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Coronavirus delays

User
Posted 29 Mar 2020 at 12:28
Hi Annie,

I should think it will having read your story. Fingers crossed for you both.

Hubby due to have bloods in April now to check no further elevation in PSA whilst we wait.

Today’s sunshine is slow cooked lamb dinner! :)

Mel

User
Posted 29 Mar 2020 at 12:29

I don't believe we can put names on here?

But it was Mr W....n who performed the surgery.

User
Posted 29 Mar 2020 at 12:30
Just to balance The1974’s response. I had RP in 2013. Discharged the day after. Didn’t need the painkillers as any discomfort was minimal (apart from if I sneezed). Catheter was an inconvenience but not too problematic (wouldn’t stand first in the queue for another one like).

I basically put my feet up for the duration of the recovery period.

I recall the worst part was the initial constipation as a result of the anaesthetic but that cleared with 3 days.

But we are all different and hopefully your OH will have a non problematic recovery once he’s had the op

User
Posted 29 Mar 2020 at 12:36

Where did you see the surgeon prior to you op ? 

User
Posted 29 Mar 2020 at 12:42

I live in Newport so saw him at the Gwent about a month prior to operation, only Cardiff have the De Vinci machine near me.

Pre-op all done by the nurses.

User
Posted 29 Mar 2020 at 12:43

I had my pre op done Friday morning at the Heath. Just a waiting game now .....

User
Posted 29 Mar 2020 at 12:51

Best of luck to you.

Remember we all heal differently and at different times.

Pelvic floor to strengthen the muscle after catheter removal is vital.

5mg of Cialis daily when you can get it post op to help blood flow to the penis and a vacuum pump too!

Lots of guys on here giving the best advice as we have been through it🙏🏻

User
Posted 29 Mar 2020 at 13:13

Hope so Mel. The sunshine and fine weather this past week have helped lift our moods in particular my partners but a lower psa would be really good. 

Some days you just have to create your own sunshine...... 

User
Posted 29 Mar 2020 at 13:22
The1974 thanks so much. Your children are the same age as ours! How did they cope? Ours are being very pragmatic on the surface at least.

Carlos53 this is the journey I am expecting to come. At present, being healthy and active are like a protective veil which overall is good. Are you under Mr KS in Swansea?

Annie, best of luck. Will be thinking of you.

Mel

User
Posted 29 Mar 2020 at 15:37

Originally Posted by: Online Community Member

 Hi can I ask who did your surgery 

 

Carlos, it is against the site rules for anyone to reply to your question openly but the member might send you a private message instead. 

Edited by member 29 Mar 2020 at 21:39  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 29 Mar 2020 at 16:10

I’m worried for my hubby who is going in for TRUS on Wednesday.....🙏🏼🙏🏼 it’s not cancelled. He couldn’t have an MRI because of COVID. So sorry to hear about cancelled surgeries....such a worrying time 🌹

User
Posted 29 Mar 2020 at 16:55

Hi

i wasn’t aware that I had asked a sensitive question ...

User
Posted 29 Mar 2020 at 18:21

Thank you, MK1977.  I hope to find out more in a conversation with the consultant tomorrow. If using a robot is an aerosol generating procedure, then it will always have been so, propagating viruses of any sort.  Though propagating Corona is clearly much more of a threat.  I wonder if there is a technical fix, to, for example, suck away the aerosol?  Alternatively, how long do we wait until the levels of possible airborne virus particles drop to a level considered safe enough for the operating team and patient to be in theatre together??  

User
Posted 29 Mar 2020 at 18:29
Mike, I do hope so. I suspect that it is more than just the worry over AGPs. Our Cons advised that the urology ward in the local hospital has been converted for other use at present. Best of luck!

Mel

User
Posted 29 Mar 2020 at 18:40

Hi Carl,

We're similar in that my Gleason is also 4+3, though I have a slightly lower PSA than you.  I'm Stage T3 where cancer is starting to break out of the prostate capsule.  Following major disappointment at my op being cancelled  less than 24 hours before admission, I'm coming round to the view that maybe it's best, on a risk basis.  I'm told that, generally speaking, PCa is a slow growing one (I'm NOT any sort of medical practitioner) so an extra couple of months before surgery shouldn't make too much difference.  You and I may well have had it some while before diagnosis.  You say your hospital didn't mention the aerosol problem - I only found out last Friday, 27 March, and it seems to have been very recent new guidance.

This whole PCa business is nasty, threatening and unpleasant; the treatment is uncomfortable to say the least.  No one likes one's equipment interfered with, and it goes to the heart of one's manhood and virility.  However, as many have told me, say 12 months down the line one can be well-recovered, living a full and happy life and even enjoying an erection again.  I'm sure your wife wants to support you, rather than feeling it's something you are putting her through.  I wish you well.

User
Posted 29 Mar 2020 at 18:46

Lexi26, best of luck for Wednesday. As Lyn said they will know the area they need to concentrate on.

It took 2 weeks and 2 days for the TRUS results to come back. May be less now with the pathology labs being a bit quieter due to CV19.  There seems to be a few wives on here, as well as the gents. It’s a nice place to talk without having to talk if that makes sense! :) 

Edited by member 29 Mar 2020 at 19:02  | Reason: Not specified

Mel

User
Posted 29 Mar 2020 at 21:42

Originally Posted by: Online Community Member
Mike, I do hope so. I suspect that it is more than just the worry over AGPs. Our Cons advised that the urology ward in the local hospital has been converted for other use at present. Best of luck!

 

Yes, and in our area almost all operating theatres, recovery rooms, etc have been converted to HDUs - Newcastle hospital trust has done the same. 

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 29 Mar 2020 at 21:45

Originally Posted by: Online Community Member

Lexi26, best of luck for Wednesday. As Lyn said they will know the area they need to concentrate on.

It took 2 weeks and 2 days for the TRUS results to come back. May be less now with the pathology labs being a bit quieter due to CV19.  There seems to be a few wives on here, as well as the gents. It’s a nice place to talk without having to talk if that makes sense! :) 

The CMO of Leeds THT was on TV on Friday - their pathology labs are inundated with Coronavirus sample testing - big machines that can test hundreds of samples each day 

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 30 Mar 2020 at 01:44

I think it may be worth pushing for hormone treatment if there is a delay in operating. This will halt the cancer spreading out of the prostate. My husband had a delay in the operation and we believe that hormone treatment would have kept the cancer within the prostate.  

User
Posted 30 Mar 2020 at 07:42

Thanks Mrs Fish, Bloods are going to be done in April. To recheck PSA for any further elevation. Then HT will start in the interim if necessary. 

 

Mel

 
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