Home after RP, what to expect

User

Posted 03 Jul 2020 at 14:04

Hi LW,

Seems I got off lightly by comparison, one of my wounds opened up later the same day I had the staples out. It was one of the smaller wounds on the left. Luckily infection free, but it was a good centimetre deep and I was getting it repacked and dressed by the nurse every couple of days or so. Checking my notes, it was almost a month later that I stopped wearing a dressing, after that, it started scabbing over and healed up. The scab was still there on my 6 week check up.

Hope this helps.

Kev

Edited by member 03 Jul 2020 at 14:52 | Reason: Grammar

User

Posted 03 Jul 2020 at 16:18

Thanks Kev. It's just getting him down because he feels fine in himself. Ok, peeing for England but getting his PFEs done and in no pain anymore. He's walking about a mile with no issues but this wound is slowing him down. He's frightened to do anything.

I think we would both love to see a scab form

The skin wounds were glued, I wish they had been stitched or stapled. But they won't do so now because all the stuff has to come out. Dissolving stitches for the deeper cuts but touch wood they are fine.

User

Posted 03 Jul 2020 at 20:57

think I had glue and hidden dissolvable stitches in all my wounds. One was a bit open and weepy for a few weeks after surgery although it eventually settled.

I kept it really dry and didn’t touch it at all. Loose fitting sports trousers and I kept the elastic band down away from the wound. Took a good 6 weeks to settle. After washing I would blow dry it clean. I ran the blow dry a minute or so on max heat to sterilise the inside before blowing across the wound size gently just to remove any water. Sounds like you are in expert hands. Just keep an eye on it for any change and/or fever plus don’t touch or put anything on it if you can. Will just take time to settle down I suspect which isn’t helped if it water like recent temperatures.

best of luck with the healing journey.

TechGuy

Edited by member 04 Jul 2020 at 09:24 | Reason: Not specified

User

Posted 03 Jul 2020 at 21:33

Thanks TechGuy. I've told him to lower the waist band of his joggers and pants but he immediately came back with,if I do that I can't keep my pads in place :-0 I can see what he means, if the elastic lies on his hips, the pad won't be snug. But I do agree with you about the waistband being a possible irritant...although there is a dressing in place over it.

He's just had a breakthrough moment...felt he needed the loo, got up...no leaks! Went to toilet, all urine successfully down the pan and back in front of the film. Not actually done that before without movement leakage. I don't think for a minute this will happen every time just yet but it certainly gave him a boost.

User

Posted 03 Jul 2020 at 22:01

I purchased some hipster trunks from Asda that were very good and supportive without being too tight. They allowed the pad to be positioned optimum and it didn’t move when I was out walking or in town. shout if you need a link as one of my best purchases for surgery.

Great news on the peeing. It will feel as though there are three steps forward and two steps backwards a lot. Just keep the faith and things will improve over time.

User

Posted 04 Jul 2020 at 08:57

Similar to TG, snug elasticated trunk type under pants, keeps the pad in place , my Tena 2 has an adhesive bit to stick to the underwear but I never use it.

I have a suprapubic catheter that comes out just below where the big port was, it does get quite warm in that area. The only time my catheter wound as been infected was when there was a dressing on it.

Good news on the trip to the loo.

Thanks Chris

User

Posted 04 Jul 2020 at 09:13

I had six laparoscopic surgical wounds (instead of the usual five, due to a supra-pubic catheter) and they were troublesome as some of the the “dissolvable” sutures did not.

Several of the wounds became infected, requiring a course of antibiotics and three trips to see the nurse who was equipped with an illuminated magnifying glass and tweezers to remove the ultra-fine thread.

The raised wound below my navel where the catheter came out has finally disappeared inside my pubic bush, two years later.

I think your old man is getting there. Best of luck.

Cheers, John.

Edited by member 04 Jul 2020 at 09:15 | Reason: Not specified

User

Posted 04 Jul 2020 at 09:17

Thanks for the support guys xx

Can you post that link to the hipster pants TG, then we can pop to Asda.

User

Posted 04 Jul 2020 at 09:35

Here you go :-) Asda Hipster Trunks.

https://direct.asda.com/george/men/underwear/grey-hipster-trunks-3-pack/GEM697633,default,pd.html?cgid=D2M1G10C11

User

Posted 04 Jul 2020 at 17:55

Thank you.

We had the path report today. Good news and not so good. The good news is the surgeon wrote it is a grade 3 yet after the biopsy it was graded 4. Also the MRI pin pointed to a seminal invasion but on the slab it was discovered there was no spread to the seminals at all. All lymph nodes were clear. So I am presuming the T3b is now a T 3a. Still a T3 because it had spread to nearby tissue. The surgeon did say on the phone he thought that he'd got it all out...dependant on psa check of course.

The bad news was that he wrote there was some amount of small cell found mixed in. We have both slipped into a depression somewhat. The biopsy and MRI both showed up a small tumour and the percents were 5% and 1%. No small cell was picked up by the biopsy so we have been bowled over a great deal.

User

Posted 04 Jul 2020 at 18:46

A little bit of small cell carcinoma isn't a problem if it is in a petri dish rather than in the patient.

Good news on the downgrading of everything else.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 22 Aug 2020 at 12:48

Been a bit.....

Had the results of the post op psa test. God, it's a stomach churner isn't it? Anyway it came back as undetectable, so far so good.

Just a quick question, how long do the effects of HT hang about for?

Before the op he had HT to put a brake on things. He had the 3 month implant the beginning of June. So it runs out beginning of Sept. and that will be it.

But the hot flushes and weakness are testing him somewhat. Not helped by the fact he has a stinking cold. I was just wondering how long it stays in your system after finishing.

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