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Incontinence 16 Dec 2019 post RARP

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User

Posted 24 Feb 2020 at 20:28

Tadalafil 5mg daily seems optimal for me. I also take it twice as 2.5mg every 12hrs. Not needed them so much lately but have them on standby now if a bit tired and her ladyship isn’t.

viagara was fine too but I felt they made me flush in the face. Tadalafil low dose seems more gentle.

User

Posted 24 Feb 2020 at 20:51

Originally Posted by: Online Community Member

Tadalafil 5mg daily seems optimal for me. I also take it twice as 2.5mg every 12hrs. Not needed them so much lately but have them on standby now if a bit tired and her ladyship isn’t.

viagara was fine too but I felt they made me flush in the face. Tadalafil low dose seems more gentle.

Thanks for your valued imput

User

Posted 11 Mar 2020 at 17:41

Just managed to get sorted with Holiday insurance with my bank. Having used them for a good few years and they have covered me for the USA and no exemptions and no additional cost. My question is regarding the Conveen system and if there are any issues due to decompression? Hopefully this Corona Virus is sorted by then (Xmas) and we can actually fly.

Edited by member 11 Mar 2020 at 17:43 | Reason: Not specified

User

Posted 11 Mar 2020 at 18:20

Dave

I have a SPC and catheter bag , I had some hyperbaric oxygen treatment equivalent to a depth 33ft for and hour and never had any issues.

Thanks Chris

User

Posted 12 Mar 2020 at 07:34

Cheers for your reply and think you are propably correct. However It is the sheath itself I am worried about. When emptying the bag this causes a vacuum within the sheath and is quite uncomfortable.But only for a short while. I just wonder what the effects of decompression and not compression would have on the sheath. Sorry if I have this wrong and perhaps I need to take this up with the manufacturer of the conveen system and thank you once again Chris.

Edited by member 12 Mar 2020 at 07:36 | Reason: Not specified

User

Posted 12 Mar 2020 at 17:17

Dave

Have you tried only part opening the tap to reduce the flow or pinch the spout of the conveen whilst opening the drain tap.

Thanks Chris

User

Posted 12 Mar 2020 at 19:30

Pinching the end of the sheath might work and will give it a go. Unfortunately whilst out walking I have not always got access. The valve on the bottom is a the push button type and is either open or closed. When I do have access when emptying the easiest way to equalize the pressure is to disconect the sheath from the tube for a few seconds. I am not sure how practical this will be when flying but definitely worth a try. I do think this procedure might insrease the risk of infection but worth the risk if I always wash my hands before.Thanks again Chris for your valued input.

Edited by member 12 Mar 2020 at 19:31 | Reason: Not specified

User

Posted 14 Apr 2020 at 16:11

Hi all,

I used the Conveen sheath and found it changed my life! Able to go out without worrying about leaks and with a sports bag stuck to my thigh. It needed emptying often. Then I went for my 6 week checkup with the surgeon. He was horrified that I was using the sheath and told me to stop immediately. The reason being that it does not encourage you to recover the use of the necessary muscles. The following weeks were a trial, back to pads and 4/5 a day.

I had done pelvic floor exercises from 4 months before the op. on instructions from the surgeon and continue today. I use the Squeezy app on my phone to remind me to do them 4 times a day. You can adjust the regime to suit you.

The breakthrough came at about 12 weeks post op. Suddenly continence dramatically improved. I put this down to not only the excercises but to more probably the nerves growing back. Immediately down to 1 to 2 pads a day. Improvement followed and now 10 months post op. no pads and no leaks and back to boxers!

I walk c. 5km a day which also involves a hill or two which I jog down. At 75 and bad knees jogging is not easy but downhill worked for me. I had read somewhere about a fellow who said it helped him. Painfull to start with (knees) but got better, a few leaks to start with but it does encourage you to tense the muscles.

Edited by member 14 Apr 2020 at 16:11 | Reason: Not specified

User

Posted 18 Apr 2020 at 12:29

Hi all

I have just posted a practical solution to managing longer term mild to moderate stress incontinence with a sheath and modified thigh bag. It has completely resolved a couple of issues I had with the normal sheath / leg bag solution. This post should appear shortly once moderated. Sincerely hope it helps. 😀

User

Posted 07 May 2020 at 08:08

Just an update after almost 5 months post RARP. No longer using the sheath unless out all day which at the moment isn't, happening and only using a couple of pads per day. Some days only 1and not saturated at the end of the day. I could probably get away with using smaller pads but as they are still for free. If progress continues perhaps I might be totally continent in another couple of month. Thought I might post this for anyone who has a similar experience of being totally incontinent after catheter removal and now light at the end of the tunnel. Hope this helps.

Edited by member 07 May 2020 at 10:24 | Reason: Not specified

User

Posted 10 May 2020 at 13:45

Just wanted to post a message of reassurance to those struggling with incontinence after RP. Despite doing everything I was told to do after surgery, I made virtually no progress for eight weeks. I was becoming quite despondent and convinced that I would be the exceptional person who never recovered their continence. However my physiotherapist kept my motivation up and in week 11 there was a dramatic improvement from 4/5 pads a day to one. Yesterday after 13 weeks I stopped wearing a pad (though I feel I may need to have a back up once I get of social isolation!)

I don't know why it happened like this for me. Probably it was just building the pelvic floor muscles - I do remember suddenly becoming "aware" of these muscles or maybe something triggered my muscle memory (if there is such a thing). Anyway, the point is, it has worked for me and there is a very high probability that it will work for you, sooner or later!

Best wishes

User

Posted 10 May 2020 at 13:53

Uncle Pedro that is great news!

I'm just over 7 months RP and still using 2/3 light pads a day, hope my day will come soon. 🤞🏻🤞🏻🤞🏻

User

Posted 19 Jun 2020 at 06:05

Just like to add what has been said before after being totally incontinent .I am now 6 months post op and am just about totally continent. Apart from the odd little accident when doing something streuous my daily pad is usually dry. After wearing pads for so long it now trying to gain the confidance to not wear any at all. I think I will start with during the night as I have always been dry in the morning ever since the operation. I am due another follow up next month and another PSA. Hopefully I will get to see the surgeon this time as the last follow up was just after lock down and I did not do a face to face interview but just over the phone. Good luck everyone and I hope anyone who has been similar to me does not get too disheartened when having to use lots of pads and sheaths etc weeks after their operation.

Edited by member 19 Jun 2020 at 06:08 | Reason: Not specified

User

Posted 19 Jun 2020 at 10:22

Fantastic news Dave, and fingers crossed you keep making progress.

Kev.

User

Posted 20 Jun 2020 at 08:04

Originally Posted by: Online Community Member

Fantastic news Dave, and fingers crossed you keep making progress.

Kev.

Thanks Kev, good luck and stay safe

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