Oligo APC mets

User

Posted 09 Dec 2019 at 15:56

My husband never thinks about his cancer, or so he says.

It is what it is,!

Its me that is constantly online looking at treatments etc.. To be fair to my Hubbie, will take anything , Supplements, Green T etc..

and WILL be up for future treatments ie LU-177 chemo, but hopefully that will be a long time off,

He does tire easier than before, lost his sense of taste during chemo, but continued to eat whatever I gave him, now back to normal. Although he has put a couple of pounds on due to the ADT.

So so far so good. Stay active, eat well. positive thinking.

Take care

User

Posted 09 Dec 2019 at 16:02

I too am going to look further into targeted treatment as I only have 4 possible mets at present at the age of 52. It does seem we are only offered systemic treatments with all the unwanted side-effects , when some targeted RT could buy a few years HT and Chemo free. I’m still terrified of making that next step.

If life gives you lemons , then make lemonade

User

Posted 09 Dec 2019 at 20:06

My dad’s the same, it’s only me doing the research, he’s carrying out as normal but exercising more to build up his strength for chemo.

Thanks for all the info, sending lots of positive wishes.

User

Posted 09 Dec 2019 at 20:09

We are going to research targeted mets in the new year too. Birmingham hospital seem to have information about targeted mets on their website, so that could be a place to start. I’d be interested to hear of anything you find.

Best wishes to you Chris.

User

Posted 10 Dec 2019 at 11:05

Hi Starskycat

Im the same as you, I want to research everything and ask things. My husband says we can't control it, it is what it is also.

I know far more knowledgeable people than me have commented about it being pointless to do RT with lymph node involvement but my husband (diagnosed July this year, T3a, Gleason 8, PSA 289 with lymph nodes in pelvic side wall, abdomen and aorta) has been told he will be considered for pelvic radiotherapy. We saw the oncologist last week after his final chemo and I asked about the criteria for RT as I thought pointless if in lymph nodes. They just said wait to see what scan shows. I suppose my point is in some cases they do want to do RT with lymph involvement. Sorry to confuse things more.

Mrs MAS

Edited by member 10 Dec 2019 at 11:10 | Reason: Not specified

Mrs MAS

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