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When will it stop

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User
Posted 16 Apr 2019 at 14:50

But thank you I will ask about it I’ve learned more off here than off hospital or doctors

User
Posted 16 Apr 2019 at 15:18
Not all areas use the Macmillan nurses in the same way; in some areas it is a urology nurse instead. But you said in your first post that it was the Macmillan nurse that gave him his results in 2017 so you need to phone the hospital and ask to speak to them if you have any questions.

Don’t do the PSA test next week, it is a bit too soon. Once you get an appointment for the results, arrange a PSA test for a few days before the appointment.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 16 Apr 2019 at 16:00

When he had catheter out it was hospital that told him the date to have psa it was the specialist nurse that gave results she is the one that sits in when he sees his consultant Ile give them a bell in morn but the Macmillan nurse off the forum gave me a number to ring there sending him out information and said the pelvic floor excersises are on YouTube aswell so he’s had a look at them which is good thank you for your reply x

User
Posted 16 Apr 2019 at 17:58
The nurses on the forum are not Macmillan nurses, they are PCUK nurses.

If they told you to get the PSA test next week, that’s fine. I thought you said that no one had told you what happens next; I must have misunderstood.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 16 Apr 2019 at 20:15

Thanks for reply I ment no one has told us about incontinence or wat to expect at next appointment and wasn’t told you could still get cancer after prostate was removed I’m sorry your husband it getting it once is bad enough don’t no how you coped with twice and don’t really understand the t grade I we thought it was just Gleason if you don’t mind me asking how can they tell it’s contained in prostate as I am at a loss and is 5 weeks after op to soon for psa as Ile ring them if it is 

User
Posted 16 Apr 2019 at 20:32
No, don’t worry - if they said that is when they want the test to be done, that’s fine. Perhaps they are confident that the appointment with the surgeon will happen around week 6.

The Gleason score tells them how seriously to take the cancer. Generally a 6 doesn’t spread quickly but a 7 is more developed. They can tell whether the cancer had escaped the prostate by looking at it in a lab after the op - they can see if there are cancer cells on the outside or whether they are all contained inside. The results from the lab and the PSA test they will do next week will tell them whether the op has been successful.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 16 Apr 2019 at 21:00

Thank you that’s what’s confusing me as they said it will be about 8 weeks before he sees consultant I don’t no as havnt had an appointment yet but there doing psa at week 5 also at last appointment with the consultant the nurse said it’s contained in prostate and that was b4 it was removed I’m not very clued up on this tbh now a bleed on the brain I cud tell you anything about it and with are daughter dying I didn’t ask questions about prostate as suppose it’s are own fault we were to busy asking why Adele had passed away that we pushed the cancer aside

 
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