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We have the diagnosis, not good, I need a friend

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Posted 23 Nov 2019 at 22:54

Hi Diane Good to hear that Colin's bone scan is clear as well, still traumatic though isn't it? Our paths are running even closer than you realise as we will be as the Royal Hallamshire in Sheffield On Monday. I was a little worried when I mentioned his scan in case you had not been given the all clear.

We were due to leave on a cruise on Tuesday, so again, like you our lives are running parallel, spooky! All the best for Tuesday.

User

Posted 24 Nov 2019 at 01:47

Originally Posted by: Online Community Member

We are due to meet our Oncologist on Tuesday, at St James's in Leeds. I have Googled her and she specialises in radiation therapy. We think it will be surgery first, Colin is stage T3.

If you are only seeing the oncologist it sounds like surgery may not be in the plan, and surgery would be quite unusual with a T3. If they do suggest surgery followed by RT, I hope your daughter will ask them to explain the thinking behind that; committing him to three lots of side effects is a big ask unless there is a demonstrable benefit.

Edited by member 24 Nov 2019 at 01:54 | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 24 Nov 2019 at 12:10

Thanks for that Lyn, To be perfectly honest I haven't a clue what I am talking about, I feel totally out of my depth. I live with permanent high anxiety, but this has taken it to a whole new level. I just cant wait for Tuesday to arrive and hopefully get answers to the questions we so desperately need.

User

Posted 24 Nov 2019 at 12:18

Thanks Barry, have done as you suggested. I cannot believe bloody trolls could even think to attack a site as sensitive as this. They are the spawn of the devil.

User

Posted 24 Nov 2019 at 15:48

Two Yorkshire girls then! Let me know how you both get on tomorrow xxx

User

Posted 25 Nov 2019 at 16:51

Hi everyone Well we were over 4 hours in total at RHH today. We started off seeing the surgeon and as a result of that the operation is arranged for Friday the 13th December, it has to be open surgery because of an old scar. He is expected to need further treatment after his surgery which would be at the Weston Park hospital. We are Sheffield born & bred so are familiar with the hospitals and problems parking.
Still feeling numb and yet to tell family and friends about todays appt.

Hope all goes well tomorrow Diane but because I am a recent member I am not allowed to send you a private msg yet. Bye for now, high time I got my lunch, yes lunch!

Edited by member 25 Nov 2019 at 18:52 | Reason: named consultant, didnt know it was against the rules

User

Posted 25 Nov 2019 at 17:08

Hi, hope you had a lovely lunch, so now you know what is happening, will anything happen before 13th? like hormone therapy? I am at the mo knee deep in McMillan books looking at treatments. I know what you mean about the shock, it just keeps coming in waves doesn't it? I think both you and I feel utterly bewildered by this whole thing. Is your husband still keeping it together, Colin is, but yesterday was a very strange day. We seemed to be treading on eggshells around each other, not like us at all. Do you feel better now you have a plan in place? Sending hugs to you both xxx

User

Posted 25 Nov 2019 at 17:49

Cheese & crackers for my lunch and a nice pot of tea. I can’t be bothered with food today. I think I feel more numb now and actually frightened that everything is happening so soon. I don’t think my husband is coping well emotionally with the diagnosis but he looked a bit cross when I said that to the surgeon.

So much to sort out in the next couple of weeks. I have mobility problems so some things will just have to fall by the wayside................

User

Posted 25 Nov 2019 at 18:06

Hi Denrog, Dec 13th is a decently short time to wait. That's exactly 3 years after my op.

With open surgery you'll be in hospital longer but some say it's better as the surgeon can see and feel better what he's doing. There's the pre-op to fit in as well where they check your blood pressure and do an ECG and check for MRSA. It's better to get it done asap. I was worried in case I failed MRSA as it's 5 days treatment and my op was only a few days later.

All the best.

User

Posted 25 Nov 2019 at 18:36

Hi everything has been done today including all the pre op assessments so hopefully everything will go ahead as planned. We had already discussed possibility of surgery before Christmas and we were both agreed it was the best way forward so we had no hesitation when the surgeon suggested that date. Would have preferred it NOT to be Friday the 13th! I hope that you made a good recovery and that your cancer is under control now.

User

Posted 26 Nov 2019 at 10:39

Hi Diane I hope all wen't well at Colin's appointment today. Thinking of you both.

User

Posted 28 Nov 2019 at 16:40

I am concerned that there has been no update from you Diane. Hope all is well, as much as it can be in this situation.

Edited by member 06 Dec 2019 at 09:09 | Reason: Not specified

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