good sex.  But about a month ago the erections i got were strange and my penis was bent and short. I've since been told it's Peronies Disease and should stop using the injections which i have done. I was advised to use a penis pump but the vaxaid pump i had bought for nearly £200 just after my operation i found to be useless and used it rarely.   I have been informed by my nurse that she is writing to my doctor to prescribe a better one and that i should use it daily, i bought a cheep one for a fiver on line from Lovejoy that seams to work.  It doesn't have restrictor rings and in any case she said i should just use it for exercise until you get the better one from my doctor.  I'm really down because the injections worked and gave us a regular sex life  all be it once a fortnite which we were both happy with. Now we have no sex life and no prospect of it with the Peronies Disease.  My nurse says could take a year with daily pump excersise  and no guarantee it will get rid of it.   I've never managed to get a decent erection with the pump just a red  painfull blob! I'm no spring chicken but my nurse says she deals with men a lot older than me which gave me hope and a bit of my self esteem back.  
Any help or advice will be very welcome because I'm so down.  When i opted for the op to remove my prostrate i prepared myself for a future without sex but the reality is it's all i think about and just want a little bit of fun with my lovely understanding wife and feel like a man again which is what i had with the Viridal injections.

Thanks

 

 

User
Posted 13 Oct 2020 at 16:40

I am sorry to read your post because it was a mistake to buy that pump. I have been using penis pumps (two so far both very good) for 9 years following RP. The device is superb for rehabilitation and then for regular sex. The main advice I would give is that it requires a great deal of patience and initially hard work and support from your wife. I am not a medical man but I think using a descent pump will improve the condition of your penis which was probably cause by the injections 

ps  In many ways our sex life has improved because were are well beyond being middle aged and pre-surgery my erections were beginning to be rather weak and difficult to achieve. The pump provides erections on demand and as strong as when I was a young man! You don't have to give up sex.

User
Posted 13 Oct 2020 at 16:50

Allgone,

You need to ask for a referral to a consultant urologist. There are treatments for Peryonies.

The SOMAerect pump has additional correction cylinders available for correcting it, and that might be a possibility, but it needs investigating by a urology consultant to see exactly what's caused it in the penis. I don't think an ED nurse will have the necessary skills to do this.

User
Posted 13 Oct 2020 at 17:20

Thanks for the advice. I bought the cheap lovejoy pump to keep up the exercise while waiting for the prescription which I'm collecting from my doctors tomorrow recomended by my andrology nurse to keep up the daily exercise.  Not sure what model it will be.

User
Posted 01 Nov 2020 at 14:38

Hope your new pump is working well. I agree with Mityana39 - it takes a lot of patience. One of the biggest things we all need to adjust to is that erections are not as quick or automatic as they used to be. It can be tempting to give up because you can't do it the way you used to. But actually it's worth being patient and adapting!

 
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