Is my husbands cancer back

User

Posted 26 Aug 2019 at 14:21

Hi Chris

thank you so much for your response what a great attitude. Sorry that your outcome wasn’t better but your so positive and living life to the full and not letting anything phase you.

if only you could bottle it you’d make a fortune.

only new to this site and I have been so overwhelmed by the advice and support that I have received from kind people like yourself that have so generously shared their stories.

I am truly humbled by it all. Thank you. I wish you well for the future and God Bless.

Jan

User

Posted 26 Aug 2019 at 20:58

Hi please don’t focus on the word advanced as that conjures up all kinds of thoughts. If he has any cancer cells left behind they are likely to be still in the prostate bed and can probably be dealt with. At the next appointment discuss possible salvage treatment. But it may be wise to see how the PSA behaves for a while longer.

Bri

User

Posted 26 Aug 2019 at 21:12

Many thanks Bri

I have to admit that I have fixated on that word advanced and imagined all sorts of scenarios.

you are right of course and I really do appreciate your sound advice. I am amazed at how knowledgeable you and others on this site are and I realise I am really really a bit naive about it all.

of course I’ve googled a hundred different sites all giving conflicting and really sometimes worrying advice and information even when I know I really shouldn’t have.

Thank you for your advice and your help.

Best wishes

Jan

User

Posted 27 Aug 2019 at 22:04

Clear margins. Good news. Mine was T3a. Worry is negative energy as I'm sure we all know.

Look at PSA regular testing as a positive . It's a new chapter in your lives.

I've unsure why lymph were not sampled ? Perhaps others will post.

At 1 Dec place, as others have posted 0.2 is likely to be the threshold value. ie whether it's an advantage or not you will not see miniscule fluctuations.

If you look at numerous profiles. ie those having surgery . ie no prostate. you can see expected values should recurrence happen.

Edited by member 27 Aug 2019 at 22:06 | Reason: Not specified

User

Posted 27 Aug 2019 at 22:16

Where did you see the word ‘advanced’? Nothing in the diagnostics you have quoted suggests advanced disease. Focus on the fact that he had clear margins.

Some urologists do not remove any lymph nodes in keyhole RP. Some do, but only where there is a suspicion of node involvement. Others take a few, or loads ... the more nodes removed, the more chance of lymphodema later.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 27 Aug 2019 at 22:16

Hi Robgsr

thank you for your reply, l agree worry is just a waste of time and I am trying hard to just put my concerns to the back of my mind.

As you say at least clear margins are a positive and I am trying to get a grip of myself. Unfortunately I’ve always been a glass half empty kind of person that worries incessantly.

I can’t tell you how much it’s helped, hearing from you and the other kind people on here, that have taken the time and trouble to read my moan and offered support and advice.

Thanks so much I really appreciate it.

User

Posted 27 Aug 2019 at 22:22

It was in the booklet that we were given when he was first diagnosed. It stated that “ a” referred to cancer that had come through the capsule and was no longer contained within the prostate.

It referred to it as “ locally advanced” to be honest I wish I hadn’t read all of the terminology. I know they like to give as much information as possible and I appreciate that just wish I hadn’t read it.

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