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End of RT....21wks post op

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User
Posted 23 Oct 2020 at 19:13

Lexi


They are not massive, just looked three years on the ones on my sides are still just visible. I can't remember where the one on the front was and my belly is to big to see it anyway.


Thanks Chris

User
Posted 23 Oct 2020 at 19:34

Found two of them outer hip area.... but Andy I’m not going in search of the third ‼️
I would be lost without you all.....thanks 🌹

User
Posted 23 Oct 2020 at 19:56

About a month after the radiotherapy, the pubes above the penis fall out because they're in the entry/exit wound area of the radiotherapy beam, so you'll get a chance to look then! About 3 months later, it was all regrowing again. It looked super neat when it first started regrowing, and it happened to coincide with my pump clinic appointment. The guy doing the pump demo even commented on how neat it was, but I hadn't been doing any manscaping!


A year later and it's noticeably thinning again, but this time it will be due to the hormone therapy which I've been on over 2 years now.

User
Posted 23 Oct 2020 at 20:28

Originally Posted by: Online Community Member


About a month after the radiotherapy, the pubes above the penis fall out because they're in the entry/exit wound area of the radiotherapy beam, so you'll get a chance to look then! About 3 months later, it was all regrowing again. It looked super neat when it first started regrowing, and it happened to coincide with my pump clinic appointment. The guy doing the pump demo even commented on how neat it was, but I hadn't been doing any manscaping!


 



πŸ˜‚πŸ€£πŸ˜‚

User
Posted 23 Oct 2020 at 22:45

Originally Posted by: Online Community Member
About a month after the radiotherapy, the pubes above the penis fall out because they're in the entry/exit wound area of the radiotherapy beam, so you'll get a chance to look then!


 


Speak for yourself - John didn't lose any pubes at all, just the hair on his back. 

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 24 Oct 2020 at 09:14

I had mine done yesterday- I can see all three, but that was helped by the remnants of the green marker penπŸ‘πŸ»

User
Posted 24 Oct 2020 at 09:51

Originally Posted by: Online Community Member


About 1" above the penis (which meant rooting around in the pubes to find it each time) and the same height on either hip.


Oh, and they're blue dots in my case, so not same colour as a freckle.



After my second RT fraction I shaved my pubes just for about an inch around the tattoo. I just didn't think it was fair expecting radiotherapists to spend much time looking for that tattoo.

Dave

User
Posted 24 Oct 2020 at 15:47
I didn't have any hair loss there, although I did lose most of the hair on my arms and legs due to the HT. I can't see my alignment tattoos.

Chris


User
Posted 02 Nov 2020 at 09:59

14 weeks ago today my husband went in for his RALP surgery.  Today is the beginning of his RT, 33 fractions. Microlette enema for the first seven sessions only. 


Best wishes to you all 🌹

User
Posted 02 Nov 2020 at 10:14

Best wishes, I found it got a bit tedious towards the end. I met lots of people in the waiting room but I guess that is all different now.


Thanks Chris

User
Posted 02 Nov 2020 at 10:41

Thanks Chris, praying there’s no cancellations. Where I live the majority of routine elective surgeries are all cancelled.

User
Posted 02 Nov 2020 at 11:10

Once the RT starts, they can't cancel it.


This means many RT units have to run part empty, to ensure they can still complete all active treatments in the event they lose several staff to COVID.

User
Posted 16 Dec 2020 at 14:57

Today marks the completion of my husband’s 33 fractions of adjuvant RT πŸ›ŽπŸ›ŽπŸ›Ž Time to try and relax and enjoy Christmas with our family.


Our very best wishes to you all and thank you for all your advice and support 😘




Edited by member 16 Dec 2020 at 15:01  | Reason: Not specified

User
Posted 16 Dec 2020 at 15:40

Glad that’s all over how is he feeling 


 


Have an amazing Xmas lots of love


Carl and Rachel.

User
Posted 16 Dec 2020 at 16:13

Hi Carl


Thanks so much. He feels relieved he’s made it through the treatment without too many major  side effects. He says he’s met some lovely people. He says it’s another hurdle he’s got over and it’s now time to relax and enjoy Christmas with our family.


Hope you are doing Ok. Sending our best wishes to you and Rachel for a peaceful Christmas and better health in the New Year x

User
Posted 16 Dec 2020 at 17:33
I bet he’s glad it’s all over. Good luck and enjoy Xmas

If life gives you lemons , then make lemonade
User
Posted 16 Dec 2020 at 22:46

Thanks Chris. The alarm is now knocked off !! 


Wishing you a peaceful Christmas.

User
Posted 16 Dec 2020 at 22:51
That's great news! Glad to hear he got through it without too many issues. Be aware, though, that side-effects peak about 2-4 weeks after treatments ends (you carry on cooking!) so don't get stress if things do get worse for a while. It's entirely normal.

Best wishes,

Chris
User
Posted 17 Dec 2020 at 09:54

Thanks Chris


We will bear that in mind.
Also The RT hasn’t affected his continence so far which he luckily regained quickly after the op. We were warned this was a possibility.


Hope you have a peaceful Christmas.

User
Posted 17 Dec 2020 at 16:30
You too, Lexi!

Best wishes,

Chris
 
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