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New member looking to support my husband

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User
Posted 06 Jun 2020 at 14:34

Sorry to hear of your husbands PCa Moozel but as many on here have already said, don't despair, his diagnosis has a lot of positives. Mine was almost exactly the same, 5 of 5 sample on left side, 3 of 5 on right in my case, plus a suspected nymph node, T3 was my stage. I had hormone therapy, radiotherapy and HDR brachytherapy as not suitable candidate for surgery.

Diagnosed in 2015, now almost 5 years later and I have no real side effects and my PSA is less than 0.1 for the 3rd time, so whatever you do not let this get you down or let it get on top of either of you. My wife gave me the greatest support for which I am eternally grateful, so just remember, you can and you will beat this.

 

All my best to you both going forward

 

Mike

User
Posted 13 Aug 2020 at 14:53

Just an update.....It’s been 8 weeks since my husband had his 1st hormone injection....his first PSA test this week has his levels down to 6 and his testosterone under 1 which is good news that it’s heading in the correct direction. We will meet with his Oncologist next Tuesday for the first time so hopefully will get a better understanding of his cancer and a start date for his radiotherapy therapy.   He has fatigue and strong hot flushes which could be the reason for his fatigue with disturbed sleep. Other than that he seems to be plodding on. His mental health seems to low but it’s still early days since his diagnosis, we hope he can chat to a counsellor soon to help with his anxiety.

Edited by member 13 Aug 2020 at 14:55  | Reason: Not specified

User
Posted 13 Aug 2020 at 18:59

Nice that the psa is coming down. I don't get many hot flushes but they are worse in hot weather, so hopefully once this heatwave is over he might not get them as much. I know that ANDY62 runs some courses on surviving hormone therapy, it might be worth finding when he is doing the next one. I didn't know about this forum until I was just finishing treatment, but as you are at the beginning Andy's course may help you for another two years. 

Dave

User
Posted 13 Aug 2020 at 20:17

Well wishes to you and your husband Moozel 🌹

User
Posted 18 Aug 2020 at 14:06

Had our first visit to meet the oncologist and he explained more about my husbands pc.

Without having an MRI he suggested that he was likely to be T4 N1 M0 with both side of the prostrate containing cancer, seminal vessels, 1 lymph node and his bladder.

He explained the chances of a cure were slim but they will radiate the full pelvic area and we may find he is one of the lucky ones that is cured.

Radiotherapy is scheduled to start in 4 weeks over a 4 week period.

Feeling exhausted for him :(

 

Edited by member 27 Aug 2020 at 17:26  | Reason: Not specified

User
Posted 18 Aug 2020 at 15:49
So 20 fractions , a few tips wear boxers , and joggers most comfortable. As you might know first 10 fractions seem ok but sometimes the following 10 is when the side effects kick in I found , but every one is different . Get a toilet card from Macmillan centre or even from this site , I only had to use it once but handy to have . Are you having treatment locally ? Know where your nearest toilet is , I carried a bottle in car and towels . During my treatment it was like a family atmosphere ! Yes 99% of patients knew each other well after a wk ! And we exchanged tips and ideas , drink a lot of water every day . Best of luck
User
Posted 18 Aug 2020 at 15:56
Forgot , let me assure this cancer is so so common I personally know 8 of my acquaintances /friends who had it or going thru treatment I found it very very reassuring talking to my friend who had it 6 yrs ago he gave me lot of encouragement and tips , which helped me a lot !!!!
User
Posted 19 Aug 2020 at 11:10

The clear bone scan is good news and as you say offers  the chance of a permanent remission with whole pelvis RT.

I would also ask your ONCO about adjuvant chemotherapy or Abiraterone too. That may be appropriate as your fella is so young.

 

 

User
Posted 07 Dec 2020 at 17:52

Exactly 2 months today my husband completed his final radiotherapy treatment and received the good news thus afternoon that his PSA level is sitting at 2.37 and Testosterone under 1.

We can now look forward to ending 2020 on a high and hopefully he continues in 2021 with his PSA dropping under 1.

 

Stay safe everyone and enjoy your Christmas 🎄 

 

User
Posted 07 Dec 2020 at 21:39

Hi Moozel, nice to hear from you again. Yes let's have a better 2021. I think this year needs tearing from the history books. 

Dave

User
Posted 07 Dec 2020 at 21:42
Good news. Don’t get hung up on what the exact PSA figure is. Mine was 4.6 two months after RT, 2.0 six months later, and bottomed out at 1.4 six months further on. My oncologist said at the start of my treatment that a nadir (minimum value) of 2 or less he’d consider a successful outcome. Your husband still has a prostate and is still producing PSA. What matter is how it changes between tests.

Best wishes,

Chris

User
Posted 15 Dec 2020 at 10:12

Just had a telephone consultation with the oncologist team and they are passing my husband's care on to the urologist nurse.  So happy that his recovery is going well and he is on a positive mental path with a possible cure.

Good news at last for Christmas....

Wishing you all a good Christmas 🎄 

User
Posted 15 Dec 2020 at 14:38

Yes, good news indeed!

Enjoy Christmas together.

Angex

User
Posted 15 Dec 2020 at 14:41
Happy Christmas news Moozel!
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 15 Dec 2020 at 19:52

Lovely news Moozel. My husband’s about to complete his 33 fractions of adjuvant RT following his RARP in July 🙏🏼

User
Posted 16 Dec 2020 at 09:33

Good luck Lexi26 I hope he has a good outcome in the New Year!

Enjoy your Christmas together ❤ 

User
Posted 04 Feb 2021 at 15:54

Further update after my hubby had a follow up appointment with the urology nurse...she wanted to do a PSA test so his next one falls in line with his next hormone injection. We received the results today and are overjoyed that his levels have fallen to 0.78 within 4 months of completing radiotherapy treatment 🥳🥳 

We can at last breathe and try and get back to some normality once lockdown ends.

Good luck to everyone that is starting their journey or still fighting the good fight

User
Posted 04 Feb 2021 at 20:27

Good news Moozel :-) 

Dave

User
Posted 04 Feb 2021 at 21:53

That is great news !!

 
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