The other C word - extra care needed in the current COVID situation?

User

Posted 22 Mar 2020 at 11:02

I read a passing comment that China has looked at Viagra as an anti viral.

We can now tell our lovelies that regular nookie will save our lives 😂😂😈😈😱😱🍆🍆

User

Posted 22 Mar 2020 at 17:00

I'm sure you will be OK Pete.

I wonder if this is an older virus, & has been around for some time

back in 2018 Feb, I had a bad bout of what seemed like Flu or bad cold - at the end of it, I lost my sense of Taste & smell. Steroids & Antibiotics + time, I got my sense back in about 9 months. I've never smoked or been a heavy drinker, that may be a factor in getting over this Virus. I guess, Pot smokers & simlar, may find it more difficult to recover?

Perhaps it's transmission was not so strong then, & it has mutated?

Later that year, my PC was diagnosed - I sort of assumed the taste thing, was to do with that?

Perhaps not.

User

Posted 22 Mar 2020 at 20:00

Loss if taste and smell if something of a thing with upper respiratory viruses I found today.

Very unlikely to be CVD-19 that early but right now it would be a symptom to note on any new infection.

User

Posted 23 Mar 2020 at 07:40

Originally Posted by: Online Community Member

Loss if taste and smell if something of a thing with upper respiratory viruses I found today.

Very unlikely to be CVD-19 that early but right now it would be a symptom to note on any new infection.

You are probably right. Pete.
I just hope people practice, "Social separation" a lot more, than they have been doing.

I live in Thetford forest, yesterday, every entrance was jammed with cars, dog walkers, cyclists - it is crazy.

People flocking to the coast, is also utterly crazy.
I know this is off topic, but as many who post here, have weakened resistance to any bugs, so itis very important.

User

Posted 24 Mar 2020 at 16:30

HT lowered my red and white blood count, I stopped HT a few months ago and its gone up a bit but still on the borderline low end

my GP told me that Im at risk of severe illness if I catch Coronavirus so it looks like i will be working from home for 3 months

User

Posted 24 Mar 2020 at 20:10

Anyone had their chemo cancelled because of the virus? I am going ahead with mine on Thursday, but with a lot of warnings about the likely consequences of infection for people in our position.

User

Posted 24 Mar 2020 at 21:18

My oh has had his chemo stopped He had 6/10. His doctor said that he was very vulnerable and would probably not survive if he caught the virus. This has given mixed feelings -glad not to be going to the hospital but concerned about stopping in the middle. He can have it again if necessary but good result so far.

We are both over 70 so I am self isolating with him. We have great young people who go for supplies for us.

We are fine in our home and garden and just pray that the actions we all have to take, will stop the spread and save lives.

User

Posted 24 Mar 2020 at 22:48

Try not to worry Gilly - research showed that even men who had only been able to have 2 or 3 sessions of chemo got some benefit from it and their HT was more effective for longer.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 25 Mar 2020 at 15:03

I guess the main concern for all cancer sufferers is when Covid19 really starts to bite and intensive care beds are at a premium it's highly likely that patients with no underlying health conditions will get priority for that bed, which I can't really argue with.

For that reason it's essential we lie low, observe the Government advice and avoid catching this awful bug.

Stay in and stay safe.

User

Posted 26 Mar 2020 at 23:41

Unfortunately my nine month follow up appointment, due on Tuesday was cancelled last Friday. I did ask at the GP surgery and they said they would print out my blood results but the results have not yet been entered onto the system. I will probably now wait to see when my rearranged appointment comes through instead. I appreciate it could be some months away.

Rob

User

Posted 27 Mar 2020 at 19:08

I went in for my 7th cycle of cabazitaxel yesterday. It’s hard to give up on a treatment that’s working. The main precaution our hospital is taking is to have as few patients in as possible. They also asked me to wait in the car and texted me when they were ready so no wait in waiting room. My wife was not allowed in. The nurses were not masked, nor had they been tested, but they are not being allowed to work if they or any of their household are showing even the least possible symptoms. We are observing the strictest isolation at home. Not so bad actually!

User

Posted 28 Mar 2020 at 14:14

I am terrified they are delaying treatment now.

