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User
Posted 28 Aug 2020 at 08:09

We’ve just got back from Southern Spain and had a wonderful time! It’s all about making good memories isn’t it? Quarantine now but nearly finished X

User
Posted 12 Sep 2020 at 06:32

Just received the letter from last appt and does not make good reading when seen in black and white, Tonys PSA has gone from 0.5 in feb to 1.1 in may, 3.8 in june,5.8 in july to 6.4 in aug so going up fast. it then says treatment options left unfortunatley are quite limited. Cabazitaxel would be the next line but I have strong reservations about such an aproach in the absence of symptoms considering his known renal impairment and the fact that chemo would have very limited effect controlling his disease and,  therefore, I cannot see the benefits outweighing the possible side effects. results of scan are progression to lymph nodes only.

On the plus side we had a lovely holiday in Mallorca and Tony is getting the first of his cataracts done next week as long as his covid test comes back negative.

 

regards Barbara

 

 

User
Posted 12 Sep 2020 at 14:54

Sorry to read about the PSA rises. Mallorca sounds amazing to me at the minute, sounds like you had a nice time there.

 

Ido4

User
Posted 12 Sep 2020 at 16:04
It was lovely there, we where in a private villa and when we ventured out every one had masks on and social distancing was in place every where, felt much safer than in sunny skegness. x
User
Posted 12 Sep 2020 at 21:41
So pleased that you managed to get to Mallorca- fingers crossed that the progression stays slow x
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 18 Sep 2020 at 07:43
Bit of good news here, Tony has had the first one of his cataracts done and he can watch tv clearly already, booked in to get the other one done on 14th october.

regards Barbara x

User
Posted 18 Sep 2020 at 08:16
How lovely that must be for him !!

Best wishes x

If life gives you lemons , then make lemonade

User
Posted 18 Sep 2020 at 17:53
Thanks Chris, he should have been having them done in march but then lockdown came along.

regards Barbarax

User
Posted 18 Sep 2020 at 20:26

Cataract operations are amazing! 

User
Posted 29 Sep 2020 at 09:22

Saw Tony's renal specialist yesterday and he has confirmed that dialysis will be needed soon, the predicament is I showed him the last letter from Tony's oncologist and Tony will have to make a decision on what he wants to do, he is seeing renal Dr again in 3 weeks after he has had his other eye done, Dr is going to arrange for Tony to have a blood transfusion as his hb is down to 80. Seeing the oncologist is November about next steps as the treatment at moment is not working. The renal dr has said it is up to Tony about dialysis and how much it will impact his life and also how long he is likely to have left due to the cancer, if he is told 2 to 3 years dialysis is probably worth it but if it is 6 months could be a different matter. I have told Dr M (renal) that i will try to get Tony to talk about it and see what he wants to do, I have also said to Tony to maybe talk to our daughter about it, it is so hard to get him to open up because he really does not want to know about his illnesses, he tends to bury his head in the sand and just do what the doctor advises but now he really does have to make a choice.

 

regards Barbara

User
Posted 29 Sep 2020 at 10:53
Tough decisions, thoughts are with you..
User
Posted 23 Oct 2020 at 07:09
Tony spoke to his renal specialist on monday of this week and the Dr is waiting to hear back from Tony's Oncologist about what is happening with the Cancer before he speaks to Tony again on the 9th November, so another waiting game, but at least the renal dr will maybe be able to give Tony a bit more advice on weather or not to have the Dialysis. His bloods had improved a little bit so a few more weeks will not make a lot of difference. Tony has now had both cataracts done so that is good.

regards Barbara x

User
Posted 23 Oct 2020 at 08:55

Thinking of you both.
sounds like you are nearer a dialysis decision. 

Ido4

User
Posted 24 Nov 2020 at 09:46

Tony has an appt tomorrow with his oncologist, we spoke to the renal specialist about 3 weeks ago and he had heard back from the oncoligist who confirmed that treatment is no longer working and he would not recommend any more chemo, he did say that there may be another tablet he may be able to try but is not sure if it would work or not so we will find out at the appt, we will then be speaking to renal Dr on monday to find out if it will be worthwhile for Tony to go on dialysis or not due to how it will affect his QOL. Feeling very nervous at the moment.

 

regards barbara x

User
Posted 24 Nov 2020 at 10:32

Thinking of you both. It is a very frightening time for you X

User
Posted 24 Nov 2020 at 14:10
Wishing the best news possible for you both.

As always thinking of you

Ray x

User
Posted 24 Nov 2020 at 17:24
Thinking of you both.
User
Posted 24 Nov 2020 at 23:04

Thoughts are with you both.

 

Ido4

User
Posted 25 Nov 2020 at 01:27

A big virtual (((hug)))  from me Barbara - we haven't had many of those on here recently.

Edited by member 25 Nov 2020 at 11:02  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 25 Nov 2020 at 01:33

Tony & Barbara,

I hope they are able to help and are able to sort out some suitable treatment at this difficult time. 

You are in my thoughts and prayers. 

Steve x 

 
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