Possible spread to right hip bone

Just an update on my husband’s journey...  Keith has had 4 of six chemo docetaxel sessions.  Side effects have been excruciating back pain, so they now give meds intravenously and chemo infusion slowed down (which means we’re there for about 5 hours), itchy sore skin on hands, on neck, under arms.  Prescribed meds and cream to help.  The first two weeks after chemo has suffered low moods (very tearful), bone and muscle pains and extreme tiredness. Keith is usually quite active, (have never known him fall asleep in the arm chair during the day before);and was fit and healthy prior to prostate diagnosis but this has definitely knocked him sideways.  On the third week following chemo he appears to be okay and carries on with his carpentry and 3D printing hobby.

Cold Cap - Keith wanted to keep his hair if possible and decided to try the cold cap (was a little concerned as he suffers visual migraines). If you decide on cold cap apparently you need to wear this on your first chemo session and if ok you then continue wearing it on each session, you can’t not wear on first session and then decide to try it out as will not be successful.  On the first three sessions the cold cap was put on and allowed to go cold slowly and Keith found this acceptable, although did go through a brain freeze for a short while. On the fourth occasion it was switched on prior to him wearing it so was really cold to start and he found this quite unbearable but stuck it out.  Therefore he will be making sure it’s on his head first before being switched on for his fifth session.  Just wanted to let others know if they are thinking along these lines.  Keith’s hair is thinner but he still has a full head of hair, no patches, he is really pleased (so something on the plus side in the scheme of things). Scan towards the end of March at end of chemo.  Everything crossed that it’s worked.

My oh has his 5th chemo next week. Fatigue is an issue  as he can suddenly feel utterly drained but he continues to do most things. He has had pc for nine years, having had ht, radiotherapy  then a short break when things got back to normal but then put on zoladex due to psa rise. He then had arberatitone for nearly two years before psa steadily rose again. He is now on chemo and will be on zoladex  for life.

There are days when it all becomes a bit overwhelming but he soldiers on.

I hope all goes well for you and we will know after next scan if the current treatment is working.

It is hard but we all keep going somehow.

Edited by member 11 Feb 2020 at 17:09  | Reason: Not specified

Hi, an update on Keith’s progress.  Following his last chemo a week ago he was awaiting CT scan on the 30th March and a follow up meeting with his Oncologist on 16th April. However,  Keith had a phone call today to say they have had to postpone that date for CT scan and would be rearranging.  We are not sure if this is due to the COVID19.  We did feel that he was lucky to have his last chemo and are so sorry to read on the forum of some chemo cancellations.

Three monthly HT prostap injection due on 1st April so need to enquire how to proceed with that under these very worrying circumstances.  We have both been self isolating at home since last Tuesday’s visit to Oncology.  Our daughter has made sure we have medications and groceries, so very fortunate there.

Keep safe and we are thinking of you all.  Ange x

I've got my next prostap jab on 2nd April, GPs cancelled my appointment and said the District Nurse will do it as a home visit so maybe worth confirming.

Hi Jasper,

Thank you for this information.  Keith will speak to our surgery nurse tomorrow to check whether this will be the same scenario for him.

i see your treatment commenced as Keith’s, HT followed by chemo.  Great to see your progress following your chemo and EBRT sessions.  So encouraging to read.

All the best going forward.

Ange x

Bless you x

Hi Ange,

Hope you can get the scan booked sooner rather than later, but everything is messed up at the moment in the hospitals.

Good news with the PSA and the ED 😉.

Enjoy the bikes , fingers crossed we don’t get too much more rain . We keep saying we’ll get out on ours but the wife works as a dispenser in a chemists so doing extra hours at the moment which makes it difficult.

Take care

Phil

That’s great news Ange. I’m sure they’ll be testing for the virus and taking all the precautions needed. Fingers crossed for the results regarding the lesion 🤞.

Bright green is a good idea, always need to be seen on a bike 👍. I got a new hat the other day too but mine is a more sedate blue....my wife’s is a nice bright pink....her name is Angela , I presume yours is too ?

Keep us posted. Good luck and have a good ride .

Phil

Hi All,

My husband Keith had his CT Scan today (local private hospital arranged by NHS) so only postponed for five weeks which, under the present situation with Covid, hasn’t been too long.

No idea how long it will take to get results but has an appointment arranged to see his Oncologist on 16th July.  Hopefully we will have a phone call from him way before then.

A very anxious wait now.

Take care all and we are thinking of you.

Ange

Hi hope you don’t stress to much waiting for the bone scan results. It was probably the most anxious I’ve been since being diagnosed with PC. It’s not easy to carry on regardless but I’m sure it will pass quite quickly and you get the results that you hope for.

Carl.