PSA at 25 after only 6 months post chemo

User

Posted 20 Oct 2019 at 14:03

Maybe a candidate for luetinium too?

User

Posted 22 Oct 2019 at 21:06

Had the consultant appointment today & as expected PSA has risen to over 90. A doubling rate of 8 weeks. He’s been prescribed dexamethasone alongside the abiraterone & review in 4 weeks.

This living in 4 weekly cycles is so draining for us both, but mainly him. It comes around so quickly.

User

Posted 24 Oct 2019 at 03:06

Was reading all your posts going back to March. My husband’s situation is similar. On Enza now since June but PSA is on the rise. Back at Mayo on Friday for scans to see if it has spread. Doc is talking about clinical trial for immunotherapy if he qualifies, or radium 223. I empathize with you and this journey. The regular appts, stress of waiting for the PSA, stress of what scans will show. Trying something and only getting a few months of result then on to something else. We are trying to be brave and realistic. Not focus too much on the future. We say “every day is new grace”. We pray a lot. Next week we leave for Budapest, Vienna, Prague, Berlin. Regardless of the scans we are living life. I hope you find treatment that gives your family much more time together.

User

Posted 29 Oct 2019 at 20:13

Just updating as things have taken a sudden turn for the worse. Kev had an increase in back pain over the weekend. I called the cancer ward on his behalf when he mentioned his leg felt strange yesterday morning. He was seen the same day & nerve blocker pain relief prescribed.

He had an emergency MRI this morning & called to see consultant this afternoon as results show spinal cord compression. Radiotherapy starts tomorrow.

This whole thing is an utter nightmare.

User

Posted 29 Oct 2019 at 23:58

Hi diangled

I have been reading your thread and can only imagine what a rollercoaster journey you are both experiencing.

I just wanted to wish you both the very best with your hubby’s most recent diagnosis. This experience is so exhausting for all involved.

Wishing you love and sending positive thoughts

SunnyJane xx

User

Posted 30 Oct 2019 at 13:31

Very big prayers for you both that radiotherapy shrinks the tumor on his spine. I am so sorry and know how hard this is, the anxiety of bad news and feeling helpless is so rough. Sending hope your way, some days that is all we have.

Saint Paul

User

Posted 30 Oct 2019 at 14:06

Thank you so much for kind replies.

He has been scanned & tattooed ready for planning & radiotherapy tomorrow onwards. I am so pleased I pushed him to make an issue of his pain as whilst it’s very close it’s not quite compressing his spinal cord. Listening to your body & any changes is so important.

He’s back at his desk working at home & with the nerve blocker meds is feeling very little discomfort.

Its so exhausting for him & us all. We had to tell the children last night which is never easy. Our youngest is 9 & needs to know that he can’t wrestle Dad like usual. Maybe the zip wiring in Center Parcs last week wasn’t the best idea for him 🙈.

Thanks again 😊

User

Posted 30 Oct 2019 at 19:17

I’ve just been reading your update, thank goodness for your vigilance. I wonder whether now is time for more chemo.

its dreadful when young children are involved too, I can’t say anything to take away your worry but I’m so glad that you were listen to and you took action.

love Devonmaid xxx

Edited by member 30 Oct 2019 at 19:17 | Reason: Not specified

User

Posted 30 Oct 2019 at 21:08

If you look at one of my posts re spinal cord compression, I had a tumour pressing on my spinal cord. After 4 consecutive 45 minute sessions I am maybe 80% of my mobility after 5 weeks and it is improving daily.

You should be heartened that your husband did not reach that stage. Just keep excercising and rest when tired, as fatigue can be a big problem.

He'll be back wrestling the kids before you know it!

Best regards

User

Posted 30 Oct 2019 at 21:15

Yes I fear it is time for the chemo. He is resigned to it & not unduly worried as he coped fairly well last time. I worry far more as he’s just not as ‘well’ as he was last time.

I think he’s also resigned to a shorter prognosis than first given. Hormone treatment & now the abi have just not lasted very long.

Orm - I’m so pleased you’re recovering from the cord compression. It’s very frightening just at the stage Kev is. His symptoms were almost worsening by the hour so it was very clear something was amiss. Hope you continue to make progress!

We’ve carved pumpkins tonight with the kids & his older sons are all coming over Saturday morning as planned to watch the Rugby. It always amazes me that even when things are so very tough that life is still enjoyed.

User

Posted 01 Nov 2019 at 12:07

HI Diangled,

Likewise with the mets in the bones during a bone scane it was picked up that I had a cracked and compressed L5 in the spine. Didn't help we were on a remote Scottish isle surfing when I got the call ! I don't know how it happened or if it was the mets but had a sore back for a few months before. A month after that with PSA rising I started the second session of 10 rounds of chemo. Its good the OH is positive about it and I likewise got through it ok.

Looking at your thread is he doing RT at the moment? I was never offered it.

GL and enjoy the rugby.

Steven

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