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New to hormone treatment

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User
Posted 23 Apr 2020 at 22:55
Really pleased that you managed to get a holiday before lockdown. Good news on the PSA result as well 👍
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 28 Apr 2020 at 11:51

Thanks I was told last Friday I will now be having Hormone theraphy

 

User
Posted 28 Apr 2020 at 12:53

Hi Pinny, hormone treatment was a begger at first, because of the weepiness side of things if i was happy I cried, sad I cried, If someone said Hi I cried, over time that settled and the hot flushes started now I'm getting use to them also, aswell as wise cracks from the wife and the Macmillan nurse, they're are just part of our lifes now.

Keep safe

User
Posted 28 Apr 2020 at 13:25

Thanks the weepiness is something I am afraid of 

User
Posted 28 Apr 2020 at 13:34

The weepiness has definately eased could have been the wife and friends getting me to talk about it, and it did work as I relaxed about my image, and what I thought people thought about me weeping at times. Now when I'm execising and do to much and start filling up people just tell me to slow down a bit, and the weepiness dissapears as soon as it came

User
Posted 28 Apr 2020 at 13:50

So What causes it in the first place. And exercise  I have taken a decision to virtually call it a day on my Professional side and play more social golf spending more time for me. But could be difficult if I am coaching some one.  

User
Posted 28 Apr 2020 at 14:45
I used to like just going off for a day on the high fells in the lakes, or helping out with the local gamekeepers on the fell, what seems to happen is if i'm climbing a bank and can keep chatting as we're climbing I have no problems, but if they put their foot down and increase the pace or the bank steepens and I don't slow a little then, first of all I get more breathless than I used to, next the tears start to well up, and its time to back off and go at my relaxed pace, settle my self,

and its okay, I think I just don;t have the stamina reserves to push on, if that makes sense?

User
Posted 28 Apr 2020 at 15:08

Originally Posted by: Online Community Member
So What causes it in the first place.

A chemical response - similar to the moodiness of adolescents, some women's pre-menstrual mood swings and the emotional swings associated with female menopause. You are, physically, going through a menopause and your body is feminising. Add in the complication of the emotional impact of being told you have cancer and it can be a shipwreck. 

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 28 Apr 2020 at 15:20

That's very similar to how my GP described it, with the words of 'welcome to the world of menapausal women and PC chucked in to complicate things' she then talked me into listening to and reacting to my body instead of trying to be a bull in a china shop.

User
Posted 28 Apr 2020 at 16:13

Sounds Lovely climbing in the lakes. I am currently a professional golfer who coaches mainly these days and play about 3 rounds a year. I was going to coach until 2021 retiring at The Open Championship at St Andrew's but with the Open this year be canceled it will be at Royal st Georges next year.  When I knew my PSA  was rising again I made a decision I was going to not work as much but do more for myself. The course I would probably play would be my wife's club that is hilly in the Chilterns so it will be interesting how I go. Since the lockdown, I have been walking around  8 miles a day so my fitness has gone up.  

So It will be interesting how my fitness keeps going.

User
Posted 28 Apr 2020 at 17:30

Yes got used to the Cancer word now after 6 years now, Think you are going ok then it kicks you. Going through the menopause is how My consultant described it, and you are fully correct you have to live your life going forward and keep moving forward learning from history, not dwelling on it,  

User
Posted 19 Aug 2020 at 17:13

two and half years into HRT, hot flushes galore, wet farts and a couple of runs to the bog!!! when I get the hot flushes its my body telling me that the treatment is working!!! However my hair has grown back, positivity help me through my diagnosis and treatment & still helps me today!!

 

remember the sun always shines, but the clouds get in the way  just learn to move the clouds away

 

User
Posted 19 Aug 2020 at 17:38

I have worked hard and my fitness is the best it has been probably for at least 10 years. The hot flushes have not been too bad mainly at night. and during the hot evenings a little sweating but if all I prefer that than a wooden box.

 

User
Posted 20 Aug 2020 at 19:37

Thanks Mark, for your reply, I'm coming up to the end of my second 24 week injection cycle so hopefully I'll follow you on hormone treatment for over two years and still working, one thing seems to happen with me when i have the injection my hot flushes and emotions are worse then they tail off as time goes by until I'm due for the next injection. Like the comment about wet farts its a bugger to have a hot flush and a wet fart at the same time.

Cheers

User
Posted 20 Aug 2020 at 19:41

Hi Pinny, I'm with you hot flushes are better than a wooden waist coat

Cheers mate 

User
Posted 26 Oct 2020 at 10:34

How do people deal with the after effects of the hot flushes? I've been on hormone therapy for about a year now - 6 monthly injections. For a few weeks after an injection and for a few weeks before the next, I get episodes that really knock me sideways for up to half an hour. Last night I had two or three in quick succession as I was sitting watching TV and they really hit me. Anybody got any ideas or is it just a question of accepting that this is what happens in my case and just learning to cope with it? 

User
Posted 26 Oct 2020 at 19:40
Hi DevonHistorian, I think we all have different experience's with the flushes like yourself just after my injection the flushes seem worse tailing off till the next injection. My has given me a little sympathy but has chucked a cold flannel at me, some people have said limit the carbs and another I've heard of was 'sage' but I've never tried it, and another was counting thro' the flush did seem to help me if its any help I've just had my third injection and it seemed easier this time, hope you find your way to cope with the dreaded flushes pretty soon.
User
Posted 26 Oct 2020 at 21:09
Now winters approaching I take myself off into the conservatory for a few minutes till it passes.

Freezing cold in there and they swiftly pass. It's strange how they just come on from nowhere. I was having a filling at the dentist last week and had a full blown hot flush while the dentist was drilling.

The poor guy thought I was having a seizure.

User
Posted 27 Oct 2020 at 00:06

Sage tablets from Holland and barret and evening primrose oil are two possibilities. I tried epo it might have worked but it was hardly a clinical trial. One of our posters SR12 says his dad is using these two and they work. If you do try these two post your experiences here, it may help others. 

Dave

User
Posted 27 Oct 2020 at 11:42

Thanks Dave64diag2018: do you know if he took both together? I asked my oncologist about Black Kohosh but he was dead set against using it. One of the specialist Cancer nurses suggest trying Sage Tea (sounds disgusting) or Evening Primrose Oil. I'll have to get some and give it a try.   

 
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