My husband is locally advanced, bulging into seminal valves. 1% on one side and 5% on other. The nurse said it was small but quite active. T3b MO NO. G8. He had a bonescan a week ago but we've heard nothing. Couldn't get through on phone at all, presumably because of the virus. They were not expecting to find anything on the bone scan. The MDT meet on Fridays. I presume he missed last weeks as he had the bone scan the day before. I am thinking he would have come under yesterday's?

I keep hearing how cancer treatments are being postponed and it terrifies me. The nurse said they were looking at ' curative' treatment but we are both scared they won't do it because of the virus.

User

Posted 28 Mar 2020 at 14:16

I am terrified they are delaying treatment now.

I keep hearing how cancer treatments are being postponed and it terrifies me. The nurse said they were looking at ' curative' treatment but we are both scared they won't do it because of the virus.

User

Posted 28 Mar 2020 at 16:50

I think we would have been more relaxed about a wait if we'd had a lower Gleason. When she said grade 4, G8 we nearly fell off the chairs. She did say it was small but quite active. We are just scared because she said although, it hadn't broken free as such, it had bulged into one of the seminals. Waiting on treatment to us, means an aggressive cancer breaking out and running away with itself.

are we being dramatic or can we 'relax' with the extra wait, given his Gleason.

User

Posted 28 Mar 2020 at 17:29

That's is with this virus isn't it? No one knows...

Our business is aligned closely with the holiday trade. Our income has gone literally to nothing within a couple of days :( It will take a long time before people start going on holiday again and the summer is when we make the money to tide us over the quieter winter months. We are watching what the government give the self employed. We are worrying about our longer term ability to pay the mortgage. It is a mess to be sure. So we are either worrying about the state of our finances or his PCa. Oddly he's sleeping like a log but I'm averaging 4 hours. I nod off ok but I'm awake worrying about either or both in the early hours.

Although I reckon we will all go mad from this lockdown.😄 Jigsaws at the ready.!

User

Posted 28 Mar 2020 at 19:38

Littlewren - bearing in mind things might be slightly different - I was diagnosed t3b in Sept 15 with Gleason 8 but with slight spread to the seminal vesicles so on paper not too different. My treatment path was hormone therapy (Zoladex) for 3 yrs (now would probably be 2?) and radiotherapy. Although I started on the HT right away I didn't have the RT until Nov/Dec 2016 with the delay due to TURP in May 16 and marriage Oct 16. The oncologist and others said the delay no problem as HT doing its job etc and things went to plan. Saying that though I admit I was pretty bothered about the delay at first but was assured that it was no problem and PSA checks were done regularly. When you start on this type of thing you don't have a clue what to expected so worry is unavoidable isn't it.

Peter

User

Posted 28 Mar 2020 at 21:46

We are both in the 'get the bugger out' brigade but we will do what's best. We just want something to start soon....and if I hear of one more report of cancer treatment being delayed...well it gets me very scared and flustrated.

User

Posted 28 Mar 2020 at 22:33

In the end, it is all about statistics. Statistically, a man diagnosed in 2009 and having no treatment (just active surveillance) did just as well as the man who had surgery, the one who chose brachytherapy and the one who had radiotherapy and all 4 of them had a very high chance of still being around in 2019.

If those 4 men were being diagnosed right now, the stats would be rather different. The one who went into hospital for surgery would be far less likely to still be here in 10 years than any of the others, who would be either self isolating at home or possibly venturing out for a hormone injection and then staying safely at home.

I can imagine it is scary to be diagnosed and then seem not to be doing anything about it. If following the MDT they still think surgery is feasible, they may suggest hormones for the time being to control the cancer until COVID has abated. On the other hand, if the MDT decided that surgery was not a suitable option because of his staging, he could be starting on the hormones within a couple of weeks.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 28 Mar 2020 at 23:41

Recommend checking out The Rutherford Cancer Centres as although private their CMO stated today they would open up to NHS patients to ease delays in treatment etc. They have latest kit etc and very good consultants so might be worth investigating. I agree that waiting not ideal. If I had pushed my RARP back six months chances are the tumour would have breached the capsule and I’d have a very different outcome.

User

Posted 29 Mar 2020 at 16:40

So are we awaiting a letter or a phone call to discuss the results of the mdt meeting? How long from the date of the meeting does contact normally take?

Sorry for the questions....I'm being bombarded by a very concerned other half and I don't really know anyone else to ask.

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The other C word - extra care needed in the current COVID situation?

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